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SciCrunch Registry is a curated repository of scientific resources, with a focus on biomedical resources, including tools, databases, and core facilities - visit SciCrunch to register your resource.

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Resource NameResource TypeDescriptionKeywordsResource IDProper CitationParent OrganizationRelated ConditionFunding AgencyRelationReferenceWebsite StatusAlternate IDsAlternate URLsOld URLs
KI Biobank - HARMONYResource, disease-related portal, topical portal, research forum portal, biomaterial supply resource, portal, material resource, data or information resourceA twin study characterizing the importance of genetic factors for dementia and using discordant twin pairs to study other putative risk factors which control for genetic propensity to develop the disease. Molecular genetic studies have identified a number of mutations and other markers associated with early age of onset Alzheimer''''s disease. However, most cases of late age of onset dementia are considered sporadic, that is, without a clear genetic basis. Twin studies provide a unique opportunity to characterize the importance of genetic factors for dementia. Discordant twin pairs additionally provide the opportunity to study other putative risk factors which controlling for genetic propensity to develop the disease. In the first wave of the Study of Dementia in Swedish Twins, all SATSA twins born before 1935 have been screened for dementia symptoms. Over 190 suspects have been identified. This pilot study has been expanded to the entire registry in the study known as HARMONY. All twins aged 65 and older were invited to participate in a computer assisted telephone screening interview. A total of 13,519 individuals completed the interview (response rate = 75.9%). Dementia screening was based on the TELE, which includes the 10-item MSQ, other cognitive items (counting backwards, recalling three words, and similarities), and questions about health and daily functioning; or on Blessed scores obtained from a proxy interview. Among those screened, 1565 were positive for suspicion of dementia and were referred for complete clinical evaluation by a physician and a nurse. Once the preliminary in-person evaluation suggested that the suspected case was demented, the twin partner was also invited for an identical clinical work-up. Response rate for clinical evaluations is 71.4%. Approximately half of those visited for evaluation have been diagnosed as demented according to DSM-IV criteria, of which two-thirds have Alzheimer''''s disease. An extensive assessment of probable risk exposure is also included. Longitudinal follow-up is yet another feature of the study. Association studies with candidate genes are also being performed. Types of samples * DNA Number of sample donors * 1154 (sample collection completed)interview, late adult human, clinical evaluation, association study, candidate gene, gene, risk factor, twin, longitudinalSCR_008884(KI Biobank - HARMONY, RRID:SCR_008884)Karolisnka Biobank Dementia, Alzheimer''''s disease, Discordant twin, AgingNIHrelated to: Swedish Twin Registry, KI Biobank - SATSA, listed by: One Mind Biospecimen Bank ListingLast checked downnlx_151298
National AIDS Research InstituteResource, topical portal, portal, data or information resourceIn the early nineties it became evident that HIV infection was spreading widely in India and the national efforts for control of HIV infection needed to be backed by quality research. It was also realized that AIDS, being a multifaceted disease, needed multi-disciplinary research involving virology, immunology, microbiology, clinical research, epidemiology, field based trials and social and behavioral research. An Institute devoted exclusively to HIV/ AIDS that could undertake research of such a diversity and magnitude was established to meet this requirement. National AIDS Research Institute (NARI) was established in October 1992 in Bhosari, Pune on a seven acre plot. The Institute has progressively expanded its activities in various aspects of research on HIV and AIDS through infra-structural development, capacity building & research programmes. The activities of NARI are supported by the ICMR & numerous extramural agencies. For the fiscal year 2005-2006 the ICMR allocated 5.66 crores for NARI. Additionally, over 13 crores have been generated through extramural sources. The Institute''s research activities are guided by a Scientific Advisory Committee which includes eminent scientists from varied disciplines. All research projects are reviewed & approved by the Ethics Committee which also ensures that research is conducted with highest ethical standards. Establishment of a Community Advisory Board which acts as an interface between the community and the researchers is a pioneering effort by NARI.aids, human, human immunodeficiency virusSCR_005355(National AIDS Research Institute, RRID:SCR_005355)extramural agencies, ICMRLast checked downnlx_144414
SagewebResource, community building portal, topical portal, database, portal, data or information resourceA resource center that distributes important resources to the biogerontological community and facilitates interactions and collaborative efforts amongst researchers to aid biogerontologists and enhance research into the basic biology of aging. They aim to make SAGEWEB the premier aging-related website containing a variety of different content types including: * Databases related to the basic biology of aging * Software and bioinformatic tools for aging-related science * Educational tools for teachers and students interested in aging biology * Primers on important topics in aging-related science * Videos and podcasts of aging-related topics * Aging-related discussion forums and blogs * Links to additional aging-related labs, conferences, and resourcesbiogerontology, video, podcast, blog, meeting resource, software resource, training materialSCR_010217(Sageweb, RRID:SCR_010217)University of Washington; Seattle; USA AgingEllison Medical Foundation, NIALast checked downnlx_156771
