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| Resource Name | Proper Citation | Abbreviations | Resource Type |
Description |
Keywords | Resource Relationships | |||||||||||||
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KI Biobank - EIMS Resource Report Resource Website |
KI Biobank - EIMS (RRID:SCR_005898) | EIMS | biomaterial supply resource, material resource | A multi-center population based epidemiological investigation of risk factors for Multiple Sclerosis (MS), where lifestyle- and environmental factors are examined systematically with concurrent genetic information. Newly diagnosed cases of MS in a geographically defined population and randomly chosen controls are identified and asked to answer a questionnaire on lifestyle, previous exposures at work, home and during spare time activities. For both cases and controls blood samples are taken for analysis of putative risk genes since environmental exposures probably contributes to disease only in individuals with certain genotypes. Exposures of interest are different sociodemographic factors, smoking, sunlight exposure, oral contraceptives / hormonal factors, butyrophilin (a milk protein), vaccinations, infections, atopic disease, organic solvents, mineral oils and a number of different psychosocial factors, such as critical lifetime events. Data from more than 1600 cases and 3200 controls are currently collected. (August 2014) The intention is to continue with the data collection over several years in order to analyse how genes and environment interact. The study is a collaboration between different institutions at Karolinska Institutet and neurological centers from 38 different hospitals in Sweden. Sample types * EDTA whole blood * DNA * Plasma * Serum | environmental exposure, lifestyle, genetics, gene, genotype, sociodemographic factor, smoking, sunlight exposure, oral contraceptive, hormonal factor, butyrophilin, vaccination, infection, atopic disease, organic solvent, mineral oil, psychosocial factor, risk factor, blood, edta whole blood, dna, plasma, serum |
is listed by: One Mind Biospecimen Bank Listing has parent organization: Karolisnka Biobank |
Multiple Sclerosis, Normal control | nlx_149469 | http://ki.se/ki/jsp/polopoly.jsp?d=29348&a=31582&l=en | SCR_005898 | Epidemiological Investigation of risk factors for Multiple Sclerosis | 2026-07-25 12:12:35 | 0 | ||||||
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KI Biobank - GEMS Resource Report Resource Website 1+ mentions |
KI Biobank - GEMS (RRID:SCR_005893) | KI Biobank - GEMS | biomaterial supply resource, material resource | The study subjects invited to participate is chosen from the Swedish national Multiple Sclerosis registry and will number around 10 000 individuals to be included during two to three years. The same number of matched controls will also be included in the study. A pilot study with around 100 participants was performed during 2009, and the large scale study started in November 2009. Multiple sclerosis (MS) is a neurological disease that affects the central nervous system. It affects young people and the debut age is between 20 and 40 years. The disease comes with exacerbations but further on leads to disability. The incidence in Sweden is around 5 per 100 000 per year and the prevalence is 125 per 100 000 inhabitants. In total there are estimated around 13000 cases in Sweden and today 9000 of them are registered in the Swedish National Multiple Sclerosis register. Sample types * EDTA whole blood * DNA * Plasma Number of sample donors: 5592 (June 2010) |
is listed by: One Mind Biospecimen Bank Listing has parent organization: Karolisnka Biobank |
Multiple sclerosis, Normal control | nlx_149471 | http://ki.se/ki/jsp/polopoly.jsp?d=29348&a=103481&l=en | SCR_005893 | 2026-07-25 12:12:35 | 7 | ||||||||
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Geisinger Biobank Resource Report Resource Website |
Geisinger Biobank (RRID:SCR_005652) | Geisinger Biobank | biomaterial supply resource, material resource | By collecting and analyzing blood samples from Geisinger''s large patient population, MyCode will help unlock the mysteries of some of the most devastating and debilitating diseases. Blood samples are obtained from patients of certain Geisinger specialty clinics to study specific conditions, such as obesity and cardiovascular disease, and also from patients of Geisinger primary care clinics to provide a representative sample of the regional population. More than 60,000 samples from over 23,000 Geisinger patients have been collected so far, and sample collection is ongoing. MyCode researchers use the blood samples to study the genetic causes of diseases and certain disease-related molecular mediators. Knowledge gained