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| Resource Name | Proper Citation | Abbreviations | Resource Type |
Description |
Keywords | Resource Relationships | |||||||||||||
|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|
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Childrens Tumor Foundation Resource Report Resource Website 1+ mentions |
Childrens Tumor Foundation (RRID:SCR_006280) | CTF | institution | A non-profit dedicated to ending neurofibromatosis (NF) through research. It is the leading nonprofit funding source of NF research in the world. The mission of The Children''s Tumor Foundation is to: * Encourage and support research and the development of treatments and cures for neurofibromatosis types 1 and 2, schwannomatosis, and related disorders (hereafter collectively referred to as NF); * Support persons with NF, their families, and caregivers by providing thorough, accurate, current, and readily accessible information; * Assist in the development of clinical centers, best practices, and other patient support mechanisms (but not including direct medical care) to create better access to quality healthcare for affected individuals; and, * Expand public awareness of NF to promote earlier and accurate diagnoses by the medical community, increase the non-affected population''s understanding of the challenges facing people with NF, and encourage financial and other forms of support from public and private sources. Through the implementation of the Foundation''s research initiatives, progress is being made on all fronts and for all types of NF; from discovery studies understanding the molecular signaling deficits that cause the manifestations of NF to the growth of preclinical drug screening initiatives and the emergence of a growing number of clinical trials. The Foundation advances research through strategically integrated programs that speed therapies from the lab to the patient. | child, award, grant, contract, drug discovery, clinical | Neurofibromatosis, Schwannomatosis | Wikidata: Q5098233, nlx_151890, ISNI: 0000 0004 5906 2417, grid.421144.6, Crossref funder ID: 100001545 | https://ror.org/01hx92781 | SCR_006280 | Children's Tumor Foundation, Children's Tumor Foundation: Ending Neurofibromatosis Through Research | 2026-07-25 12:06:17 | 9 | |||||||
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Bill and Melinda Gates Foundation Resource Report Resource Website 500+ mentions |
Bill and Melinda Gates Foundation (RRID:SCR_006346) | Gates Foundation | institution | Foundation to help all people lead healthy, productive lives, this funding and job resource is focused on health, poverty, and opportunity. They work with partner organizations worldwide to tackle critical problems in four program areas. Their Global Development Division works to help the world''s poorest people lift themselves out of hunger and poverty. Their Global Health Division aims to harness advances in science and technology to save lives in developing countries. Their United States Division works to improve U.S. high school and postsecondary education and support vulnerable children and families in Washington State. And their Global Policy & Advocacy Division seeks to build strategic relationships and promote policies that will help advance their work. Our approach to grantmaking in all four areas emphasizes collaboration, innovation, risk-taking, and, most importantly, results. The foundation is unable to make grants directly to individuals. The majority of our funding is proactive and made to U.S. tax-exempt organizations that are independently identified by our staff. | development, health, education, grant, science, technology, career, global health, global development, agricultural development, emergency response, family planning, maternal health, neonatal health, child health, nutrition, polio, vaccine, sanitation, hygiene | Enteric disease, Diarrheal disease, HIV, Malaria, Neglected infectious disease, Infectious disease, Pneumonia, Tuberculosis | nlx_152065, ISNI: 0000 0000 8990 8592, grid.418309.7, Crossref funder ID: 100000865, Wikidata: Q655286 | https://ror.org/0456r8d26 | SCR_006346 | Bill & Melinda Gates Foundation | 2026-07-25 12:06:19 | 833 | |||||||
|
Ben and Catherine Ivy Foundation Resource Report Resource Website 1+ mentions |
