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SciCrunch Registry is a curated repository of scientific resources, with a focus on biomedical resources, including tools, databases, and core facilities - visit SciCrunch to register your resource.

(last updated: Oct 19, 2019)

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1,023 Results - per page

Resource NameResource TypeDescriptionKeywordsResource IDProper CitationParent OrganizationRelated ConditionFunding AgencyRelationReferenceWebsite StatusAlternate IDsAlternate URLsOld URLs
X-linked Adrenoleukodystrophy DatabaseResource, disease-related portal, topical portal, database, portal, data or information resourceX-ALD database initiated July 1999 by Hugo W. Moser, M.D. and Stephan Kemp, Ph.D. The primary aims of the database are: to catalogue and facilitate the analysis of X-ALD mutations; to provide background information on X-ALD; to provide links to X-ALD patient organizations; and to help with contacting and finding (local) X-ALD health care professionals. The purpose of the X-linked adrenoleukodystrophy database is to provide general educational information about X-ALD.inherited disorder, central nervous system, mutation database, gene database, x ald genomicsSCR_002548(X-linked Adrenoleukodystrophy Database, RRID:SCR_002548) University of Amsterdam; Amsterdam; Netherlands , Kennedy Krieger Institute X-linked AdrenoleukodystrophyNetherlands X-ALD Patient OrganizationLast checked upnif-0000-21424
ALD ConnectResource, disease-related portal, portal, topical portal, group, data or information resourceGroup whose goal is to improve health outcomes for individuals with X-linked adrenoleukodystrophy by raising disease awareness, improving education, providing support for and information to patients, and performing clinical ALD research.ald netowrk, disease network, genetic disease network, patient resourceSCR_015035(ALD Connect, RRID:SCR_015035)X-linked adrenoleukodystrophysubmitted by: NIDDK Information NetworkLast checked down
Macaque.orgResource, disease-related portal, topical portal, research forum portal, organization portal, laboratory portal, portal, data or information resourceMacaque genomic and proteomic resources and how they are providing important new dimensions to research using macaque models of infectious disease. The research encompasses a number of viruses that pose global threats to human health, including influenza, HIV, and SARS-associated coronavirus. By combining macaque infection models with gene expression and protein abundance profiling, they are uncovering exciting new insights into the multitude of molecular and cellular events that occur in response to virus infection. A better understanding of these events may provide the basis for innovative antiviral therapies and improvements to vaccine development strategies.genomic, hiv, infection, proteomic, virus, simian immunodeficiency virus, influenza virus, animal modelSCR_002767(Macaque.org, RRID:SCR_002767)University of Washington; Seattle; USA Viral infection, Infectious diseaseNCRR, NHLBI, NIAID, NIDALast checked upnif-0000-24370
Vasculitis FoundationResource, disease-related portal, topical portal, patient-support portal, portal, data or information resourceAn international organization for patients with vasculitis, their families, friends and the health care professionals who care for them, supporting and empowering them through education, awareness and research. The Foundation advocates for early diagnosis and leading edge treatment for all. The Foundation also partners with researchers around the world to determine the cause and discover the cure for vasculitis.clinical, pediatric, child, funding resourceSCR_004059(Vasculitis Foundation, RRID:SCR_004059)Vasculitisrelated to: Kidney Health InitiativeLast checked upnlx_158493
O'Brien Urology Centers Resource, disease-related portal, topical portal, resource, organization portal, portal, data or information resourceProgram that aims to enhance the effectiveness of research related to noncancerous urologic dysfunction by encouraging collaboration amongst investigators.urologic dysfunction, collaboration, urology research portal, urology portalSCR_015473( O'Brien Urology Centers , RRID:SCR_015473)urologic dysfunctionNIDDKlisted by: NIDDK Information Network, affiliated with: NIDDK - National Institute of Diabetes and Digestive and Kidney DiseasesLast checked up
SBUR - Society for Basic Urologic ResearchResource, topical portal, training resource, portal, meeting resource, community building portal, funding resource, data or information resourceThe Society for Basic Urologic Research (SBUR) is a society of scientists whose expertise includes the study of urologic cancers (prostate, bladder, kidney, testis, penis), the biology of prostate growth, kidney and bladder function, autoimmune urologic diseases, infectious diseases, neuro-urologic diseases, male reproductive biology, infertility and erectile dysfunction. Members include molecular biologists, immunologists, epidemiologists, oncologists, biochemists and clinical urologic scientists. SBUR members serve on a wide variety of advisory panels, study sections, editorial boards and in the pharmaceutical industry. The SBUR organizes two annual meetings to share new findings at a multidisciplinary level, to promote interaction among members and other interested scientists and to highlight