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| Resource Name | Proper Citation | Abbreviations | Resource Type |
Description |
Keywords | Resource Relationships | |||||||||||||
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Informant Questionnaire on Cognitive Decline in the Elderly Resource Report Resource Website 1+ mentions |
Informant Questionnaire on Cognitive Decline in the Elderly (RRID:SCR_003680) | IQCODE | assessment test provider, material resource | Assessment questionnaire used as a screening test for dementia that is filled out by a relative or other supporter who knows the patient for a minimum of 10 years to determine whether that person has declined in cognitive functioning. It lists 26 everyday situations where a person has to use their memory or intelligence. The questions on the test compare the patient''s state of mind to 10 years ago using the scale of: Much Improved A Bit Improved Not Much Change A Bit Change A Bit Worse and Much Worse. If the person is found to have significant cognitive decline, then this needs to be followed up with a medical examination to determine whether dementia is present. Scoring: * 0-3 No Cognitive Impairment * >3 Cognitive Impairment | late adult human, cognitive functioning, questionnaire, cognitive |
has parent organization: Australian National University; Acton; Australia has parent organization: Alzheimers Association |
Cognitive Impairment, Dementia | Free, Author appreciates being kept informed of research projects which make use of it | nlx_157833 | SCR_003680 | Informant Questionnaire on Cognitive Decline in the Elderly (IQCODE) | 2026-07-25 12:12:27 | 1 | ||||||
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KI Biobank - HARMONY Resource Report Resource Website 1+ mentions |
KI Biobank - HARMONY (RRID:SCR_008884) | HARMONY | biomaterial supply resource, material resource | A twin study characterizing the importance of genetic factors for dementia and using discordant twin pairs to study other putative risk factors which control for genetic propensity to develop the disease. Molecular genetic studies have identified a number of mutations and other markers associated with early age of onset Alzheimer''''s disease. However, most cases of late age of onset dementia are considered sporadic, that is, without a clear genetic basis. Twin studies provide a unique opportunity to characterize the importance of genetic factors for dementia. Discordant twin pairs additionally provide the opportunity to study other putative risk factors which controlling for genetic propensity to develop the disease. In the first wave of the Study of Dementia in Swedish Twins, all SATSA twins born before 1935 have been screened for dementia symptoms. Over 190 suspects have been identified. This pilot study has been expanded to the entire registry in the study known as HARMONY. All twins aged 65 and older were invited to participate in a computer assisted telephone screening interview. A total of 13,519 individuals completed the interview (response rate = 75.9%). Dementia screening was based on the TELE, which includes the 10-item MSQ, other cognitive items (counting backwards, recalling three words, and similarities), and questions about health and daily functioning; or on Blessed scores obtained from a proxy interview. Among those screened, 1565 were positive for suspicion of dementia and were referred for complete clinical evaluation by a physician and a nurse. Once the preliminary in-person evaluation suggested that the suspected case was demented, the twin partner was also invited for an identical clinical work-up. Response rate for clinical evaluations is 71.4%. Approximately half of those visited for evaluation have been diagnosed as demented according to DSM-IV criteria, of which two-thirds have Alzheimer''''s disease. An extensive assessment of probable risk exposure is also included. Longitudinal follow-up is yet another feature of the study. Association studies with candidate genes are also being performed. Types of samples * DNA Number of sample donors * 1154 (sample collection completed) | interview, late adult human, clinical evaluation, association study, candidate gene, gene, risk factor, twin, longitudinal |
is listed by: One Mind Biospecimen Bank Listing is related to: Swedish Twin Registry is related to: KI Biobank - SATSA has parent organization: Karolisnka Biobank |
Dementia, Alzheimer''''s disease, Discordant twin, Aging | NIH | nlx_151298 | http://ki.se/en/meb/dementia-in-swedish-twins-harmony | SCR_008884 | Dementia in Swedish Twins (HARMONY) | 2026-07-25 12:12:41 | 2 | |||||
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Layton Center Biomarkers and Genetics Resource Report Resource Website |
