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SciCrunch Registry is a curated repository of scientific resources, with a focus on biomedical resources, including tools, databases, and core facilities - visit SciCrunch to register your resource.

(last updated: Sep 14, 2019)

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16,796 Results - per page

Resource NameResource TypeDescriptionKeywordsResource IDProper CitationParent OrganizationRelated ConditionFunding AgencyRelationReferenceWebsite StatusAlternate IDsAlternate URLsOld URLs
Brucellosis OntologyResource, ontology, data or information resource, controlled vocabularyA biomedical ontology in the domain of zoonotic disease brucellosis that is caused by Brucella, a facultative intracellular baterium.owlSCR_006795(Brucellosis Ontology, RRID:SCR_006795)Zoonotic disease brucellosislisted by: BioPortalLast checked downnlx_157345
X-linked Adrenoleukodystrophy DatabaseResource, disease-related portal, topical portal, database, portal, data or information resourceX-ALD database initiated July 1999 by Hugo W. Moser, M.D. and Stephan Kemp, Ph.D. The primary aims of the database are: to catalogue and facilitate the analysis of X-ALD mutations; to provide background information on X-ALD; to provide links to X-ALD patient organizations; and to help with contacting and finding (local) X-ALD health care professionals. The purpose of the X-linked adrenoleukodystrophy database is to provide general educational information about X-ALD.inherited disorder, central nervous system, mutation database, gene database, x ald genomicsSCR_002548(X-linked Adrenoleukodystrophy Database, RRID:SCR_002548) University of Amsterdam; Amsterdam; Netherlands , Kennedy Krieger Institute X-linked AdrenoleukodystrophyNetherlands X-ALD Patient OrganizationLast checked upnif-0000-21424
ALD ConnectResource, disease-related portal, portal, topical portal, group, data or information resourceGroup whose goal is to improve health outcomes for individuals with X-linked adrenoleukodystrophy by raising disease awareness, improving education, providing support for and information to patients, and performing clinical ALD research.ald netowrk, disease network, genetic disease network, patient resourceSCR_015035(ALD Connect, RRID:SCR_015035)X-linked adrenoleukodystrophysubmitted by: NIDDK Information NetworkLast checked down
Vitiligo BiobankResource, biomaterial supply resource, biospecimen repository, service resource, storage service resource, data or information resource, material resource, material storage repositoryA non-profit collection of biological samples and detailed associated clinical data, designed to facilitate medical research into vitiligo, a devastating skin disease that is much neglected. They collect, store and analyze biological samples throughout the network of collaborators in 11 countries, using standard collection protocols and unified patient record, which are then made available to the scientific community and research organizations investigating pathogeneses, diagnostics, new treatments, and ultimately a cure for vitiligo. The core asset is a large collection of well-organized hair, blood, serum and DNA samples, integrated with comprehensive and anonymized patient records.clinical, hair, blood, serum, dna, skinSCR_003863(Vitiligo Biobank, RRID:SCR_003863)Vitiligolisted by: One Mind Biospecimen Bank ListingLast checked upnlx_158187
Macaque.orgResource, disease-related portal, topical portal, research forum portal, organization portal, laboratory portal, portal, data or information resourceMacaque genomic and proteomic resources and how they are providing important new dimensions to research using macaque models of infectious disease. The research encompasses a number of viruses that pose global threats to human health, including influenza, HIV, and SARS-associated coronavirus. By combining macaque infection models with gene expression and protein abundance profiling, they are uncovering exciting new insights into the multitude of molecular and cellular events that occur in response to virus infection. A better understanding of these events may provide the basis for innovative antiviral therapies and improvements to vaccine development strategies.genomic, hiv, infection, proteomic, virus, simian immunodeficiency virus, influenza virus, animal modelSCR_002767(, RRID:SCR_002767)University of Washington; Seattle; USA Viral infection, Infectious diseaseNCRR, NHLBI, NIAID, NIDALast checked upnif-0000-24370