Ben and Catherine Ivy Foundation (RRID:SCR_006333) | Ivy Foundation | funding resource | Funds patient-focused research on gliomas to develop better diagnostics and treatments that lead to long-term survival and a high quality of life for patients with brain tumors. The goal is to decrease the suffering of patients with brain tumors. With an ultimate goal to cure brain cancer, their immediate goal is to improve diagnostics and treatment. They are dedicated to improving the lives of all patients with brain cancer by funding research that they hope will lead to the doubling of life expectancy of patients with brain cancer. Their goal is to do this within the next seven years. Since 2005 they''ve committed more than $50 million to research into brain tumors, with the expectation that this will lead to better diagnostics and therapies. They are dedicated to this search because funding leads to answers, and answers lead to hope. | glioma, research, brain, tumor, brain tumor, diagnostic, treatment | Brain cancer, Cancer | nlx_152043 | SCR_006333 | 2026-07-25 12:06:18 | 2 | |||||||||
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SNPdryad Resource Report Resource Website 1+ mentions |
SNPdryad (RRID:SCR_006414) | SNPdryad | service resource | Service to predict deleterious non-synonymous human Single Nucleotide Polymorphisms (SNPs) using only orthologous protein sequences. | non-synonymous, single nucleotide polymorphism, ortholog, protein sequence |
is listed by: OMICtools has parent organization: University of Toronto; Ontario; Canada |
PMID:24389653 | OMICS_02198 | SCR_006414 | SNPdryad - Deleterious Non-Synonymous SNP Predictions for Human | 2026-07-25 12:06:23 | 3 | |||||||
|
Nervous Tissue Color Images Resource Report Resource Website 10+ mentions |
Nervous Tissue Color Images (RRID:SCR_002416) | image collection, data or information resource | THIS RESOURCE IS NO LONGER IN SERVICE. Documented on January 13,2026. An image collection of tissue from the central nervous system and peripheral nervous system. | central nervous system, peripheral nervous system, image collection, nervous tissue, color image | has parent organization: University of Delaware; Delaware; USA | THIS RESOURCE IS NO LONGER IN SERVICE | nif-0000-21281 | SCR_002416 | University of Delaware Nervous Tissue Color Images, UD Nervous Tissue Color Images | 2026-07-25 12:09:59 | 16 | ||||||||
|
LifeLegacy Foundation Resource Report Resource Website 1+ mentions |
LifeLegacy Foundation (RRID:SCR_000518) | biomaterial supply resource, material resource | A non-profit tissue bank that facilitates the distribution of non-transplantable tissue to the medical and research community. It provides snap frozen low post mortem interval (PMI) tissue, normal and diseased tissue, plastinated specimens, anatomical specimens, and specialty specimens. The foundation also works to increase public awareness of research tissue donation for medical research. | tissue, bank, medicine, research, body, transplant, biomaterial | is listed by: One Mind Biospecimen Bank Listing | THIS RESOURCE IS NO LONGER IN SERVICE | nlx_37185 | SCR_000518 | LifeLegacy | 2026-07-25 12:12:19 | 1 | ||||||||
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University of Michigan Human Breast Cancer Cell Lines Resource Report Resource Website 1+ mentions |
University of Michigan Human Breast Cancer Cell Lines (RRID:SCR_000542) | University of Michigan Human Breast Cancer Cell Lines | biomaterial supply resource, material resource | THIS RESOURCE IS NO LONGER IN SERVICE. Documented on September 1, 2023. Asterand, Inc., the Detroit-based supplier of human tissue products and services, announces the distribution of eleven breast cancer cell lines, derived at the University of Michigan. The University has agreed to license the marketing of the breast cancer cell lines, known as the SUM lines, through Asterand in an effort to provide an exceptional tool to a broad base of researchers studying the disease. There are an estimated 1.2 million new diagnoses worldwide of breast cancer each year. The cell lines can be used to study all aspects of breast cancer biology, from new drug target identification to cell signaling to effects of novel drugs on cellular proliferation. | cell line, breast cancer |
is related to: Asterand has parent organization: University of Michigan Medical School; Michigan; USA |