Layton Center Biomarkers and Genetics (RRID:SCR_008824) | Layton Biomarkers and Genetics | biomaterial supply resource, material resource | A center that works with the Oregon Alzheimer's Disease Center's Data Core, and collects and stores tissue samples, family history and genotype data of various populations. These include samples and data from subjects from the following sources: OADC clinical studies, the Oregon Brain Aging Study, the Community Brain Donor Program, the Preventing Cognitive Decline with Alternative Therapies program (informally called the Dementia Prevention Study or DPS), the African American Dementia and Aging Project, and the Klamath Exceptional Aging Project. The collected data samples include genomic DNA, lymphoblast cell lines, genome-wide and candidate region SNP marker data, APOE, AD candidate gene markers. | genomic dna, lymphoblast cell line, plasma, dna, cell line, lymphoblast, dementia, late adult human, normal, alzheimer's disease, clinical data, genotype data, genotype, clinical, family history |
is listed by: One Mind Biospecimen Bank Listing has parent organization: OHSU Layton Aging and Alzheimer's Disease Center |
Aging, Dementia, Alzheimer's disease | NIA P30 AG08017 | Researchers must fill out request forms | nlx_144448 | SCR_008824 | Layton Aging and Alzheimers Disease Center Biomarkers and Genetics, Layton Center Biomarkers and Genetics | 2026-07-25 12:12:41 | 0 | |||||
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Video Journal of Dementias Resource Report Resource Website |
Video Journal of Dementias (RRID:SCR_018382) | VJDementia | video resource, data or information resource | Open access online video resource about dementia for researchers dedicated to bringing latest news and education in short form video format. Published by Oxford based Magdalen Medical Publishing. | Video, dementia, Magdalene Medical Publishing | Alzheimer, dementia, Parkinson | Restricted | SCR_018382 | 2026-07-26 09:07:16 | 0 | |||||||||
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Emory ADRC Tissue and Biospecimen Banking Facility Resource Report Resource Website |
Emory ADRC Tissue and Biospecimen Banking Facility (RRID:SCR_000551) | biomaterial supply resource, material resource, tissue bank | The Alzheimer's Disease Research Center at Emery University maintains an active brain bank to facilitate the acquisition, storage, handling and distribution of well-characterized autopsy brain tissue and other materials to investigators. It contains frozen tissue and brain specimens, formalin fixed tissue, paraformaldehyde fixed tissue, and cryopreserved tissue. The ADRC also has access to tissues and samples related to other neurodegenerative diseases. It contains plasma samples, serum samples, lymphoblast cell lines, and cerebrospinal fluid. | brain bank, biomaterial supply resource, brain tissue, plasma, cerebral spinal fluid, serum, lymphoblast cell line, buffy coat isolate, buffy coat, frozen, paraffin block, paraformaldehyde-fixed, cryopreserved, alzheimer's disease, parkinson's disease, neurodegenerative disease, tauopathy, huntington's disease, normal control |
is listed by: One Mind Biospecimen Bank Listing is affiliated with: Emory Alzheimer's Disease Research Center is related to: Emory Neurology Database has parent organization: Emory University School of Medicine; Atlanta; Georgia; USA |
Alzheimer's disease, Parkinson's disease, Neurodegenerative disease, Tauopathy, Huntington's disease, Creutzfeldt-Jakob Syndrome, Dementia, Movement disorder, Sleep disorder, Stroke, Neuromuscular disease, Nervous system disease, Amyotrophic Lateral Sclerosis, Restless Leg Syndrome | NINDS P30 NS055077 | Public, Investigators must notify the ADRC of data use, Investigators must send a final copy of any accepted manuscript that used data or recruited research participations from the ADRC, Grant acknowledgement required, Institution acknowledgement required | nlx_144036 | SCR_000551 | Emory Tissue and Biospecimen Banking Facilities, Emory Tissue & Biospecimen Banking Facility, Emory ADRC Tissue & Biospecimen Banking Facility | 2026-07-26 09:02:47 | 0 | ||||||
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TalkBank Resource Report Resource Website 10+ mentions |
TalkBank (RRID:SCR_003242) | narrative resource, training material, database, data or information resource | Databases of transcript and media data collected from conversations with adults and older children to foster fundamental research in the study of human and animal communication. Conversations with children are available from CHILDES. All of the data is transcribed in CHAT and CA/CHAT formats. Databases of the following types are included in the collection: Aphasia patient speech, Child speech, Study of Phonological Development, Conversation Analysis, and Bilingualism and Second Language Acquisition. TalkBank will use these databases to advance the development of standards and tools for creating, sharing, searching, and commenting upon primary materials via networked computers. | aphasia, aphasiabank, bilingbank, cabank, phonbank, psychology, speech, communication, clinical, transcript, audio track, video, talk, voice, language, conversation, discourse, adult human, child, second language, audiology, media, animal communication, conversation analysis, discourse analysis, gesture, code switching, bilingualism, linguistic, phonological development, danish |