from these studies will allow researchers to pursue innovative approaches to disease prevention, diagnosis and treatment. To be of value for Genomic Medicine research, bio-banked samples must be connected to clinical data: MyCode allows genetic and molecular data about the samples to be connected to medical data in a way that protects patient identity. When a patient agrees to participate in MyCode, blood samples for the MyCode Project are collected during blood draws ordered as part of the patient''s routine medical care. After the sample is drawn and labeled, a staff member from the Weis Center for Research transports the blood to the Geisinger Clinic Genomics Core (GCGC) where it is processed for storage. At this stage, all personal identification markers are removed and the samples are assigned a randomly-selected identification number. A secure key is maintained that allows approved researchers to connect the samples to the clinical data for genomic studies in a way that ensures confidentiality of the information. To maintain confidentiality of MyCode data the code linking the research numbers and the electronic health records are kept in a password-protected files accessible only to MyCode team members. Additionally, all results generated from the samples are reported as a group so that individuals are not identified. The samples are stored indefinitely. | gene, genetics, disease, clinical data, genomic medicine, genetic data, molecular data, blood, obesity, cardiovascular disease, other specific conditions, regional population | is listed by: One Mind Biospecimen Bank Listing | Obesity, Cardiovascular disease, Disease, Other conditions, Regional population | Ben Franklin Technology Development Authority ; Geisinger Clinic Administrative Committee for Research |
?: A secure key is maintained that allows approved researchers to connect the samples to the clinical data for genomic studies in a way that ensures confidentiality of the information. | nlx_14718 | SCR_005652 | 2026-07-25 12:12:33 | 0 | ||||||
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ETEX Corporation Resource Report Resource Website |
ETEX Corporation (RRID:SCR_004685) | ETEX | biomaterial supply resource, material resource | THIS RESOURCE IS NO LONGER IN SERVICE, documented August 22, 2016. Develop, manufacture and market proprietary, nanocrystalline calcium-phosphate-based biomaterials that promote the repair and regeneration of bone damaged by trauma or disease. ETEX focuses on expanding applications through combinations with cells, biologics, or therapeutic agents delivered in minimally invasive and easy to use systems. | calcium phosphate, bone substitute, bone substitute material, bone, bioresorbable | is listed by: One Mind Biospecimen Bank Listing | THIS RESOURCE IS NO LONGER IN SERVICE | nlx_68272 | SCR_004685 | ETEX Corp | 2026-07-25 12:12:31 | 0 | |||||||
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National Biobank of Finland Resource Report Resource Website 1+ mentions |
National Biobank of Finland (RRID:SCR_004679) | National Biobank of Finland | biomaterial supply resource, material resource | THIS RESOURCE IS NO LONGER IN SERVICE. Documented on January 11, 2023.To guarantee the top level of expertise in modern genetic and biological analyses, we have built an infrastructure that facilitates the collection of genome-wide information on the genetic background of diseases as well as functional information on the molecules that are critical in the disease process. Furthermore we have established the necessary storage, database and computational resources for the expert analyses of the massive amount of collected biological information. Our scientific expertise, technology platforms and large nationwide sample collections facilitate a highly competitive environment for research and education in molecular medicine of the 21st century. The biobanking wet lab effort is concentrated to KTL/Biomedicum Large scale DNA extraction and storage facility. The facility presently houses DNA from more than 200 000 individuals and is co-ordinated by National Public Health Institute. It is equipped with state of the art bar coding system for sample tracking, an automated Gentra DNA extraction equipment, liquid handling robots, storage facilities, and tailor made data management tools for optimal confidentiality and quality control. | dna | is listed by: One Mind Biospecimen Bank Listing | THIS RESOURCE IS NO LONGER IN SERVICE | nlx_67744 | SCR_004679 | 2026-07-25 12:12:32 | 3 | ||||||||
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KI Biobank STAGE-ADHD Resource Report Resource Website |