new areas of research and funding opportunities. The Society was organized to address the following: * To provide a forum for the presentation and discussion of basic scientific topics related to urology * To develop educational forums concerning scientific advancements related to the field of urology * To promote collaborative investigations among member scientists with an emphasis on the interchange of expertise among clinical and basic scientists * To promote the communication and interests of urologic disease investigators with national funding agencies, industry representatives and academic institutions with regards to urology related research * To serve as a resource for research information and expertise to clinical urologists through the American Urological Associationurology, prostate, bladder, kidney, testis, penis, awardSCR_005856(SBUR - Society for Basic Urologic Research, RRID:SCR_005856)Urologic disease, Urologic cancer, Neuro-urologic disease, Infertility, Erectile dysfunctionLast checked downnlx_149393
American Urological AssociationResource, topical portal, training resource, continuing medical education, portal, meeting resource, community building portal, data or information resourceThe American Urological Association (AUA), founded in 1902, is the premier professional association for the advancement of urologic patient care, and works to ensure that its more than 18,000 members are current on the latest research and practices in urology. The AUA also pursues its mission of fostering the highest standards of urologic care by providing a wide range of servicesincluding publications, research, the Annual Meeting, continuing medical education (CME) and the formulation of health policy.urology, researchSCR_005859(American Urological Association, RRID:SCR_005859)Urologic diseaseLast checked downnlx_149398
Boston Area Community Health Survey Resource, disease-related portal, topical portal, resource, research forum portal, portal, data or information resourceAn epidemiologic study being conducted in the Boston metropolitan area to examine the prevalence of symptoms for health problems such as interstitial cystitis, urinary incontinence, benign prostatic hyperplasia, prostatitis, hypogonadism, and sexual function. Of interest to the survey are health disparities and inequalities. BACH is especially concerned with lack of adequate health insurance, lack of access to adequate medical care, and how these problems influence patterns of disease. The study also focuses on social determinants of disease that are over and above the contribution of individual characteristics and risk factors. To achieve a randomly sampled population, four neighborhoods were divided into 12 strata and from them investigators selected census blocks. Households were then randomly selected from the census blocks and sampled to identify eligible study participants. Investigators conduct a two-hour, in-home, bilingual field interview of all eligible participants, looking at symptoms and asking questions about lifestyle, physical activity, alcohol use, nutrition, demographics, and morbidity. They also conduct a detailed inventory of medications, both prescribed and over-the-counter, and take two non-fasting blood samples for hormone, cholesterol, and lipid levels that will be stored for future studies. By the time the study ends, approximately 6,000 men and women, ages 30 to 79, from four Boston area neighborhoods that have density levels proportionate with minority populations will have been interviewed in their homes. One third of the randomly sampled population will be African American; one third, Hispanic; and one third, Caucasian.prevalence, symptom, epidemiology, health problem, disparity, inequality, health insurance, medical care, disease, social determinant, risk factor, male, female, adult human, middle adult human, late adult human, interview, african-american, hispanic, caucasian, epidemiological study, lifestyle, physical activity, alcohol use, nutrition, demographics, morbidity, medication, blood, hormone, cholesterol, lipid level, biomaterial supply resourceSCR_007115( Boston Area Community Health Survey , RRID:SCR_007115)NIDDK - National Institute of Diabetes and Digestive and Kidney Diseases Urological problem, Interstitial cystitis, Urinary incontinence, Benign prostatic hyperplasia, Prostatitis, Hypogonadism, Sexual dysfunctionNIDDKrelated to: NIDDK Information Network, listed by: One Mind Biospecimen Bank Listing, submitted by: NIDDK Information NetworkLast checked upnlx_152753
Columbia University George M. O'Brien Urology Center Resource, disease-related portal, topical portal, resource, service resource, portal, access service resource, data or information resourceResearch center that brings together research programs in human genetics and mouse models to address the causes of congenital urinary tract malformations.congenital urinary tract malformation, human genetic, mouse modelSCR_015479( Columbia University George M. O'Brien Urology Center , RRID:SCR_015479)Columbia University; New York; USA urinary tract malformationNIDDKlisted by: NIDDK Information NetworkLast checked up