FlyWeb ProjectResource, topical portal, portal, data or information resourceThe FlyWeb Project is linking research image data from FlyTED with related data from the Berkeley Drosophila Genome Project, FlyBase, FlyAtlas and other sources. This project builds on the findings of the data web requirements analysis project Defining Image Access.SCR_010516(FlyWeb Project, RRID:SCR_010516)JISCLast checked downnlx_17704
Biological Resource Centre - National Institute for Cancer ResearchResource, biomaterial supply resource, topical portal, portal, material resource, data or information resourceThe Centro di Risorse Biologiche (CRB-IST), institutional facility of IST, has been recently established by the General Director (Deliberation number 624 July 11, 2008). It aims at co-ordinating already existing biobanking activities, and participating in the European Infrastructure of Biobanks and Biomolecular Resources (BBMRI), in preparation in the frame of the 7th FP of the European Community. Aims: * to facilitate high quality translational research dependent on biological material and data * to address ethical issues on biobanking * to promote the project at the population level * to co-ordinate the IST biobanks and cell banks * to harmonize technical and management SOPs, according to international best practices * to help reduce costs for collection and storage of biological material * to favor institutional recognition at a regional, national and international level - to sustain the role of the Institute in the European infrastructure.cancer, serum, plasma, frozen, formalin-fixed paraffin-embeddedSCR_010548(Biological Resource Centre - National Institute for Cancer Research, RRID:SCR_010548)IST National Institute for Cancer Research; Genoa; Italy Cancerrelated to: Biobanking and Biomolecular Resources Research Infrastructure (BBMRI), listed by: One Mind Biospecimen Bank ListingLast checked downnlx_31955
Brain ObservatoryResource, topical portal, biospecimen repository, service resource, portal, storage service resource, data or information resource, video resource, material storage repositoryFormerly a topical portal studying the brain which collected and imaged 1000 human brains, the Brain Observatory has partnered with the Institute for Brain and Society to build virtual laboratories that will feed directly into the database of images and knowledge created in the context of the Human Brain Library. The Brain Observatory will also host exhibits, conferences, and events aimed at promoting a heightened awareness of brain research and how its results can benefit personal brain fitness and mental health.human, brain, visual cortex, neuroimagingSCR_010641(Brain Observatory, RRID:SCR_010641)University of California San Diego School of Medicine; California; USA Human immunodeficiency virus, NeuroAIDS, AIDS, AmnesiaNEI, NIMH, NSF, The Dana FoundationLast checked downnlx_69083
Computational Biology Research CenterResource, topical portal, core facility, service resource, portal, access service resource, data or information resourceCore performs research activities to create a wide array of industrial technologies using genomes and the other biological information to fulfill their mission. CBRC hosts research staff experts in diverse fields spanning computer science, mathematics, physics, chemistry, and biology and scientists affiliated with other institutions, with whom they work closely on joint, collaborative projects. Core offers internally developed and maintained software applications and databases, with corresponding external resources.portal, computer science, mathematics, physics, chemistry, biologySCR_010654(Computational Biology Research Center, RRID:SCR_010654)National Institute of Advanced Industrial Science and Technology Last checked downnlx_68401
Boston University Alzheimer's Disease CenterResource, disease-related portal, topical portal, training resource, portal, data or information resourceThe goal of the Alzheimers Disease Center is to help reduce the human and economic costs associated with Alzheimers disease through the advancement of knowledge. The primary missions of the Center are to: conduct and facilitate cutting-edge Alzheimers disease research; enhance clinical care for Alzheimers disease patients and their families; and provide education regarding Alzheimers disease to both professional and lay audiences. The Center is made up of a multidisciplinary group of professionals dedicated to research, clinical care, and education.alzheimers, research, patient, family, education, disease related portal, training resourceSCR_010692(Boston University Alzheimer's Disease Center, RRID:SCR_010692)Boston University School of Medicine; Massachusetts; USA Alzheimer's diseaseNIALast checked downnlx_80502
NTNU Systems BiologyResource, topical portal, training resource, portal, postdoctoral program resource, data or information resourceThe new NTNU Systems Biology website showcases the different systems biology efforts at NTNU. Regular updates on new initiatives and advertisements for new PhD and Postdoc vacancies in systems biology will be posted.SCR_010713(NTNU Systems Biology, RRID:SCR_010713)Norwegian University of Science and Technology; Trondheim; Norway Last checked downnlx_88017