KI Biobank STAGE-ADHD (RRID:SCR_005921) | KI Biobank STAGE-ADHD | biomaterial supply resource, material resource | THIS RESOURCE IS NO LONGER IN SERVICE, documented August 29, 2016. Study to investigate symptoms of Attention Deficit Hyperactivity Disorder (ADHD) according to DSM-IV in adults with special focus on attention deficit. Information is used from the Swedish Twin study of Adults: genes and Environment (STAGE) from the Swedish Twin Registry. ADHD-discordant and concordant samples of pairs of twins for ADHD are selected from STAGE for studies of brain structure and function with Functional Magnetic Resonance Imaging (fMRI). | adult, swedish, twin, gene, environment, brain, brain structure, brain function, fmri |
is listed by: One Mind Biospecimen Bank Listing is related to: Swedish Twin Registry has parent organization: Karolisnka Biobank |
Attention deficit-hyperactivity disorder, Normal control, Normal Twin | THIS RESOURCE IS NO LONGER IN SERVICE | nlx_149609 | SCR_005921 | STAGE - Attention Deficit Hyperactivity Disorder, Swedish Twin study of Adults: genes and Environment - ADHD, Swedish Twin study of Adults: genes and Environment - Attention Deficit Hyperactivity Disorder | 2026-07-25 12:12:35 | 0 | ||||||
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Adenoma Polyp Tissue Bank Resource Report Resource Website |
Adenoma Polyp Tissue Bank (RRID:SCR_005366) | APTB | biomaterial supply resource, material resource | THIS RESOURCE IS NO LONGER IN SERVICE, documented August 29, 2016. The Adenoma Polyp Tissue Bank (APTB) receives whole blood from patients enrolled in the Prevention of Sporadic Colorectal Adenomas with Celecoxib clinical trial. We have reached our accrual on blood submissions, so we will no longer be receiving blood specimens The objectives of this trial are as follows: A. To determine the efficacy and safety of celecoxib versus placebo in preventing the occurrence of newly detected colorectal adenomas in subjects at increased risk for colorectal carcinoma. In addition to incidence, other established risk factors will be evaluated for their association with occurrence of new colorectal adenomas, including cancer family history and adenoma size, histopathologic grade, multiplicity and location. Primary assessment of treatment efficacy will be the reduction in the number of subjects with adenomas at colonoscopy after Year 1 and Year 3 of study drug use. Secondary assessments of treatment efficacy will be 1) the number of adenomas 2) the histopathologic grade of adenomas and 3) the size of adenomas, also measured after one year and three years of study drug use. These factors will be incorporated into a risk model for predicting adenoma occurrence and response to celecoxib. B. To determine the efficacy of celecoxib versus placebo in modulating one or more of a panel of biomarkers for colorectal cancer at the cellular and molecular level sampled in a subset of subjects at selective sites at baseline and after Year 1 and Year 3 of study drug use. These biomarkers will include measurements of aberrant crypt foci (ACF), proliferation (index and crypt distribution), apoptosis (index and crypt distribution), COX expression and activity. If modulation of one or more mucosal biomarkers occur, we will explore whether it correlates with the development of incident colorectal neoplasia (adenomas/carcinomas), thereby attempting to validate the surrogacy of that biomarker. C. To develop a specimen bank. Serum and white blood cells are isolated from whole blood and adenoma tissue blocks and slides are banked. Banked specimens will become available for use in correlative science studies at a later point. This project began in 1999 and will be extended through 2006. The lead principal investigator is Monica M. Bertagnolli, MD, Brigham and Women''s Hospital, Boston, MA, and the APTB Director is Scott Jewell, Ph.D., Department of Pathology, The Ohio State University. The APTB is supported by the NIH, NCI Division of Cancer Prevention, in connection with the Strang Cancer Prevention Center, Cornell University, New York., THIS RESOURCE IS NO LONGER IN SERVICE. Documented on September 16,2025. | blood, serum, white blood cell, adenoma tissue, tissue, whole blood, block, slide, colorectal adenoma, celecoxib, adenoma, cancer, colorectal cancer, clinical trial, polyp, risk factor |
is listed by: One Mind Biospecimen Bank Listing has parent organization: Human Tissue Resource Network has parent organization: Human Tissue Resource Network |
Increased risk for colorectal carcinoma | NCI | THIS RESOURCE IS NO LONGER IN SERVICE | nlx_144435 | SCR_005366 | APTB Specimen Bank | 2026-07-25 12:12:34 | 0 | |||||
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Blood Borne Pathogens Laboratory Resource Report Resource Website |