Breast cancer | THIS RESOURCE IS NO LONGER IN SERVICE | nlx_84393 | SCR_000542 | University of Michigan SUM-LINES, University of Michigan Human Breast Cancer Cell Lines (SUM-LINES) | 2026-07-25 12:12:18 | 3 | ||||||
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Mexican Health and Aging Study Resource Report Resource Website 1+ mentions |
Mexican Health and Aging Study (RRID:SCR_000818) | MHAS | biomaterial supply resource, material resource | A dataset of a prospective panel study of health and aging in Mexico. The study was designed to ensure comparability with the U.S. Health and Retirement Study in many domains, and the NHANES III. The baseline survey in 2001 is nationally representative of the 13 million Mexicans born prior to 1951. The six Mexican states which are home to 40% of all migrants to the U.S. were over-sampled at a rate of 1.7:1. Spouse/partners of eligible respondents were interviewed also, even if the spouse was born after 1950. Completed interviews were obtained in 9,862 households, for a total of 15,186 individual interviews. All interviews were face-to-face, with average duration of 82 minutes. A direct interview (on the Basic questionnaire) was sought, and Proxy interviews were obtained when poor health or temporary absence precluded a direct interview. Questionnaire topics included the following: * HEALTH MEASURES: self-reports of conditions, symptoms, functional status, hygienic behaviors (e.g., smoking & drinking history), use/source/costs of health care services, depression, pain, reading and cognitive performance; * BACKGROUND: Childhood health and living conditions, education, ability to read/write and count, migration history, marital history; * FAMILY: rosters of all children (including deceased children); for each, demographic attributes, summary indicators of childhood and current health, education, current work status, migration. Parent and sibling migration experiences; * TRANSFERS: financial and time help given to and received by respondent from children, indexed to specific child; time and financial help to parent; * ECONOMIC: sources and amounts of income, including wages, pensions, and government subsidies; type and value of assets. All amount variables are bracketed in case of non-response. * HOUSING ENVIRONMENT: type, location, building materials, other indicators of quality, and ownership of consumer durables; * ANTHROPOMETRIC: for a 20% sub-sample, measured weight, height; waist, hip, and calf circumference; knee height, and timed one-leg stands. Current plans are to conduct another two follow-up surveys in 2012 and 2014 and will field the 3rd and 4th waves of survey data collection in Mexico. For the 2012 wave, interviews will be sought for: every person who was part of the panel in 2003 and their new spouse / partner, if applicable, and a new sample of persons born between 1952 and 1962. For the 2014 wave, we will follow-up the whole sample from 2012. Interviews will be conducted person-to-person. Direct interviews will be sought with all informants, but proxy interviews are allowed for those unable to complete their own interview for health or cognitive reasons. A next-of-kin interview will be completed with a knowledgeable respondent for those who were part of the panel but have died since the last interview. A sub-sample will be selected to obtain objective markers such as blood sample and anthropometric measures. Data Availability: The 2001 baseline data, 2003 follow-up data, and documentation can be downloaded. * Dates of Study: 2001-2003 * Study Features: Longitudinal, International, Anthropometric Measures * Sample Size: 2001: 15,186 (Baseline) Link: * ICPSR: http://www.icpsr.umich.edu/icpsrweb/ICPSR/studies/00142 | health, mexican, adult human, mexico, longitudinal, international, anthropometric measure, middle adult human, late adult human, interview, survey, spouse, health behavior, health status, childhood, family background, migration, income, housing environment, family life, behavior, housing, living arrangement, mental health, quality of life, questionnaire, disease, disability, economic, family, urban, rural, blood, self-report, chronic condition, symptom report, functionality, cognition, socioeconomic, work history, health insurance, health expenditure, parent, child, household resident, asset, pension, smoking, alcohol use, depressive disorder, pain, reading, education, demographics, employment |