Urinary Incontinence Treatment Network Resource, disease-related portal, topical portal, resource, research forum portal, portal, data or information resourceGroup of collaborating investigators who conduct long-term studies and clinical trials of the most commonly used surgical, pharmacological, and behavioral approaches for management of urinary incontinence in women diagnosed with stress and mixed incontinence.female, urologist, urogynecologist, clinical trial, bibliographySCR_001543( Urinary Incontinence Treatment Network , RRID:SCR_001543)Urinary incontinenceNICHD, NIDDKlisted by: NIDDK Information Network, submitted by: NIDDK Information NetworkLast checked upnlx_152853
Predicting Response to Standardized Pediatric Colitis Therapy (PROTECT) Resource, data set, portal, topical portal, resource, data or information resourceA study of how children newly diagnosed with ulcerative colitis (UC) respond to mesalamine and prednisone (corticosteroid), the standard initial therapies used to treat this disorder. Over a period of 5 years PROTECT will prospectively study the course of 430 children newly diagnosed with UC who are treated with standardized care. Biospecimens (blood, stool, colonic biopsy tissue) will be obtained and used to better understand the effects of genetics, mechanisms of inflammation, Vitamin D, and the bacteria contained in the stool (microbiome) on clinical outcomes.ulcerative colitis, children, mesalamine, prednisone, genetics, inflammation, vitamin d, clinical outcomeSCR_014374( Predicting Response to Standardized Pediatric Colitis Therapy (PROTECT) , RRID:SCR_014374)ulcerative colitisNIDDKlisted by: NIDDK Information Network, NIDDK Research Resources, submitted by: NIDDK Information NetworkLast checked uphttp://www.niddk.nih.gov/research-funding/research-resources/Pages/default.aspx
Boston Area Diabetes Endocrinology Research Center Resource, disease-related portal, topical portal, resource, service resource, portal, access service resource, data or information resourceConsortium of laboratory-based and clinical investigators who research etiology, pathogenesis, treatment and cure of type 1 and type 2 diabetes, and their associated microvascular and atherosclerotic complications.Endicronology, insulin, diabetesSCR_015072( Boston Area Diabetes Endocrinology Research Center , RRID:SCR_015072)Type I Diabetes, Type II DiabetesNIDDKlisted by: NIDDK Information NetworkLast checked up
DIAGRAMResource, disease-related portal, topical portal, organization portal, database, consortium, portal, data or information resourceConsortium of researchers aiming to characterize the genetic basis of type 2 diabetes with a principal focus on samples of European descent. DIAGRAM also features a database of DIAGRAM publications and diabetes-related research data.diabetes, type 2 diabetes, european descentSCR_015675(DIAGRAM, RRID:SCR_015675)Type 2 Diabetes, Diabetessubmitted by: NIDDK Information NetworkPMID:22885922Last checked up
Accelerating Medicines Partnership Type 2 Diabetes Knowledge PortalResource, disease-related portal, topical portal, database, service resource, portal, storage service resource, data repository, data or information resourcePortal and database of DNA sequence, functional and epigenomic information, and clinical data from studies on type 2 diabetes and analytic tools to analyze these data. .Provides data and tools to promote understanding and treatment of type 2 diabetes and its complications. Used for identifying genetic biomarkers correlated to Type 2 diabetes and development of novel drugs for this disease.type 2, diabetes, knowledge, portal, database, repository, type II, diabetic, genetic, data, analysisSCR_003743(Accelerating Medicines Partnership Type 2 Diabetes Knowledge Portal, RRID:SCR_003743)Foundation for the National Institutes of Health , Accelerating Medicines Partnership Type 2 DiabetesBroad Institute, Fundacion Carlos Slim, NIDDK, NIH, University of Michiganrelated to: Accelerating Medicines Partnership - Alzheimers, Accelerating Medicines Partnership - Alzheimers, Accelerating Medicines Partnership Autoimmune Diseases of Rheumatoid Arthritis and Lupus, listed by: Consortia-pedia, NIDDK Information NetworkLast checked upnlx_157976, SCR_014533http://www.nih.gov/science/amp/type2diabetes.htm
Action to Control Cardiovascular Disease Risk in Diabetes Follow-up Study (ACCORDION)Resource, data set, topical portal, portal, data or information resourceA prospective, observational follow-up study of at least 8000 participants who were treated and followed in the Action to Control Cardiovascular Risk in Diabetes (ACCORD) Trial. Treatment in ACCORD ended in 2009 and ACCORDION is designed to further elucidate the long-term effects of the ACCORD treatment strategies and provide additional data on the relationships among various cardiovascular and diabetic risk factors.follow up, long term effect, treatment strategy, accord, cardiovascular risk factor, diabetic risk factorSCR_014373(Action to Control Cardiovascular Disease Risk in Diabetes Follow-up Study (ACCORDION), RRID:SCR_014373)Wake Forest School of Medicine; North Carolina; USA Type 2 diabetesNHLBIlisted by: NIDDK Information Network, NIDDK Research Resources, submitted by: NIDDK Information NetworkLast checked downhttp://www.niddk.nih.gov/research-funding/research-resources/Pages/default.aspx https://www.accordionstudy.org/public/docs/ACCORDION%20Protocol%2003-18-2011-%20FINAL.pdf https://biolincc.nhlbi.nih.gov/studies/accord/?q=ACCORD