Blood Borne Pathogens Laboratory (RRID:SCR_004707) | BBPSP | biomaterial supply resource, material resource | THIS RESOURCE IS NO LONGER IN SERVICE. Documented on January 11, 2023. To develop a method to look for known and emerging blood borne diseases, a secure bank of samples has been established to test for known blood borne infectious agents and genetic changes causing or modifying the clotting disease, and to be available for testing for newly discovered viruses and clotting gene changes as they are found. The objectives of this project are: * To collect blood samples for a sample bank of plasma, DNA, and RNA to screen for known and emerging blood borne diseases. * To identify the mutation leading to each consenting patient''s bleeding disorder, and to characterize other known and yet to be discovered genes that affect blood coagulation. * To collect encoded, non-nominal data into a central database from an electronic chart known as CHARMS, which is currently kept in each hemophilia clinic in Canada to correlate with results from 1 and 2. | genetic mutation, blood coagulation, blood, plasma, dna, rna |
is listed by: One Mind Biospecimen Bank Listing has parent organization: University of Alberta; Alberta; Canada |
Blood borne disease, Blood disorder, Bleeding disorder, Hemophilia, Blood borne pathogen | Health Canada ; Blood Borne Pathogens Division |
THIS RESOURCE IS NO LONGER IN SERVICE | nlx_70104 | http://www.ahcdc.ca/bbplab.html | SCR_004707 | Blood Borne Pathogens Surveillance Project | 2026-07-25 12:12:32 | 0 | ||||
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National Cancer Institute Biorepositories Resource Report Resource Website |
National Cancer Institute Biorepositories (RRID:SCR_004789) | NCI Biorepositories | biomaterial supply resource, material resource | National Cancer Institute Biorepositories provides information on the tumor repository, animal production program, and access to other NIH Repositories. A catalog of in vitro cell lines, transplantable animal and human tumors and microarrays, including ordering information, is available. In the Animal Production Program, rodents are supplied to Federal Institutions and to grantees/contractors with a current OLAW Assurance on file. Requests from international entities seeking rodent strains solely available from the NCI Animal Production Program must have an OLAW Assurance or current AAALACi accreditation and will be evaluated on a case-by-case basis. In general, the rodents are supplied to the following: * Researchers at NCI-Frederick * NIH on-campus laboratories * NIH/NCI funded research contracts * NIH/NCI funded grantees * Other government agencies To meet the above needs, animal production contracts plus quality control contracts are used. The animal production contracts are used to propagate the NIH sublines of the strains. Many of the strains produced are not available commercially and the NCI program is the sole source of several lines. |
is listed by: One Mind Biospecimen Bank Listing has parent organization: National Cancer Institute |
Cancer | nlx_78616 | SCR_004789 | National Cancer Institute Biological Testing Branch Services, NCI BTB Services | 2026-07-25 12:12:31 | 0 | ||||||||
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BIOAIR - BIOmarkers in severe Chronic AIRway Disease Resource Report Resource Website 1+ mentions |
BIOAIR - BIOmarkers in severe Chronic AIRway Disease (RRID:SCR_006007) | BIOAIR | biomaterial supply resource, material resource | THIS RESOURCE IS NO LONGER IN SERVICE, documented August 23, 2016. Longitudinal Assessment of Clinical Course and BIOmarkers in severe Chronic AIRway Disease (BIOAIR) is a study within the European Network For Understanding Mechanisms Of Severe Asthma (ENFUMOSA). BIOAIR study involves studies of severe asthma. The 10% of all asthmatics who have the most difficult disease has a 5-year survival in level with severe cancer diseases, as well as account for half of the costs to society of asthma. Mechanisms for the development of severe asthma, however, is unknown. BIOAIR the project characterizes clinical Phenotype and biomarkers in a study involving 12 centers in nine European countries. In a longitudinal study comparing severe asthmatics with mild asthmatics and patients with COPD (Chronic obstructive pulmonary disease). Clinical data and medicine consumption are collected daily in over a year with the help of modern IT technology. Blood tests, urine samples, upphostningsprover and bronkialbiopsier are collected repeatedly and tested for a wide range of possible pathogenetic factors, including genotype. | longitudinal, clinical, biomarker, chronic airway disease, phenotype, medication, clinical data, genotype, pathogen, lung disease |
is listed by: One Mind Biospecimen Bank Listing has parent organization: Karolisnka Biobank |