is listed by: One Mind Biospecimen Bank Listing is listed by: Inter-university Consortium for Political and Social Research (ICPSR) has parent organization: University of Texas Medical Branch at Galveston |
Aging | NIA R01AG018016 | Public, Registration is required, Acknowledgement requested | nlx_151859 | http://www.mhas.pop.upenn.edu/english/home.htm | SCR_000818 | Mexican Health & Aging Study, Mexican Health and Aging Study (MHAS) | 2026-07-25 12:12:19 | 3 | ||||
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Genetics of Kidneys in Diabetes Resource Report Resource Website |
Genetics of Kidneys in Diabetes (RRID:SCR_000133) | GoKinD, Go KinD | biomaterial supply resource, material resource | THIS RESOURCE IS NO LONGER IN SERVICE. Documented on July 31,2025. Collect, store, and distribute genetic samples from cases and controls of type 1 diabetes and diabetic nephropathy for investigator-driven research into the genetic basis of diabetic nephropathy. As the risk of kidney complications in type 1 diabetes appears to have a considerable genetic component, this study assembled a large data resource for researchers attempting to identify causative genetic variants. The types of data collected allowed traditional case-control testing, a rapid and often powerful approach, and family-based analysis, a robust approach that is not influenced by population substructure. | clinical, genetics, genetic variant, gene, data set |
is listed by: One Mind Biospecimen Bank Listing is listed by: NIDDK Information Network (dkNET) has parent organization: George Washington University; Washington D.C.; USA |
Type 1 diabetes, Diabetes, Diabetic nephropathy, Kidney disease | JDRF ; NIH |
PMID:16775037 | THIS RESOURCE IS NO LONGER IN SERVICE | nlx_152764 | http://www.gokind.org/access | SCR_000133 | Genetics of Kidneys in Diabetes (GoKinD) Study, Genetics of Kidneys in Diabetes Study | 2026-07-25 12:12:18 | 0 | |||
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Symptom Score for Benign Prostatic Hyperplasia Resource Report Resource Website |
Symptom Score for Benign Prostatic Hyperplasia (RRID:SCR_000127) | AUA BPH, AUABPH | assessment test provider, material resource | THIS RESOURCE IS NO LONGER IN SERVICE, documented August 22, 2016. Adapted from the American Urology Association Symptom Score for Benign Prostatic Hyperplasia, this chart will assist physicians, researchers, and patients in assessing the severity of the problem. | severity, symptom, prostate |
is listed by: NIDDK Information Network (dkNET) has parent organization: NIDDK - National Institute of Diabetes and Digestive and Kidney Diseases |
Benign Prostatic Hyperplasia | THIS RESOURCE IS NO LONGER IN SERVICE | nlx_152737 | https://www.niddk.nih.gov/health-information/health-topics/urologic-disease/benign-prostatic-hyperplasia-bph/pages/facts.aspx | SCR_000127 | American Urological Association's Symptom Score for Benign Prostatic Hyperplasia, AUA Symptom Score for BPH | 2026-07-25 12:12:19 | 0 | |||||
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Taburit Umbilical Cord Blood Bank Resource Report Resource Website |
Taburit Umbilical Cord Blood Bank (RRID:SCR_000920) | biomaterial supply resource, material resource | A blood bank that operates as the marketing arm for the family cord blood banking operations of Sheba Medical Center. It is the largest medical center in the Middle East with a 24/7 call center to answer questions. The center provides collection kits, supervises the collection process, and transports the collected blood to the Sheba Cord Blood Bank. | blood, bank, middle east, collection, transport, family, sheba medical center | nlx_38777 | http://www.taburit.co.il/ | SCR_000920 | Tamburit | 2026-07-25 12:12:21 | 0 | |||||||||
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NIH Toolbox Picture Vocabulary Test Resource Report Resource Website 1+ mentions |
NIH Toolbox Picture Vocabulary Test (RRID:SCR_000166) | Picture Vocabulary Test | assessment test provider, material resource | THIS RESOURCE IS NO LONGER IN SERVICE. Documented on July 31,2025. A measure of receptive vocabulary that is administered in a computerized adaptive format. The respondent is presented with an audio recording of a word and four photographic images on the computer screen and is asked to select the picture that most closely matches the meaning of the word. This test takes approximately 4 minutes to administer and is recommended for ages 3-85. | cognition, language, vocabulary | has parent organization: NIH Toolbox - Assessment of Neurological and Behavioral Function | THIS RESOURCE IS NO LONGER IN SERVICE | nlx_157773 | SCR_000166 | 2026-07-25 12:12:17 | 1 | ||||||||