is listed by: re3data.org is related to: PhonBank has parent organization: Carnegie Mellon University; Pennsylvania; USA has parent organization: University of Pennsylvania; Philadelphia; USA works with: Child Language Data Exchange System (CHILDES) |
Aphasia, Dementia, Bilingualism | NIDCD R01 DC008524; NICHD R01 HD23998; NICHD R01 HD051698 |
Free, Freely available | nif-0000-00626, r3d100010551 | https://doi.org/10.17616/R3XW38 | SCR_003242 | 2026-07-27 09:31:42 | 31 | ||||||
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Hungarian Neurological-Psychiatric Biobank Resource Report Resource Website |
Hungarian Neurological-Psychiatric Biobank (RRID:SCR_003715) | NEPSYBANK | biomaterial supply resource, material resource, tissue bank | The Hungarian Society of Clinical Neurgenetics established a nationwide collaboration for prospective collection of human biological materials and databases from patient with neurological and psychiatric diseases. The basic triangle of the NEPSYBANK is the sample, the information and the study management. The present participants of the NEPSYBANK are the Department of Neurology and Psychiatry of the four Medical Universities (in Budapest, Debrecen, Pecs, Szeged) and the National Institute of Psychiatry and Neurology in Budapest. The NEPSYBANK is a disease based biobank collecting both phenotypical and environmental data and biological materials such as DNA/RNA, whole blood, plasma, cerebral spinal fluid, muscle / nerve / skin biopsy, brain, and fibroblast. The target of the diseases is presently (Phase I): stroke syndromes, dementias, movement disorders, motoneuron diseases, epilepsy, multiple sclerosis, schizophrenia, alcohol addiction. In the near future (Phase II.) it is planned to enlarge the scale with headaches, disorders of the peripheral nerves, disorders of neuromuscular transmission, disorders of skeletal muscle, depression, anxiety. DNA/RNA is usually extracted from whole blood, but occasionally different tissues such as muscle, brain etc. can be used as well. The extracting procedures differ among the institutes, but in all cases the concentration and the quality of the DNA/RNA must be registered in the database. Participating institutional biobanks have committed themselves to follow common quality standards, which provide access to samples after prioritization on scientific grounds only. In every case the following data are registered. 1. General data: main bank categories, age, sex, ethnicity, body height, body weight, economic stats, education, type of place of living, marital status, birth complications, alcohol, drugs, smoking. 2. Sample properties (sample ID, type of sample, date of extraction, concentration, and level of purity). General patient data as blood pressure, heart rate, internal medical status, ECG, additional diseases. Disease specific question e.g. in schizophrenia the diagnosis after DSMIV and ICD 10, detailed diagnostic questions after both classification, detailed psychiatric and neurological status, laboratory findings, rating scales, data of neuroimaging, genetic tests, applied medication (with generic name, dose, duration), adverse drug effects and other treatments. The Biobank Information Management System (BIMS) is responsible for linkage of databases containing information on the individual sample donors. If you want to have samples from the NEPSYBANK an application must be submitted containing the following information: short research plan including aims and study design, ethic application with a positive decision, specific demands regarding the right of disposition, agreements with grant organizations which regulate immaterial property, information about financing (academic grants, support from industry). All participants have the right to withdraw their samples through a simple order. | neurology, psychiatry, genomic, gene, genetic, disease, phenotype, clinical data, environment, dna, rna, whole blood, plasma, cerebral spinal fluid, muscle, biopsy, nerve, skin, brain, fibroblast, tissue, blood, frozen, liquid nitrogen, neurological disease, psychiatric disease, stroke, dementia, movement disorder, motor neuron disease, epilepsy, multiple sclerosis, schizophrenia, alcohol, addiction, alcohol addiction, headache, peripheral nerve disorder, neuromuscular transmission disorder, skeletal muscle disorder, depressive disorder, anxiety | is listed by: One Mind Biospecimen Bank Listing | Neurological disease, Psychiatric disease, Stroke, Dementia, Movement disorder, Motor Neuron Disease, Epilepsy, Multiple Sclerosis, Schizophrenia, Alcohol addiction, Headache, Peripheral nerve disorder, Neuromuscular transmission disorder, Skeletal muscle disorder, Depressive Disorder, Anxiety | PMID:17448454 | Public: if you want to have samples from the NEPSYBANK an application must be submitted. | nlx_13478 | SCR_003715 | Hungarian Neurological - Psychiatric Biobank, Hungarian Neurological - Psychiatric Biobank - NEPSYBANK | 2026-07-26 09:03:29 | 0 | |||||
