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URL: http://www.ataxia.org/research/patient-registry.aspx
Proper Citation: National Ataxia Foundation Patient Registries (RRID:SCR_005341)
Description: A portal presenting the patient registries and databases of the National Ataxia Foundation. The registries include: Ataxia Patient Registry at CoRDS, Friedreich's Ataxia Research Alliance Patient Registry; the Fragile X Research Registry; Autosomal recessive spastic ataxia of Charlevoix-Saguenay ARSACS; and, Ataxia-Telangiectasia (A-T) Children's Project Family Data Base.
Abbreviations: NAF Patient Registries
Resource Type: patient registry, people resource
Keywords: ataxia, friedreich's ataxia, fragile x syndrome, patient registry, patient database
Related Condition: Ataxia, Friedreich's ataxia, Fragile X Syndrome
Availability: Public, Available to researchers
Resource Name: National Ataxia Foundation Patient Registries
Resource ID: SCR_005341
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Source: SciCrunch Registry (RRID:SCR_005400)
Description: Interactive portal for finding and submitting biomedical resources. Resources within SciCrunch have assigned RRIDs which are used to cite resources in scientific manuscripts. SciCrunch Registry, formerly NIF Registry, provides resources catalog. Allows to add new resources. Allows edit existing resources after registration. Curators are tasked with identifying and registering resources, examining data, writing configuration files to index and display data and keeping contents current.
URL: https://rrid.site/rin/sources/SCR_005400