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American Tissue Services Foundation - ATSF Resource Report Resource Website |
American Tissue Services Foundation - ATSF (RRID:SCR_000549) | ATSF | biomaterial supply resource, material resource | A non-profit organization that facilitates the donation of tissues. It supports healthcare agencies, coroners, medical examiners and funeral professionals through donations and training, as well as partnering with organizations that utilize tissue in medical care and research. | tissue, donation, healthcare, medicine, research | THIS RESOURCE IS NO LONGER IN SERVICE | nlx_97074 | SCR_000549 | American Tissue Services Foundation | 2026-07-25 12:12:18 | 0 | ||||||||
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PRACSIS - Prognosis and Risk in Acute Coronary Syndromes In Sweden Resource Report Resource Website |
PRACSIS - Prognosis and Risk in Acute Coronary Syndromes In Sweden (RRID:SCR_000615) | PRACSIS | biomaterial supply resource, material resource | THIS RESOURCE IS NO LONGER IN SERVICE, documented August 23, 2016. PRACSIS (Prognosis and Risk in Acute Coronary Syndromes In Sweden) aims to study prognosis and its predictors in a consecutive series of patients with acute coronary syndrome (ACS). The study is comprised of patients between 18 and 80 years diagnosed at the coronary care unit at the Sahlgrenska University Hospital with unstable angina, non-ST-elevation MI or ST-elevation MI. Extensive information on medical history and blood samples for analyses of biochemical markers and genetic factors have been collected. | cardiac disease, predictor, prognosis, medical history, biochemical marker, genetic factor, biomarker, gene, genetics, adult |
is listed by: One Mind Biospecimen Bank Listing has parent organization: Karolisnka Biobank |
Acute coronary syndrome | THIS RESOURCE IS NO LONGER IN SERVICE | nlx_151442 | SCR_000615 | PRACSIS - Prognosis Risk in Acute Coronary Syndromes In Sweden, Prognosis and Risk in Acute Coronary Syndromes In Sweden, KI Biobank - PRACSIS | 2026-07-25 12:12:20 | 0 | ||||||
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NIH Toolbox Words-in Noise Test Resource Report Resource Website |
NIH Toolbox Words-in Noise Test (RRID:SCR_000174) | WIN Test | assessment test provider, material resource | THIS RESOURCE IS NO LONGER IN SERVICE. Documented on July 31,2025. Assessment test that measures how much difficulty a person might have hearing in a noisy environment. A recorded voice instructs the participant to listen to and then repeat words. The task becomes increasingly difficult as the background noise gets louder. This test was developed to measure a person's ability to recognize single words presented amid varying levels of background noise. Recommended for participants ages 6-85 and takes approximately six minutes to administer. | sensation, audition, hearing, ear, noise | has parent organization: NIH Toolbox - Assessment of Neurological and Behavioral Function | THIS RESOURCE IS NO LONGER IN SERVICE | nlx_157784 | SCR_000174 | NIH Toolbox Words-in Noise (WIN) Test | 2026-07-25 12:12:18 | 0 | |||||||
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Buss-Perry Aggression Questionnaire Resource Report Resource Website |
Buss-Perry Aggression Questionnaire (RRID:SCR_000177) | AGQ | assessment test provider, material resource | A 29 item aggression assessment where participants rank certain statements along a 5 point continuum from "extremely uncharacteristic of me"to "extremely characteristic of me". The scores are normalized on a scale of 0 to 1, with 1 being the highest level of aggression. The questionnaire returns scores for 4 dimensions of aggression: Physical Aggression, Verbal Aggression, Anger, Hostility. | psychology, scale, aggression, assessment, questionnaire, physical aggression, verbal aggression, anger, hostility | Physical Aggression, Verbal Aggression, Anger, Hostility | Public, Non-Commercial | nlx_157852 | SCR_000177 | Aggression Questionnaire, Buss Perry Aggression Questionnaire | 2026-07-25 12:12:19 | 0 | |||||||
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Living Biobank Resource Report Resource Website |