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NeuroBiobank Munich Resource Report Resource Website 10+ mentions |
NeuroBiobank Munich (RRID:SCR_005014) | NBM | biomaterial supply resource, material resource, tissue bank | A brain bank which collects brain tissue from patients who died from various neurological and psychiatric diseases. These tissues are available for biochemical, molecular biological, and other work groups with the aim of supporting research on the pathogenesis, diagnosis, and therapy of these diseases. Collected brains are clinically and neuropathologically well-characterized. The collection and distribution of brain tissue samples is an ongoing process. NeuroBiobank Munich offers help with the organization and implementation of autopsies as well as with the neuropathologic diagnostics. The thematic emphasis of the NeuroBiobank Munich is Parkinson's disease and demential degenerative disorders such as Alzheimer's disease or Creutzfeldt-Jakob disease. NeuroBiobank Munich coordinates the German national brain tissue bank (BrainNet) and the European brain tissue bank (BrainNet Europe). | brain, tissue, brain bank, neurological disease, mental disease, parkinson's disease, alzheimer's disease, creutzfeldt-jakob syndrome, post mortem, neurodegenerative disease, dementia |
is listed by: One Mind Biospecimen Bank Listing has parent organization: Ludwig-Maximilians-University; Munich; Germany |
Parkinson's disease, Alzheimer's disease, Creutzfeldt-Jakob Syndrome, Neurodegenerative disease, Dementia | Public | nlx_144006 | SCR_005014 | ZNP Biobank | 2026-07-26 09:03:48 | 26 | ||||||
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Dementia Brain Bank Research Program Resource Report Resource Website |
Dementia Brain Bank Research Program (RRID:SCR_005129) | biomaterial supply resource, material resource, tissue bank | A brain bank which has obtained brains from individuals who suffered from some form of dementia. Clinical records and a family history are obtained for each donor in order to better understand each dementing illness and to work towards the improvement of diagnosing, treating, and preventing these diseases. | dementia, clinical data, family history, alzheimer's disease, brain, tissue |
is listed by: One Mind Biospecimen Bank Listing has parent organization: Regions Hospital Alzheimer's Research Center |
Dementia, Alzheimer's disease | nlx_144137 | SCR_005129 | Brain Bank Research Program | 2026-07-26 09:03:51 | 0 | ||||||||
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University of Kentucky's Alzheimer's Disease Center Resource Report Resource Website 1+ mentions |
University of Kentucky's Alzheimer's Disease Center (RRID:SCR_008766) | UK-ADC, UK ADC | biomaterial supply resource, material resource, tissue bank | An organization which includes a tissue bank, a database, study design consultation, clinical resources, and a community registry database. The UK-ADC shares data with the NIA national database (NACC), as well as with independent, qualified investigators both within and outside the UK-ADC. This resource's associated tissue bank is comprised of anonymized brain tissue, blood, and cerebrospinal fluid samples from patients in the clinic, as well as frozen post-mortem brain tissue samples. This organization also shares research resources with the National Alzheimer's Coordinating Center (NACC), NACC collaborative initiatives, the Alzheimer's Disease Neuroimaging Initiative (ADNI), other Alzheimer Disease Centers (ADCs), and any qualified investigators from either the University of Kentucky or the general scientific community. | post-mortem, brain, brain tissue, cerebral spinal fluid, serum, plasma, buffy coat, blood, alzheimer's disease, dementing disorder, mild cognitive impairment, dementia, frozen, formalin fixed, paraffin embedded slide, clinical, neuropathology, neuropathologic disease, neuropathologic diagnosis, clinical, registry |
is listed by: One Mind Biospecimen Bank Listing has parent organization: University of Kentucky Alzheimer's Disease Center |
