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Population-based cancer registries play a key role in cancer monitoring, and their utility relies heavily on the completeness and validity of the registered data. It is crucial to reduce incomplete stage information and to strengthen the role of TNM stage as key variables in the Danish Cancer Registry and other cancer registries. In this respect, distinction in cancer registries between evidence that staging was not performed clinically versus truly missing data would be an important next step. The present studies examined the completeness of the TNM staging data. In future studies it will be important to evaluate the accuracy as well.
Pubmed ID: 23115790
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SEER collects cancer incidence data from population-based cancer registries covering approximately 47.9 percent of the U.S. population. The SEER registries collect data on patient demographics, primary tumor site, tumor morphology, stage at diagnosis, and first course of treatment, and they follow up with patients for vital status.There are two data products available: SEER Research and SEER Research Plus. This was motivated because of concerns about the increasing risk of re-identifiability of individuals. The Research Plus databases require more rigorous process for access that includes user authentication through Institutional Account or multiple-step request process for Non-Institutional users.
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