VirusFinderResource, software resourceSoftware tool for efficient and accurate detection of viruses and their integration sites in host genomes through next generation sequencing data. Specifically, it detects virus infection, co-infection with multiple viruses, virus integration sites in host genomes, as well as mutations in the virus genomes. It also facilitates virus discovery by reporting novel contigs, long sequences assembled from short reads that map neither to the host genome nor to the genomes of known viruses. VirusFinder 2 works with both paired-end and single-end data, unlike the previous 1.x versions that accepted only paired-end reads. The types of NGS data that VirusFinder 2 can deal with include whole genome sequencing (WGS), whole transcriptome sequencing (RNA-Seq), targeted sequencing data such as whole exome sequencing (WES) and ultra-deep amplicon sequencing, virus, integration site, genome, mutation, virus genome, contig, paired-end, single-end, whole genome sequencing, whole transcriptome sequencing, rna-seq, targeted sequencing, whole exome sequencing, ultra-deep amplicon sequencingSCR_005205(VirusFinder, RRID:SCR_005205)Vanderbilt University; Tennessee; USA Viral infectionlisted by: OMICtoolsPMID:23717618Last checked downOMICS_00226
Vietnam Era Twin Registry Biospecimen RepositoryResource, biomaterial supply resource, material resourceThe Vietnam Era Twin (VET) Registry maintains a repository of biological specimens obtained from Registry members. The VET Registry Biospecimen Repository includes DNA, plasma, and serum samples obtained from selected VET Registry members. As the VET Registry is a national resource for studies investigating genetic and non-genetic influences on health and disease in middle age men, this enhances the value of the information collected from VET Registry members to the research community. The VET Registry has developed a general system of protocols for the collection and storage of biological specimens that assures confidentiality for all participants. The biological specimens currently in use are stored at the R&D Core Laboratory at the VA Puget Sound Health Care System (VAPSHCS) in Seattle, WA. The R&D Core Laboratory performs DNA extraction procedures and separates out DNA, plasma, and serum for testing and storage. It is important to note that Core Laboratory staff has absolutely no phenotypic (non-genetic) information about VET Registry members, as the lab is completely blinded to the identity, disease characteristics, and any other research data collected from VET Registry members. The Massachusetts Veterans Epidemiology Research and Information Center (MAVERIC) Core Laboratory is located at the VA Boston Health Care System in Boston, MA, and serves as the long-term storage site for the VET Registry Biospecimen Repository. Before a VET Registry member decides whether to participate in the Biospecimen Repository, the procedures, confidentiality safeguards, and potential risks are explained in great detail. To be able to accommodate the wishes of members, a so-called layered consent process is used which allows members to choose from several options with regard to how their biological specimen will be used in current or future research studies. Such options may include: 1) not having their samples used for any testing beyond the immediate goals of the study; 2) allowing for future testing of their samples restricted to the study for which they provided the sample; or 3) allowing unrestricted future research use of their samples. Members are informed that any future use of their samples would have to be approved by the VET Registry, in addition to an independent ethics committee that protects the rights and welfare of research subjects, this board is more commonly known as an Institutional Review Board or IRB. Confidentiality safeguards include assigning code numbers, as opposed to name or other personal information, on all biological specimens. Zygosity Testing The accuracy of DNA testing makes it the best method for determining zygosity, identical (monozygotic) versus fraternal (non-identical or dizygotic), in VET Registry twin members. The use of DNA for zygosity testing is only performed when both members of a twin pair agree to the testing. Other Genetic Testing for specific genes will not necessarily involve providing the participants with test results.twin, male, adult, dna, plasma, serum, gene, genetic, health, disease, vietnam veteranSCR_008808(Vietnam Era Twin Registry Biospecimen Repository, RRID:SCR_008808)Vietnam Era Twin Registry Vietnam Era Twin Registry member (Vietnam War and Twin), Aginglisted by: One Mind Biospecimen Bank ListingLast checked upnlx_144390