Asthma, Chronic obstructive pulmonary disease | THIS RESOURCE IS NO LONGER IN SERVICE | nlx_151388 | SCR_006007 | BIOmarkers in severe Chronic AIRway Disease, BIOmarkers in severe Chronic AIRway Disease (BIOAIR), KI Biobank - BIOAIR | 2026-07-25 12:12:35 | 1 | ||||||
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OLIN - Obstructive Lung disease in Northern Sweden Resource Report Resource Website 1+ mentions |
OLIN - Obstructive Lung disease in Northern Sweden (RRID:SCR_006009) | OLIN | biomaterial supply resource, material resource | THIS RESOURCE IS NO LONGER IN SERVICE, documented August 23, 2016. Longitudinal studies that consist of more than 40 000 subjects that have been followed since 1986 to be used in studies on how hereditary factors influence the development and progression of Chronic Obstructive Pulmonary Disease (COPD). Its overall objective to find ??tg??rdbara determinants of especially asthma and COPD but also allergy and OSAS (obstructive sleep apnea syndrome). Research is carried out in two huvudforskningslinger; population studies among adults of asthma, allergies, COPD, chronic bronchitis and OSAS. The second main line of longitudinal studies on asthma and allergies among schoolchildren with measurement of incidence, remission and morbidity. The study followed annually all 3500 schoolchildren since 1996 when they went in first and second class in Kiruna, Lulea and Pitea. In addition to questionnaire studies contained in methods, as well as in the adult studies, mainly respiratory function, BMI, skin prick test and clinical interview. Main fragestallningen of risk factors for incident asthma and allergy. | lung disease, genetics, gene, longitudinal, lung function, adult, child, questionnaire, respiratory function, bmi, skin prick test, clinical interview |
is listed by: One Mind Biospecimen Bank Listing has parent organization: Karolisnka Biobank |
Chronic Obstructive Pulmonary Disease, Asthma, Allergy, Obstructive sleep apnea syndrome, Chronic bronchitis | THIS RESOURCE IS NO LONGER IN SERVICE | nlx_151390 | SCR_006009 | Obstructive Lung disease in Northern Sweden, KI Biobank - OLIN, OLIN-studies, OLIN (Obstructive Lung disease in Northern Sweden) | 2026-07-25 12:12:36 | 1 | ||||||
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KI Biobank - STAGE Resource Report Resource Website 1+ mentions |
KI Biobank - STAGE (RRID:SCR_006004) | KI Biobank - STAGE | biomaterial supply resource, material resource | THIS RESOURCE IS NO LONGER IN SERVICE, documented September 2, 2016. The Swedish twin registry has recently examined all twins in Sweden born between 1959-1985. 25,000 individuals participated in the study. The twins had to implement a Web-based survey on the Internet or a telephone interview where we had to answer questions about, among other things, about the diseases they have, or have had, behaviors, eating and drinking habits, smoking habits, etc. The aim of the study is to extend the information in the Swedish twin registry. Our goal with twin studies are, inter alia, to study the relative importance of the heritage and environment for the emergence of various diseases. The responses from the study is currently the basis for a number of analyses regarding how inheritance and environment affects disease and tobacco habits. Currently third follow-up STAGE where 10,000 twins that had previously taken part are contacted again. The purpose of alteplase randomized controlled trials is to follow up the same individuals one year after the first and second questionnaire replies were received to see if anything has changed. The issues we are interested in the follow-up to include changes in general health, working and living situation, your weight, smoking habits, etc. Study Results The results we have so far come to and which we can present here are figures on the prevalence of certain diseases. The figures give a rough estimate of the incidence of these diseases will look for all individuals, born in Sweden in 1959-1985. The figures are based on the questions on the questionnaire which the twins themselves had to answer whether they have or have had various diseases. | adult, gene, environment, survey, interview, disease, behavior, eating habit, drinking habit, questionnaire, nicotine, smoking, nicotine use disorder |
is listed by: One Mind Biospecimen Bank Listing is related to: Swedish Twin Registry has parent organization: Karolisnka Biobank |
Twin | THIS RESOURCE IS NO LONGER IN SERVICE | nlx_151384 | SCR_006004 | STAGE - Swedish Twin Studies of adults: Genes and Environment | 2026-07-25 12:12:34 | 2 | ||||||
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CATSS - Child and Adolescent Twin Study in Sweden Resource Report Resource Website 1+ mentions |