CISCRP- The Center for Information and Study on Clinical Research ParticipationResource, topical portal, portal, data or information resourceCISCRP is a resource for information on participation in, understanding of, and resources for clinical research participants and scientists. The mission of the Center is to educate, inform and empower patients, the public, medical and research professionals, the media and policymakers about clinical research participation and what it means to be an active participant in the clinical research process, promote greater awareness and understanding of clinical research participation and the role that it plays in public health, facilitate more effective collaboration among all members of the clinical research enterprise, and provide resources for the research community to better understand the study volunteer. To that end, the Center has developed a broad national awareness and education initiative in order to better inform the public at large about clinical study information. Furthermore, on its website, the Center offers program and event information related to clinical trials, an information center with facts, figures, informational resources, and FAQs for both patients and researchers, and a mailing list of clinical trial information. :The Center also maintains its own search engine website, : : : :, for those looking for further clinical trial information. The Center for Information and Study on Clinical Research Participation is located in Dedham, MA. :NIF thanks the : :Parkinson's Disease Foundation : : :for their referral of this resource to us.clinical research, clinical studySCR_001152(CISCRP- The Center for Information and Study on Clinical Research Participation, RRID:SCR_001152)Last checked downnif-0000-11642
International Essential Tremor FoundationResource, topical portal, portal, data or information resourceThe IETF is an international nonprofit organization whose mission is to provide global educational information, services and support to those affected by essential tremor (ET) and to health care providers, while promoting and funding ET research. Services provided by the IETF include mailing or emailing a free information packet about ET upon request, maintaining an up-to-date listing of physicians specializing in ET, and assisting in forming and maintaining ET support groups. In addition, the IETF conducts several free educational events in cities across the United States every year, and an annual awareness campaign that runs in conjunction with the organization's largest fundraising activity, Tulips for Tremors. Every year, the IETF also funds basic research into the cause(s) of ET. Small grants are awarded to established scientists whose primary interest is tremor disorders. The IETF funds this program in the hope that these scientists will collect sufficient published data to help them qualify for future federal funding that will lead to better treatments and a cure. IETF members receive two copies a year of the member magazine, Tremor Talk and three copies of the research newsletter, The Scoop on Tremor. Articles in both publications are written for the non-medically trained person and discuss recent advances in research, coping techniques and topics of general interest to those with ET. Medical and research articles are written by physicians and researchers who work with patients with ET and/or study ET in laboratories. The International Essential Tremor Foundation is based in Lenexa, Kansas.essential tremor, essential tremor online community, essential tremor organization, tremor, tremor research, tremor research fundingSCR_001163(International Essential Tremor Foundation, RRID:SCR_001163)Last checked downnif-0000-11649
icyou Health VideosResource, topical portal, portal, video resource, data or information resourceTHIS RESOURCE IS NO LONGER IN SERVICE, documented on August 18, 2016. icyou is an internet resource of health-related video clips submitted by users. Health topics covered in videos can range anywhere from infectious diseases to fitness and exercise, with videos generally being shorter than 10 minutes in length. Videos also contain information on treatment and procedures, medical fields, and health politics and policy. These videos may or may not be authored by licensed medical personnel. All videos are searchable, and users can also choose to upload their own healthcare-related videos. In addition to gathering healthcare video from the best sources on the Web and beyond, can call on its own award-winning health reporting team to cover the latest issues and trends. Through its parent company Benefitfocus, has full access to the Benefitfocus Media Studio, a state-of-the-art HD facility located in Charleston, South Carolina. This studio is the only one of its kind devoted solely to creating healthcare-oriented video content. In it, the Benefitfocus Media team creates up-to-the-minute reports, tutorials, features and more that help illuminate its users about the complexities of the many facets of healthcare.exercise, fitness, healthcare, health policy, health politics, health topic, medical fields, medical procedure, treatmentSCR_001167(icyou Health Videos, RRID:SCR_001167)Last checked downnif-0000-11652