RiVuR Resource, resource, clinical trialMulticenter, randomized, double-blind, placebo-controlled trial is designed to determine whether daily antimicrobial prophylaxis is superior to placebo in preventing recurrence of urinary tract infection (UTI) in children with vesicoureteral reflux (VUR). The basic eligibility criteria are: (1) age at randomization of at least 2 months, but less than 6 years, (2) a diagnosed first febrile or symptomatic UTI within 42 days prior to randomization that was appropriately treated, and (3) presence of Grade I-IV VUR based on voiding cystourethrogram (VCUG). Patients will be randomly assigned to treatment for 2 years with daily antimicrobial prophylaxis (trimethoprim-sulfamethoxazole) or placebo. The study is designed to recruit 600 children (approximately 300 in each treatment group) over an 18-24 month period. The primary endpoint is recurrence of UTI. In addition, patients will be evaluated for secondary endpoints related to renal scarring and antimicrobial resistance. Scarring will be determined based on renal scintigraphy by 99mTc dimercaptosuccinic (DMSA) scan. Quality of life, compliance, safety parameters, utilization of health resources, and change in VUR will be assessed periodically throughout the study.child, antimicrobial prophylaxis, placebo, antibiotic, renal scarring, pediatric, trimethoprim-sulfamethoxazole, intervention, kidney, antibiotic resistance, young human, infant, bibliography, clinical, trimethoprim, sulfamethoxazoleSCR_001539( RiVuR , RRID:SCR_001539)University of North Carolina at Chapel Hill; North Carolina; USA Vesico-ureteral reflux, Urinary tract infectionNIDDKlisted by:, NIDDK Information Network, NIDDK Research Resources, submitted by: NIDDK Information NetworkReferences (5)Last checked upnlx_152848
Vasculitis FoundationResource, disease-related portal, topical portal, patient-support portal, portal, data or information resourceAn international organization for patients with vasculitis, their families, friends and the health care professionals who care for them, supporting and empowering them through education, awareness and research. The Foundation advocates for early diagnosis and leading edge treatment for all. The Foundation also partners with researchers around the world to determine the cause and discover the cure for vasculitis.clinical, pediatric, child, funding resourceSCR_004059(Vasculitis Foundation, RRID:SCR_004059)Vasculitisrelated to: Kidney Health InitiativeLast checked upnlx_158493
O'Brien Urology Centers Resource, disease-related portal, topical portal, resource, organization portal, portal, data or information resourceProgram that aims to enhance the effectiveness of research related to noncancerous urologic dysfunction by encouraging collaboration amongst investigators.urologic dysfunction, collaboration, urology research portal, urology portalSCR_015473( O'Brien Urology Centers , RRID:SCR_015473)urologic dysfunctionNIDDKlisted by: NIDDK Information Network, affiliated with: NIDDK - National Institute of Diabetes and Digestive and Kidney DiseasesLast checked up
SBUR - Society for Basic Urologic ResearchResource, topical portal, training resource, portal, meeting resource, community building portal, funding resource, data or information resourceThe Society for Basic Urologic Research (SBUR) is a society of scientists whose expertise includes the study of urologic cancers (prostate, bladder, kidney, testis, penis), the biology of prostate growth, kidney and bladder function, autoimmune urologic diseases, infectious diseases, neuro-urologic diseases, male reproductive biology, infertility and erectile dysfunction. Members include molecular biologists, immunologists, epidemiologists, oncologists, biochemists and clinical urologic scientists. SBUR members serve on a wide variety of advisory panels, study sections, editorial boards and in the pharmaceutical industry. The SBUR organizes two annual meetings to share new findings at a multidisciplinary level, to promote interaction among members and other interested scientists and to highlight new areas of research and funding opportunities. The Society was organized to address the following: * To provide a forum for the presentation and discussion of basic scientific topics related to urology * To develop educational forums concerning scientific advancements related to the field of urology * To promote collaborative investigations among member scientists with an emphasis on the interchange of expertise among clinical and basic scientists * To promote the communication and interests of urologic disease investigators with national funding agencies, industry representatives and academic institutions with regards to urology related research * To serve as a resource for research information and expertise to clinical urologists through the American Urological Associationurology, prostate, bladder, kidney, testis, penis, awardSCR_005856(SBUR - Society for Basic Urologic Research, RRID:SCR_005856)Urologic disease, Urologic cancer, Neuro-urologic disease, Infertility, Erectile dysfunctionLast checked downnlx_149393
American Urological AssociationResource, topical portal, training resource, continuing medical education, portal, meeting resource, community building portal, data or information resourceThe American Urological Association (AUA), founded in 1902, is the premier professional association for the advancement of urologic patient care, and works to ensure that its more than 18,000 members are current on the latest research and practices in urology. The AUA also pursues its mission of fostering the highest standards of urologic care by providing a wide range of servicesincluding publications, research, the Annual Meeting, continuing medical education (CME) and the formulation of health policy.urology, researchSCR_005859(American Urological Association, RRID:SCR_005859)Urologic diseaseLast checked downnlx_149398