CATSS - Child and Adolescent Twin Study in Sweden (RRID:SCR_005945) | CATSS | biomaterial supply resource, material resource | Data and biomaterial from a study investigating how both genetic and environmental effects influence health and behavior in children and adolescents. In this study parents to all Swedish twins turning 9 or 12 years are asked to complete a telephone interview concerning the health and behavior of their twins. The interview screens for several different health (e.g., asthma, allergies, diabetes) and behavior (e.g., attention, social interaction) problems. Some of the families will be followed up with additional questionnaires, as well as with genotyping and clinical interviews. The response frequency of the telephone interview is 80%. By November 2008, 7408 interviews had taken place. Types of samples * Saliva alt. EDTA whole blood * DNA Number of sample donors: 10 721 (June 2010) | child, adolescent, health, behavior, gene, environment, interview, genotype, clinical interview |
is listed by: One Mind Biospecimen Bank Listing is listed by: 3DVC is related to: Swedish Twin Registry has parent organization: Karolisnka Biobank is parent organization of: DOGSS |
Twin | nlx_151293 | http://ki.se/ki/jsp/polopoly.jsp?d=12484&a=26279&l=en | SCR_005945 | Child and Adolescent Twin Study in Sweden, Child and Adolescent Twin Study in Sweden (CATSS), CATSS - Child Adolescent Twin Study in Sweden | 2026-07-25 12:12:35 | 1 | ||||||
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DOGSS Resource Report Resource Website 1+ mentions |
DOGSS (RRID:SCR_005946) | DOGSS | biomaterial supply resource, material resource | THIS RESOURCE IS NO LONGER IN SERVICE, documented on July 03, 2014. A study that is a follow-up of the CATSS study and includes 15-year old twins who have been identified with autism, ADHD, learning-, eating-, tics disorders, compulsion-, defiance-, conduct- or motor control problems. The study also includes the co-twin, controls and the parents. DNA will be collected from the twins and the parents. For the twins, both a saliva sample and capillary blood samples will be collected, and for the parents, a saliva sample will be collected. Types of samples * Saliva alt. capillary blood * DNA Number of sample donors: 764 (June 2010) | adolescent, twin, adult |
is listed by: One Mind Biospecimen Bank Listing is related to: Swedish Twin Registry has parent organization: CATSS - Child and Adolescent Twin Study in Sweden |
Autism, Attention deficit-hyperactivity disorder, Learning disorder, Eating disorder, Tic disorder, Compulsive disorder, Defiance disorder, Conduct disorder, Motor control problem, Co-twin, Normal control, Parent | THIS RESOURCE IS NO LONGER IN SERVICE | nlx_151294 | SCR_005946 | 2026-07-25 12:12:34 | 2 | |||||||
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Human Reference Genetic Material Repository Resource Report Resource Website |
Human Reference Genetic Material Repository (RRID:SCR_004693) | HuRef Repository | biomaterial supply resource, material resource | The Human Reference Genetic Material Repository makes available DNA from a single individual, J. Craig Venter, whose genome has been sequenced and assembled. The DNA samples are prepared from a lymphoblastoid cell line established at Coriell Cell Repositories from a sample of peripheral blood. The DNA samples are available in 50 microgram aliquots. The lymphoblastoid cell line is not available for distribution. The human DNA sample provided is that of J. Craig Venter whose DNA from white blood cells and sperm was sequenced using Sanger chemistry (ABI Capillary Electrophoresis Platforms 3700 and 3730xl), assembled using the Celera Assembler and was published in PLoS Biology . J. Craig Venter, born on 14 October 1946, is a Caucasian male of self-reported European-American ancestry. The data available on this sample, whose genome assembly is referred to as HuRef, includes: * Whole Genome Shotgun Sequencing data * Sequence trace set deposited by JCVI in the NCBI trace archive * Human Genome Browser displaying sequence assembly, DNA variants and gene annotations Additional data sets from this study include: * Full set of Sanger reads used for genome assembly * SNP and insertion/deletion variant on the human genome sequence coordinates (NCBI version 36) * Affymetrix 500K GeneChip data * Illumina HumanHap650Y Genotyping BeadChip data Given the amount of data publicly available the genomic content of this sample, HuRef will be useful as a reference for many genetic studies. | lymphoblastoid cell line, blood, cell culture, male, caucasian, genome, genetics, dna |
is listed by: One Mind Biospecimen Bank Listing has parent organization: Coriell Cell Repositories has parent organization: J. Craig Venter Institute |