Diabetes Epigenome AtlasResource, disease-related portal, topical portal, database, portal, atlas, data or information resourceCollects and provides data on the human genome and epigenome to facilitate genetic studies of type 2 diabetes and its complications. A component of the AMP T2D consortium, which includes the National Institute for Diabetes and Digestive and Kidney Diseases (NIDDK) and an international collaboration of researchers.collect, provide, data, human, genome, epigenome, genetic, study, type 2 diabetesSCR_016441(Diabetes Epigenome Atlas, RRID:SCR_016441)Stanford University; Stanford; California , University of California at San Diego; California; USA type 2 diabetesthe NIDDKLast checked upSCR_016537
FUSION studyResource, disease-related portal, topical portal, portal, data or information resourcePortal to map and identify genetic variants that predispose to type 2 diabetes mellitus (T2D) or are responsible for variability in diabetes-related quantitative traits. Used for analysis of affected-sibling-pair (ASP) families in Finland, and association fine mapping based on these family members and additional T2D cases and controls.map, identify, genetic, variant, predispose, type II diabetes, mellitus, T2DSCR_016580(FUSION study, RRID:SCR_016580)type 2 diabetesLast checked up
Type 1 Diabetes Genetics Consortium Resource, disease-related portal, topical portal, resource, research forum portal, portal, data or information resourceData and biological samples were collected by this consortium organizing international efforts to identify genes that determine an individual risk of type 1 diabetes. It originally focused on recruiting families with at least two siblings (brothers and/or sisters) who have type 1 diabetes (affected sibling pair or ASP families). The T1DGC completed enrollment for these families in August 2009. They completed enrollment of trios (father, mother, and a child with type 1 diabetes), as well as cases (people with type 1 diabetes) and controls (people with no history of type 1 diabetes) from populations with a low prevalence of this disease in January 2010. T1DGC Data and Samples: Phenotypic and genotypic data as well as biological samples (DNA, serum and plasma) for T1DGC participants have been deposited in the NIDDKCentral Repositories for future research.gene, genetics, genotyping, analytic, dna, serum, plasma, data set, biomaterial supply resource, phenotypic, genotypic, autoantibody, hla, phenotype, genotypeSCR_001557( Type 1 Diabetes Genetics Consortium , RRID:SCR_001557)Type 1 diabetes, Parent, ControlJDRF, NHGRI, NIAID, NIDDKlisted by: One Mind Biospecimen Bank Listing, NIDDK Information Network, NIDDK Central Repository, submitted by: NIDDK Information NetworkPMID:17130525Last checked downnlx_152867
Preventing Early Renal Loss in Diabetes (PERL)Resource, disease-related portal, topical portal, data set, portal, project portal, data or information resourcePERL is a clinical trial for people with type 1 diabetes who have early signs of kidney problems. Its goal is to test a new way to reduce loss of kidney function using a safe and inexpensive medicine.kidney, type 1 diabetes, diabetes, clinical trial, medicationSCR_015862(Preventing Early Renal Loss in Diabetes (PERL), RRID:SCR_015862)Type 1 Diabetes, Diabetes, kidney diseaseNIDDKlisted by: NIDDK Information Network, Diabetes Research CentersLast checked up
Type 1 Diabetes TrialNet Resource, disease-related portal, topical portal, resource, portal, clinical trial, data or information resourceInternational network of researchers who are exploring ways to prevent, delay and reverse the progression of type 1 diabetes. It is conducting clinical trials with researchers from 18 Clinical Centers in the United States, Canada, Finland, United Kingdom, Italy, Germany, Australia and New Zealand. In addition, more than 150 medical centers and physician offices are participating in the TrialNet network. Studies are available for people newly diagnosed with type 1 diabetes, as well as for relatives of people with type 1 diabetes who are at greater risk of developing the disease. This NIH-sponsored clinical trials network conducts studies designed to evaluate new approaches to prevent or ameliorate type 1 diabetes specifically by interdicting the type 1 diabetes disease process. These include interventions designed to decrease beta-cell destruction and/or enhance beta-cell survival. Studies are conducted in non-diabetic persons at risk of type 1 diabetes in an effort to delay the development of type 1 diabetes as a clinical disease; or (if initiated prior to appearance of autoimmunity) in an effort to delay the appearance of autoimmunity; or in individuals with type 1 diabetes who are either newly diagnosed or have evidence of sustained beta cell function. Studies include long-term follow-up of subjects developing type 1 diabetes. The TrialNet network also supports natural history and genetics studies in populations screened for or enrolled in studies conducted by the TrialNet study group. In addition, TrialNet will evaluate methodologies that enhance the conduct of clinical trials interdicting the type 1 diabetes disease process.intervention, beta-cell, clinical, child, young human, natural history, genetics, prevention, delaySCR_001508( Type 1 Diabetes TrialNet , RRID:SCR_001508)University of South Florida; Florida; USA Type 1 DiabetesNIDDKlisted by: NIDDK Information Network, submitted by: NIDDK Information NetworkLast checked upnlx_152812
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