Living Biobank (RRID:SCR_001510) | Living Biobank | biomaterial supply resource, material resource | Provides investigators with the opportunity to obtain on-demand biological samples from selected individuals that TrialNet has developed through the longitudinal monitoring of individuals at risk for the development of type 1 diabetes within the Natural History study. Exploratory research is encouraged under this initiative. Studies must use TrialNet screened subjects, and cannot interfere with ongoing clinical trials or studies. Investigators can select the clinical characteristics needed for their study as well as the sample type and collection frequency. Although many Living Biobank studies may be implemented through cost-sharing with the TrialNet network, special sample collections and visits outside of the normal visit schedules will incur additional costs which should be covered by the approved applicant. In addition, some studies may require effort from the TrialNet coordinating center, with costs covered by the approved ancillary study. Living biobank studies will be evaluated with careful consideration for their potential impact on the objectives and performance of the TrialNet Natural History study. To protect the interests of TrialNet, each living biobank study must be reviewed and approved by the Ancillary Studies Committee before its initiation. All approved living biobank studies will be reviewed yearly to evaluate their progress, and impact on TrialNet as a whole. TrialNet welcomes the submission of living biobank studies as an adjunct to ongoing protocols. | whole blood, serum, plasma, dna, rna, peripheral blood mononuclear cell, blood |
is listed by: One Mind Biospecimen Bank Listing has parent organization: Type 1 Diabetes TrialNet |
Type 1 diaberes, Diabetes | Free, Freely available | nlx_152813 | SCR_001510 | TrialNet Living Biobank | 2026-07-25 12:12:22 | 0 | ||||||
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Taizhou Biobank Resource Report Resource Website |
Taizhou Biobank (RRID:SCR_000935) | biomaterial supply resource, material resource | THIS RESOURCE IS NOT IN SERVICE, documented August 9, 2016. A genetic biobank in Taizhou, China which plans to collect five million samples in 10 years. | biobank, china, taizhou | THIS RESOURCE IS NOT IN SERVICE, documented August 9, 2016. | nlx_88700 | SCR_000935 | 2026-07-25 12:12:21 | 0 | ||||||||||
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Acute Liver Failure Study Group Resource Report Resource Website |
Acute Liver Failure Study Group (RRID:SCR_001463) | ALFSG | biomaterial supply resource, material resource | Clinical research network for gathering prospective data and bio-samples on acute liver failure in adults since 1998. Clinical histories and laboratory and outcome data are available. Sample types include serum, plasma, urine, DNA, and liver tissue. | clinical network, research network, adult acute liver failure |
is listed by: One Mind Biospecimen Bank Listing is listed by: NIDDK Information Network (dkNET) is related to: Pediatric Acute Liver Failure Study has parent organization: University of Texas Southwestern Medical Center; Texas; USA |
Acute liver failure, Acute liver injury | NIDDK 2U01DK058369 | PMID:19524577 | Free, Freely Available | nlx_152690 | http://www8.utsouthwestern.edu/utsw/cda/dept25203/files/89624.html | SCR_001463 | Acute Liver Failure Study Group (ALFSG), UT Southwestern Acute Liver Failure Study Group, Adult Acute Liver Failure Study Group | 2026-07-25 12:12:21 | 0 | |||
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Australia Breast Cancer Tissue Bank Resource Report Resource Website |
Australia Breast Cancer Tissue Bank (RRID:SCR_000926) | ABCTB | biomaterial supply resource, material resource | A tissue bank which houses and supplies cancerous tissue for use by the research community. Along with tissue, the bank collects clinical history, lifestyle factors, breast pathology, treatment information, and follow up information. | cancer, tissue bank, breast, tissue, human, clinical history, treatment information, pathology | Cancer | National Health and Medical Research Council of Australia ; National Breast Cancer Foundation ; Cancer Institute of NSW |
THIS RESOURCE IS NO LONGER IN SERVICE | nlx_54620 | SCR_000926 | 2026-07-25 12:12:20 | 0 |
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