N/A | Public, $150 non-profit/academic, $250 commercial for 50 ug DNA | nlx_143868 | SCR_004693 | J. Craig Venter Institute Human Reference Genome (HuRef) | 2026-07-25 12:12:31 | 0 | ||||||
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HIV Biobank Resource Report Resource Website |
HIV Biobank (RRID:SCR_004691) | HIV BioBank | biomaterial supply resource, material resource | THIS RESOURCE IS NO LONGER IN SERVICE, documented on September 15, 2011. The Spanish HIV BioBank was created with the objectives of processing, storing and providing distinct samples from HIV/AIDS patients, categorized according to strictly defined characteristics, free of charge to research projects. Strict compliance to ethical norms is always guaranteed. HIV BioBank possesses nearly 50,000 vials containing different prospective longitudinal study sample types. More than 1,700 of these samples are now used in 19 national and international research projects. (2009) The HIV BioBank represents a novel approach to HIV research that might be of general interest not only for basic and clinical research teams working on HIV, but also for those groups trying to establish large networks focused on research on specific clinical problems. It also represents a model to stimulate cooperative research among large numbers of research groups working as a network on specific clinical problems. The HIV BioBank is able to very efficiently release samples to different research project not only in Spain but also in other countries. | is listed by: One Mind Biospecimen Bank Listing | Fondos de Investigacion Sanitaria FIS PI061479; Red Tematica de Investigacion Cooperativa Sanitaria ISCIII RETIC RD06/0006/0035; Fundacion para la Investigacion y Prevencion del SIDA en Espana ; FIPSE 36514/05; FIPSE 36536/05; Fundacion Caja Navarra |
PMID:19272145 | THIS RESOURCE IS NO LONGER IN SERVICE | nlx_68685 | SCR_004691 | Spanish HIV BioBank | 2026-07-25 12:12:32 | 0 | ||||||
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Mount Sinai Biobank Resource Report Resource Website 1+ mentions |
Mount Sinai Biobank (RRID:SCR_004845) | Mount Sinai Biobank | biomaterial supply resource, material resource | The Mount Sinai Biobank is a large collection of DNA and plasma samples that are stored in a way that protects patients'' privacy while allowing research to be performed on de-identified clinical information from Mount Sinai''s data warehouse system. The Biobank''s goal is to acquire samples from a total of 100,000 donors over a period of several years. Mount Sinai is one of only a handful of places nationwide establishing biobanks on such a large scale. Funded by the Charles R. Bronfman Institute for Personalized Medicine, the Biobank project is a research project that is approved by the Mount Sinai Institutional Review Board and is continuously reviewed. Biobank Facts: * 17947 donors between 18 and 89 years of age have already participated in Biobank. * 194111 aliquots of DNA and * 212005 aliquots of plasma are available for future research. | dna, plasma, clinical data |
is listed by: One Mind Biospecimen Bank Listing has parent organization: Icahn School of Medicine at Mount Sinai; New York; USA |
Charles R. Bronfman Institute for Personalized Medicine | nlx_82806 | http://www.mssm.edu/research/institutes/institute-for-personalized-medicine/ipm-research/biobank | SCR_004845 | Mount Sinai School of Medicine Biobank | 2026-07-25 12:12:33 | 2 | ||||||
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KI Biobank - Economical Behavior Resource Report Resource Website |
KI Biobank - Economical Behavior (RRID:SCR_005934) | KI Biobank - Economical Behavior | biomaterial supply resource, material resource | THIS RESOURCE IS NO LONGER IN SERVICE, documented August 23, 2016. The aim of the study is to estimate the importance of genetic (primary) and environmental factors for economic behavior by conducting a series of standard behavioral economics experiments on a sample of twins from the Swedish Twin Registry. | gene, environment, economic behavior, economics, behavior |
is listed by: One Mind Biospecimen Bank Listing is related to: Swedish Twin Registry has parent organization: Karolisnka Biobank |
Twin | THIS RESOURCE IS NO LONGER IN SERVICE | nlx_151295 | SCR_005934 | 2026-07-25 12:12:35 | 0 | |||||||
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Indonesia Family Life Survey Resource Report Resource Website 10+ mentions |