Alzheimer's disease, Dementing disorder, Dementia, Neuropathologic diagnosis | NIA P30 AG028383 | Public | nlx_144056 | http://www.mc.uky.edu/coa/clinicalcore/alzheimercenter.html#neuropathology, http://www.mc.uky.edu/coa/clinicalcore/Neuropathology%20Core.html | SCR_008766 | University of Kentucky Alzheimer's Disease Center Biospecimen Data or Clinical Request, UK-Alzheimer's Disease Center Biospecimen Data or Clinical Request | 2026-07-26 09:04:40 | 1 | ||||
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SIU CADRD Dementia Brain Autopsy Program Resource Report Resource Website |
SIU CADRD Dementia Brain Autopsy Program (RRID:SCR_006918) | brain bank, biomaterial supply resource, material resource, tissue bank | A brain autopsy program developed to serve the needs of Illinois families and individuals affected by dementing diseases and to advance dementia research by providing tissue to researchers studying dementing diseases. The SIU School of Medicine (SIU-SM) Dementia Brain Autopsy Program facilitates the postmortem process for families wishing to obtain an autopsy for a loved one. A brain autopsy provides family members with accurate information regarding the exact nature of their relative's dementia. This includes information about the possibility of an inherited disorder which may affect other family members. The brain autopsy also helps clinicians improve their clinical skills by identifying the precise cause of the clinical dementia. | post mortem, autopsy, brain tissue, brain, tissue, dementia, dementing disease, alzheimer's disease |
is listed by: One Mind Biospecimen Bank Listing has parent organization: SIU Center for Alzheimer's Disease and Related Disorders |
Dementia, Dementing disease, Alzheimer's disease | The Dementia Brain Autopsy Program is on hold due to lack of funding, Check back periodically to see if the program has been re-instituted, Available to the research community | nlx_144049 | SCR_006918 | Dementia Brain Autopsy Program, SIU-SM Dementia Brain Autopsy Program, SIU School of Medicine Dementia Brain Autopsy Program, SIU Dementia Brain Autopsy Program | 2026-07-27 09:32:41 | 0 | |||||||
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BrainNet Europe Resource Report Resource Website 10+ mentions |
BrainNet Europe (RRID:SCR_004461) | BNE | portal, consortium, data or information resource, organization portal | THIS RESOURCE IS NO LONGER IN SERVICE.Documented on July 7, 2022. Consortium of 19 brain banks across Europe with an aim to harmonize neuropathological diagnostic criteria and develop gold standards for quality, safety and ethics standards for brain banking. BrainNet Europe also contributes to research on rare diseases, such as: Pick''s disease or other rare forms of dementia, as well as to questions after the events in the aging brain. Anyone can be a donor - irrespective of disease of the central nervous system or not, because for research purposes, one does not only need tissue samples from ill donors, but also from healthy ones for comparison. | central nervous system, clinical, brain research, brain tissue, brain, tissue, late adult human, brain bank, gold standard, neuropathological diagnosis, tissue handling, safety, quality control, ethics, post mortem, data sharing, tissue sampling, autopsy, microdissection, diagnosis |
is listed by: One Mind Biospecimen Bank Listing is listed by: Consortia-pedia is related to: Medical University of Vienna Institute of Neurology is related to: Human Brain Tissue Bank has parent organization: Ludwig-Maximilians-University; Munich; Germany is parent organization of: BrainNet Europe Sampling Protocols |
Central nervous system disorder, Normal control, Aging, Neurological disease, Psychiatric disease, Pick''s disease, Dementia | European Union FP6 LSHM-CT-2004-503039 | THIS RESOURCE IS NO LONGER IN SERVICE | nlx_45326 | SCR_004461 | BrainNet Europe Consortium | 2026-07-27 09:32:02 | 24 | |||||
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Joseph and Kathleen Bryan Alzheimer's Disease Research Center Resource Report Resource Website |
Joseph and Kathleen Bryan Alzheimer's Disease Research Center (RRID:SCR_005025) | patient-support portal, topical portal, disease-related portal, portal, research forum portal, data or information resource | An Alzheimer's disease center (ADC) that offers support services for families caring for persons with memory disorders, community outreach and education programs, in addition to its clinical and basic research activities. Information on current scientific and clinical findings is offered to the general public, medical and scientific community. An important emphasis of the Bryan ADRC is to advance basic medical discovery concerning AD and related dementias. This basic science mission is facilitated through the DNA cell repository located in the Institute of Genome Sciences and Policy (IGSP) and the Bryan ADRC brain donation program of the Kathleen Price Bryan Brain Bank. These affiliated Bryan ADRC programs provide a source of fresh brain tissue. | alzheimer's disease, memory disorder, clinical trial, dementia, human brain |