Urologic Diseases in AmericaResource, human subject reportA report incorporating current and retrospective data on all aspects of the epidemiology, practice patterns, costs, and impact of urologic diseases in the United States and is intended for use by public officials, nongovernment organizations, the media, academic researchers, health professionals, and the public. The UDA compendium consists of data tables annotated in chapters that amplify the data analyses. The objectives of the UDA project include: secondary data analyses of: changes in the overall healthcare burden for individual urologic diseases, in physician practice patterns for each urologic disease, and in demographics of persons with urologic disease, the impact of specific urologic diseases, especially diseases of the prostate, on the minority populations of the U.S., and documentation of new and evolving therapies for urologic disease and their cost.epidemiology, urology, diagnosis, risk factor, prevalence, treatment, urological disease, report, practice pattern, data table, data analysis, prostateSCR_006644(Urologic Diseases in America, RRID:SCR_006644) National Kidney and Urologic Diseases Information Clearinghouse Urologic diseaseNational Institute of Diabetes and Digestive and Kidney Diseaseslisted by: NIDDK Information Network, NIDDK Research Resources, submitted by: NIDDK Information NetworkLast checked upnlx_152720
AmerUrological's channel - YouTubeResource, video resource, data or information resourceAmerUrological's channel - YouTube are videos put out by the American Urological Association.urologySCR_005860(AmerUrological's channel - YouTube, RRID:SCR_005860)American Urological Association Urologic diseaseLast checked upnlx_149399
Boston Area Community Health Survey Resource, disease-related portal, topical portal, resource, research forum portal, portal, data or information resourceAn epidemiologic study being conducted in the Boston metropolitan area to examine the prevalence of symptoms for health problems such as interstitial cystitis, urinary incontinence, benign prostatic hyperplasia, prostatitis, hypogonadism, and sexual function. Of interest to the survey are health disparities and inequalities. BACH is especially concerned with lack of adequate health insurance, lack of access to adequate medical care, and how these problems influence patterns of disease. The study also focuses on social determinants of disease that are over and above the contribution of individual characteristics and risk factors. To achieve a randomly sampled population, four neighborhoods were divided into 12 strata and from them investigators selected census blocks. Households were then randomly selected from the census blocks and sampled to identify eligible study participants. Investigators conduct a two-hour, in-home, bilingual field interview of all eligible participants, looking at symptoms and asking questions about lifestyle, physical activity, alcohol use, nutrition, demographics, and morbidity. They also conduct a detailed inventory of medications, both prescribed and over-the-counter, and take two non-fasting blood samples for hormone, cholesterol, and lipid levels that will be stored for future studies. By the time the study ends, approximately 6,000 men and women, ages 30 to 79, from four Boston area neighborhoods that have density levels proportionate with minority populations will have been interviewed in their homes. One third of the randomly sampled population will be African American; one third, Hispanic; and one third, Caucasian.prevalence, symptom, epidemiology, health problem, disparity, inequality, health insurance, medical care, disease, social determinant, risk factor, male, female, adult human, middle adult human, late adult human, interview, african-american, hispanic, caucasian, epidemiological study, lifestyle, physical activity, alcohol use, nutrition, demographics, morbidity, medication, blood, hormone, cholesterol, lipid level, biomaterial supply resourceSCR_007115( Boston Area Community Health Survey , RRID:SCR_007115)NIDDK - National Institute of Diabetes and Digestive and Kidney Diseases Urological problem, Interstitial cystitis, Urinary incontinence, Benign prostatic hyperplasia, Prostatitis, Hypogonadism, Sexual dysfunctionNIDDKrelated to: NIDDK Information Network, listed by: One Mind Biospecimen Bank Listing, submitted by: NIDDK Information NetworkLast checked upnlx_152753