Indonesia Family Life Survey (RRID:SCR_005695) | IFLS | biomaterial supply resource, material resource | A dataset of an on-going multi-level longitudinal survey in Indonesia that collects extensive information on socio-economic and demographic characteristics of respondents, as well as extremely comprehensive interviews with local leaders about community services and facilities. The survey is ideally suited for research on topics related to important dynamic aging processes such as the transition from self-sufficiency to dependency, the decline from robust health to frailty, labor force and earning dynamics, wealth accumulation and decumulation, living arrangements and intergenerational transfers. The first wave of IFLS was fielded in 1993 and collected information on over 30,000 individuals living in 7,200 households. The sample covers 321 communities in 13 provinces in Indonesia and is representative of about 83% of the population. These households were revisited in 1997 (IFLS2), 2000 (IFLS3), and 2007-8 (IFLS4). A 25% sub-sample of households was re-interviewed in 1998 (IFLS2+). Special attention is paid to the measurement of health, including the measurement of anthropometry, blood pressure, lung capacity, a mobility test and collection of dry blood spots by a nurse or doctor. In addition to comprehensive life history data on education, work, migration, marriage and child bearing, the survey collects very detailed information on economic status of individuals and households. Links with non co-resident family members are spelled out in conjunction with information on borrowing and transfers. Information is gathered on participation in community activities and in public assistance programs. Measurement of health is a major focus of the survey. In addition to detailed information about use of private and public health services along with insurance status, respondents provide a self-reported assessment of health status. Detailed information on the local economy and prices of goods and services are also collected. These data may be matched with the individual and household-level data. Considerable attention has been placed on minimizing attrition in IFLS. In each re-survey, about 95% of households have been re-contacted. Around 10-15% of respondents have moved from the location in which they were interviewed in the previous wave. In addition, individuals who split-off from the original households have been followed. They have added around 1,000 households to the sample in 1997 and about 3,000 households in 2000. Data Availability: IFLS1 data are available through ICPSR as study number 6706. Data from subsequent waves of the IFLS can be accessed from the RAND project Website. * Dates of Study: 1993-2008 * Study Features: Longitudinal, International, Anthropometric Measures, Biomarkers * Sample Size: ** 1993: 22,000 (IFLS1) ** 1997: 33,000 (IFLS2) ** 1998: 10,000 (IFLS2+) ** 2000: 37,000 (IFLS3) ** 2008: 44,103 (IFLS4) Links: * IFLS1 ICPSR: http://www.icpsr.umich.edu/icpsrweb/ICPSR/studies/06706 * IFLS ICPSR: http://www.icpsr.umich.edu/icpsrweb/ICPSR/studies/00184 | interview, income, education, adult, child, contraceptive, survey, consumption, asset, individual, household, anthropometry, blood pressure, lung capacity, mobility, dry blood, work, migration, marriage, child bearing, economic status, health, health service, insurance, longitudinal, international, biomarker, blood | is listed by: Inter-university Consortium for Political and Social Research (ICPSR) | Aging | NIA ; NICHD ; USAID ; Ford Foundation ; World Health Organization ; World Bank |
Public | nlx_151836 | SCR_005695 | Indonesian Family Life Survey (IFLS), Indonesian Family Life Survey, Indonesia Family Life Survey (IFLS) | 2026-07-25 12:12:34 | 35 | |||||
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KI Biobank - SCI Resource Report Resource Website |
KI Biobank - SCI (RRID:SCR_005849) | KI Biobank - SCI | biomaterial supply resource, material resource | THIS RESOURCE IS NO LONGER IN SERVICE, documented August 29, 2016. So far there is only limited knowledge about possible genetic influences in acute spinal cord injuries (SCI). In this project DNA is collected prospectively from persons with SCI admitted to the acute SCI rehabilitation unit of the Karolinska University Hospital. Trauma is the cause of injury in a majority of the patients. Other causes of injury are spinal abscesses, tumors or spinal infarctions. The aim of the project is to create a sufficiently large DNA biobank with samples from 200-400 individuals from clinically well characterized patients to allow for studies of association between candidate genes and clinical outcome parameters. | injury, spinal cord, blood |
is listed by: One Mind Biospecimen Bank Listing has parent organization: Karolisnka Biobank |
Spinal Cord Injury | THIS RESOURCE IS NO LONGER IN SERVICE | nlx_149467 | SCR_005849 | KI Biobank - Spinal Cord Injuries | 2026-07-25 12:12:33 | 0 |
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