has parent organization: Duke University School of Medicine; North Carolina; USA is parent organization of: Duke University Kathleen Price Bryan Brain Bank |
Alzheimer's disease, Memory disorder, Dementia | NIA | Public, Samples are available to the research community | nlx_144012 | SCR_005025 | Bryan Alzheimer's Disease Research Center, Joseph & Kathleen Bryan Alzheimer's Disease Research Center, Bryan ADRC, Joseph and Kathleen Bryan Alzheimer's Disease Research Center | 2026-07-27 09:32:10 | 0 | ||||||
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Florida Brain Bank Resource Report Resource Website |
Florida Brain Bank (RRID:SCR_004936) | brain bank, biomaterial supply resource, material resource, tissue bank | THIS RESOURCE IS NO LONGER IN SERVICE. Documented on January 11, 2023. A service and research oriented network of statewide regional brain bank sites. The intent of the brain bank program is to study brains of persons clinically diagnosed with dementia and provide tissue for research after their deaths. Mt. Sinai Medical Center contracts annually with the State of Florida to operate the primary brain bank. Coordinators at regional brain bank sites in Orlando, Tampa and Pensacola assist in recruiting participants and act as liaisons between the brain bank and participant families. Alzheimer's disease respite care program providers, memory disorder clinics, and model day care programs also recruit brain bank participants. The Florida Brain Bank supports collaborative research programs related to Alzheimer's disease and other degenerative disorders of the brain. | post-mortem, tissue, brain, alzheimer's disease, dementia, clinical, mild cognitive impairment, florida, brain bank, degenerative brain disorder |
is listed by: One Mind Biospecimen Bank Listing has parent organization: State of Florida Alzheimer's Disease Initiative has parent organization: Wien Center For Alzheimer's Disease and Memory Disorders |
Alzheimer's disease, Dementia, Mild Cognitive Impairment | State of Florida Department of Elder Affairs | THIS RESOURCE IS NO LONGER IN SERVICE | nlx_143950 | http://elderaffairs.state.fl.us/english/BrainBank/index.php | SCR_004936 | State of Florida Brain Bank, Florida Alzheimer's Disease Brain Bank | 2026-07-27 09:32:09 | 0 | |||||
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Alzheimer's and Dementia Resource Center Resource Report Resource Website 100+ mentions |
Alzheimer's and Dementia Resource Center (RRID:SCR_004924) | ADRC | brain bank, biomaterial supply resource, material resource, tissue bank | The Alzheimer's and Dementia Resource Center (ADRC) facilitates tissue donations for the Brain Bank Research Program in order to help find better treatments, more diagnostic tools and a cure for Alzheimer's disease and dementia. The Brain Bank Program is administered by Mount Sinai Medical Center in Miami Beach and under contract with the Florida Department of Elder Affairs. ADRC also provides caregivers with the educational resources, spiritual comfort and emotional support. The ADRC facilitates training for professional caregivers that meets requirements for the Florida Department of Elder Affairs. | alzheimer's disease, dementia, brain, tissue, brain bank, caregiver, educational resource, patient support | is listed by: One Mind Biospecimen Bank Listing | Alzheimer's disease, Dementia | Public, Registration and pre-registration required to access the brain bank | nlx_143948 | SCR_004924 | alzheimer's disease, tissue, brain, patient support, educational resource, caregiver, dementia, brain bank | 2026-07-27 09:32:09 | 421 | ||||||
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PheKB Resource Report Resource Website 10+ mentions |
PheKB (RRID:SCR_005292) | PheKB | software repository, software resource, knowledge environment | Collaborative environment of building and validating electronic phenotype algorithms using electronic medical records (EMRs) and natural language processing (NLP) for use in genome-wide association studies (GWAS). On this site you can: View existing algorithms, Enter or create new algorithms, Collaborate with others to create or review algorithms, View implementation details for existing algorithms. The Electronic Medical Records and Genomics Network (eMERGE) has investigated whether data captured through routine clinical care using electronic medical records (EMRs) can identify disease phenotypes with sufficient positive and negative predictive values for use in genome-wide association studies (GWAS). Most EMRs captured