Columbia University George M. O'Brien Urology Center Resource, disease-related portal, topical portal, resource, service resource, portal, access service resource, data or information resourceResearch center that brings together research programs in human genetics and mouse models to address the causes of congenital urinary tract malformations.congenital urinary tract malformation, human genetic, mouse modelSCR_015479( Columbia University George M. O'Brien Urology Center , RRID:SCR_015479)Columbia University; New York; USA urinary tract malformationNIDDKlisted by: NIDDK Information NetworkLast checked up
SISTEr Resource, data set, resource, clinical trial, data or information resourceClinical trial under the Urinary Incontinence Treatment Network to compare the treatment success for two surgical procedures that are frequently used and have similar cure rates, yet have not been compared directly to each other in a large, rigorously conducted randomized trial. The secondary aims of the trial are to compare other outcomes for the two surgical procedures, including quality of life, sexual function, satisfaction with treatment outcomes, complications, and need for other treatment(s) after surgery. Follow-up will be a minimum of two years and up to four years.urinary, incontinence, dataset, surgical procedure, outcome, quality of life, sexual function, satisfaction, treatment, complication, burch procedure, sling procedure, female, surgerySCR_001542( SISTEr , RRID:SCR_001542) Urinary Incontinence Treatment Network Urinary incontinence, Stress, Stress urinary incontinenceNICHD, NIDDKlisted by: NIDDK Information Network, submitted by: NIDDK Information NetworkLast checked upnlx_152852
Program to Reduce Incontinence by Diet and Exercise Resource, resource, clinical trialRandomized controlled trial being conducted at two clinical centers in the United States to learn more about the effects of weight loss on urinary incontinence. About 330 overweight women aged 30 or older will participate and will be followed for 18 months. Efficacy of weight reduction as a treatment for urinary incontinence will be examined at 6 months following the intensive weight control program, and the sustained impact of the intervention will be examined at 18 months. To increase the maintenance of weight reduction and facilitate evaluation of the enduring impact of weight loss on urinary incontinence, they propose to study a motivation-based weight maintenance program. At the end of the intensive weight control program, women randomized to the weight loss program will be randomized to either a 12-month skill-based maintenance intervention or to a motivation-based maintenance intervention. The maintenance interventions maximize the potential for sustained weight loss and will allow them to determine if long-term weight reduction will produce continued improvement in urinary incontinence.female, adult human, weight reduction, intervention, behavior, diet, exercise, motivation, weight maintenanceSCR_009018( Program to Reduce Incontinence by Diet and Exercise , RRID:SCR_009018)University of California at San Francisco; California; USA Urinary incontinence, Obesity, Weight loss, Overweight, AgingNIDDKrelated to: NIDDK Information Network, listed by:, submitted by: NIDDK Information NetworkReferences (4)Last checked downnlx_152847
Urinary Incontinence Treatment Network Resource, disease-related portal, topical portal, resource, research forum portal, portal, data or information resourceGroup of collaborating investigators who conduct long-term studies and clinical trials of the most commonly used surgical, pharmacological, and behavioral approaches for management of urinary incontinence in women diagnosed with stress and mixed incontinence.female, urologist, urogynecologist, clinical trial, bibliographySCR_001543( Urinary Incontinence Treatment Network , RRID:SCR_001543)Urinary incontinenceNICHD, NIDDKlisted by: NIDDK Information Network, submitted by: NIDDK Information NetworkLast checked upnlx_152853
Behavior Enhances Drug Reduction of Incontinence Resource, bibliography, resource, clinical trial, data or information resourceMulti-center randomized clinical trial to determine if the addition of behavioral treatment to drug therapy for the treatment of urge incontinence will make it possible to discontinue the drug and still maintain a reduced number of accidents. The most popular treatments for urge incontinence are drug therapy and behavior therapy, each with its own limitations. In this clinical study, the Urinary Incontinence Treatment Network (UITN) aims to determine differences with the addition of behavioral treatment to drug therapy alone.drug therapy, behavioral therapy, female, urinary incontinence, overactive bladder, combined modality therapy, quality of life, pelvic floor muscle exercise, tolterodine, clinicalSCR_001495( Behavior Enhances Drug Reduction of Incontinence , RRID:SCR_001495) Urinary Incontinence Treatment Network Urge incontinence, Urinary IncontinenceNIDDKlisted by:, NIDDK Information Network, submitted by: NIDDK Information NetworkPMID:16919506Last checked upnlx_152752
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