key information (diagnoses, medications, laboratory tests) used to define phenotypes in a structured format; in addition, natural language processing has also been shown to improve case identification rates. PheKB is an outgrowth of that validation effort. Phenotype algorithms can be viewed by data modalities or methods used: CPT codes, ICD 10 codes, ICD 9 codes, Laboratories, Medications, Vital Signs, Natural Language Processing Algorithms can also be viewed by: * Implementation results (positive predictive value, sensitivity, publications) * Institution * Work Group | phenotype, electronic medical record, medical record, human, clinical, white blood cell, red blood cell, lipid, algorithm, height, cardiac conduction, genome-wide association study, natural language processing |
is related to: eMERGE Network: electronic Medical Records and Genomics has parent organization: Vanderbilt University; Tennessee; USA |
Atrial fibrillation, Crohn''''s disease, Multiple Sclerosis, Rheumatoid arthritis, Type 2 diabetes mellitus, Dementia, Cataracts, Hypothyroidism, Diabetic Retinopathy, High-Density Lipoprotein, Peripheral Arterial Disease | PMID:20362271 | nlx_144339 | SCR_005292 | Phenotype KnowledgeBase, PheKB - a knowledgebase for discovering phenotypes from electronic medical records | 2026-07-27 09:32:14 | 28 | ||||||
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University of Pittsburgh Alzheimer Disease Research Center Resource Report Resource Website 100+ mentions |
University of Pittsburgh Alzheimer Disease Research Center (RRID:SCR_008084) | ADRC | portal, disease-related portal, topical portal, data or information resource | A research center associated with the University of Pittsburgh that specializes in the diagnosis of Alzheimer's disease and related disorders. The overall objective of the ADRC is to study the pathophysiology of Alzheimer's disease, with the aim of improving the reliability of diagnosis of Alzheimer's and developing effective treatment strategies. Current research foci emphasize neuropsychiatry and neuropsychology, molecular genetics and epidemiology, basic neuroscience, and structural and functional imaging that aid in the diagnosis and treatment of Alzheimer's disease. Specific services at the ADRC include: comprehensive diagnostic evaluation of patients with suspected Alzheimer's disease and other forms of dementia; evaluation of memory, language, judgment, and other cognitive abilities; and education and counseling for patients and families. | african american, alzheimer's disease, assessment, clinical, cognitive, dementia, diagnosis, diagnostic evaluation, human, medical, mild cognitive impairment, neurological, pathophysiology, psychiatric | has parent organization: University of Pittsburgh; Pennsylvania; USA | Alzheimer's disease, Mild Cognitive Impairment, Dementia, Aging | NIA | Public | nif-0000-10750 | SCR_008084 | University of Pittsburgh Alzheimer's Disease Research Center | 2026-07-27 09:32:59 | 494 | |||||
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Johns Hopkins Alzheimer's Disease Research Center Resource Report Resource Website |
Johns Hopkins Alzheimer's Disease Research Center (RRID:SCR_008757) | brain bank, biomaterial supply resource, material resource, tissue bank | A Alzheimer's Disease Research Center (ADRC) whose goal is to conduct basic and clinical research aimed at understanding Alzheimer's disease. The Center enrolls a variety of individuals for clinical trials, evaluation and follow-up, including: normal control subjects, individuals with mild memory problems, and patients diagnosed with Alzheimer's Disease or related dementias. Researchers can request data and specimens obtained from ADRC subjects. These include blood or DNA, brain specimens, and cross-sectional or longitudinal clinical and cognitive data, all from ADRC subjects. | alzheimer's disease, mild memory problem, dementia, clinical data, cognitive data, blood, dna, brain, tissue, human, clinical trial, memory |
is listed by: One Mind Biospecimen Bank Listing has parent organization: Johns Hopkins University School of Medicine; Baltimore, Maryland; USA |
Alzheimer's disease, Normal control, Mild memory problem, Dementia, Aging | NIA | Public, Researchers can request data and specimens obtained from ADRC subjects | nlx_144105 | SCR_008757 | Johns Hopkins ADRC, Johns Hopkins Alzheimer's Disease Research Center | 2026-07-27 09:33:09 | 0 | ||||||
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Mayo Clinic Jacksonville: Neuropathology and Microscopy Resource Report Resource Website 1+ mentions |
Mayo Clinic Jacksonville: Neuropathology and Microscopy (RRID:SCR_008753) | brain bank, biomaterial supply resource, material resource, tissue bank | A brain bank and laboratory focused on memory and motor disorders. Brains are sent to the laboratory for diagnosis and research for the State of Florida Alzheimer Disease Initiative and for the Society for Progressive Supranuclear Palsy. As part of this brain banking function, fixed and frozen brain samples are obtained at autopsy and sent to the laboratory for diagnostic evaluation and for various types of research studies. The major types of analyses performed on the brain samples include neuro-histology, immunohistochemistry, confocal microscopy, electron microscopy and image analysis, as well as immunoassays. The latter are based upon Western blotting and enzyme linked immunoassays. The laboratory has a specific interest in the interface between normal aging and Alzheimer's disease, as well as in non-Alzheimer's degenerative disorders such as Lewy body dementia, corticobasal degeneration, progressive supranuclear palsy and frontotemporal dementia. The primary focus of research on aging is neuropathologic characterization of brains of individuals who had been prospectively and longitudinally evaluated during life. These studies aim to determine differences in a range of biologic parameters in brains of people with normal cognitive, mild cognitive impairment and dementia. Their focus on Parkinson's disease is to identify preclinical Parkinson's disease in order to develop means for early diagnosis. | tissue, brain, fixed, frozen, alzheimer's disease, normal aging, memory disorder, motor disorder, parkinson's disease, progressive supranuclear palsy, lewy body disease, corticobasal degeneration, frontotemporal dementia, dementia, mild cognitive impairment, mouse, neurofibrillary degeneration, postmortem, normal control, autopsy |
is listed by: One Mind Biospecimen Bank Listing has parent organization: Mayo Clinic Florida; Florida; USA has parent organization: Mayo Alzheimer's Disease Research Center has parent organization: Florida Alzheimer's Disease Research Center |
Alzheimer's disease, Aging, Memory disorder, Motor disorder, Parkinson's disease, Progressive Supranuclear Palsy, Lewy Body Disease, Corticobasal Degeneration, Frontotemporal dementia, Dementia, Mild Cognitive Impairment | NIA P50-AG16574; NIA P50-AG25711; NINDS P50-40256 |
nlx_143952 | SCR_008753 | Mayo Clinic Jacksonville: Neuropathology Microscopy, Mayo Clinic Florida: Neuropathology and Microscopy, Neuropathology and Microscopy - Dennis W. Dickson, Mayo Clinic Florida: Neuropathology and Microscopy - Dennis W. Dickson | 2026-07-27 09:33:11 | 1 | |||||||
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Michigan Alzheimer's Disease Center Brain Bank Resource Report Resource Website |
Michigan Alzheimer's Disease Center Brain Bank (RRID:SCR_008774) | MADC | brain bank, biomaterial supply resource, material resource, tissue bank | An organization that provides scientists with human tissue from Alzheimer's patients and patients with related brain disorders. Brain tissue is collected from research studies at the University of Michigan, as well as other research centers, and are donated by the families of the patients or the participants themselves. Tissues that are present in the Brain Bank are pre-characterized by pathologists and can be provided to researchers upon request. | alzheimer's disease, dementia, late adult human, brain, tissue, brain tissue, autopsy, brain donation, clinical data |
is listed by: One Mind Biospecimen Bank Listing has parent organization: Michigan Alzheimer's Disease Center |
Alzheimer's disease, Dementia, Aging | Available to research staff upon request | nlx_144107 | http://www.med.umich.edu/alzheimers/research/brain_bank.htm | SCR_008774 | MADC Brain Bank | 2026-07-27 09:33:12 | 0 |
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Welcome to the PRECISE-TBI Resources search. From here you can search through a compilation of resources used by PRECISE-TBI and see how data is organized within our community.
You are currently on the Community Resources tab looking through categories and sources that PRECISE-TBI has compiled. You can navigate through those categories from here or change to a different tab to execute your search through. Each tab gives a different perspective on data.
If you have an account on PRECISE-TBI then you can log in from here to get additional features in PRECISE-TBI such as Collections, Saved Searches, and managing Resources.
Here is the search term that is being executed, you can type in anything you want to search for. Some tips to help searching:
If you are logged into PRECISE-TBI you can add data records to your collections to create custom spreadsheets across multiple sources of data.
Here are the facets that you can filter the data by.
If you have any further questions please check out our FAQs Page to ask questions and see our tutorials. Click this button to view this tutorial again.