Alzheimer's Disease Education and Referral CenterResource, disease-related portal, topical portal, narrative resource, training material, portal, data or information resourcePortal for Alzheimer's disease that compiles, archives and disseminates information about current treatments, diagnostic tools and ongoing research for health professions, people with AD, their families and the public. The Center provides informational services and referrals for AD symptoms, diagnosis and treatment for patients; clinical trial information and literature searches for researchers; training materials and guidelines for caregivers; and Spanish language resources.alzheimer's disease, brain, clinical trial, dementia, diagnosis, human, literature, news, prevention, publication, research center, risk factor, support, symptom, treatment, cure, late adult human, information, referralsSCR_012787(Alzheimer's Disease Education and Referral Center, RRID:SCR_012787)National Institute on Aging Alzheimer's disease, AgingNIALast checked downnif-0000-22511
The Immunology Database and Analysis Portal (ImmPort)Resource, disease-related portal, topical portal, data repository, database, service resource, portal, storage service resource, ontology, controlled vocabulary, data or information resourceData sharing repository of clinical trials, associated mechanistic studies, and other basic and applied immunology research programs. Platform to store, analyze, and exchange datasets for immune mediated diseases. Data supplied by NIAID/DAIT funded investigators and genomic, proteomic, and other data relevant to research of these programs extracted from public databases. Provides data analysis tools and immunology focused ontology to advance research in basic and clinical immunology.immunology, basic, clinical, data, share, store, analyze, exchange, dataset, immune, mediated, disease, analysis, toolSCR_012804(The Immunology Database and Analysis Portal (ImmPort), RRID:SCR_012804)Immune mediated diseaseDAIT, NIAID, NIHrelated to: MetaCyto, The 10000 Immunomes, NIAID, recommended by: National Library of Medicine, BRAIN Initiative, listed by: NIDDK Research Resources, affiliated with: Cytokine RegistryPMID:24791905Last checked downnlx_152691
American Neurological AssociationResource, topical portal, training resource, people resource, journal article, portal, meeting resource, job resource, data or information resourceThe American Neurological Association is a professional society of academic neurologists and neuroscientists devoted to advancing the goals of academic neurology; to training and educating neurologists and other physicians in the neurologic sciences; and to expanding both our understanding of diseases of the nervous system and our ability to treat them. Our Goals 1. To disseminate knowledge about the nervous system and its diseases by: Presenting new scientific basic and clinical information at an annual meeting Publishing a scientific journal Formulating and promoting high standards of neurologic practice 2. To promote research into the causes and treatment of diseases of the nervous system by: Attracting promising physicians into academic neurology and supporting their development Advocating financial support from government, industry and individuals for research on the nervous system and its disorders 3. To formulate and promote policies and actions which will support the goals of academic neurology by: Providing a unified voice for academic neurology Setting guidelines and assuring excellence in programs that train and educate physicians in neurology Raising the standard of neurologic training of all physicians A few highlights within the portal: Clinical Neuroscience Pathway Startling breakthroughs in molecular biology and basic neuroscience have defined the cause of many diseases of the nervous system and are transforming the practice of neurology, neurosurgery and psychiatry. Basic research is giving new information on how the brain works and how brain injury occurs-and how it can be prevented or improved. Recognizing the exciting opportunities now available to better understand nervous system function and to design new treatments for neurological diseases, we''ve developed an interdepartmental program: The Clinical Neuroscience Pathway to provide an enhanced exposure to the neurosciences while pursuing the Doctor of Medicine degree. Program goal: The Clinical Neuroscience Pathway provides medical students with an enriched experience in the neurosciences throughout their four years in medical school. This program will provide students interested in Neurology, Neurosurgery, Ophthalmology, Pathology, or Psychiatry with access to a number of stimulating clinical and research activities. In addition, students will have the opportunity to participate in activities specifically designed for medical students in the program. Pathway students will be eligible for special summer research and year-out opportunities for clinical and basic neuroscience study. John N. Whitaker Visiting Professorships About the Program The ANA offers up to five 5,000 awards annually to fund visits of several days duration by persons who will interact with medical students and by both formal and informal contacts, stimulate them to consider academic neurology careers. The ideal visitor will be a role model of an accomplished academician who is enthusiastic and will effectively illustrate the applications between basic science and clinical neurology. The ANAs Education Committee must approve the visitor. The inviting institution should have acceptance from the visitor prior to submitting the name. The ANA suggests that an honorarium in the amount of 2,000 be given to the visitor. Special consideration will be given to institutions with small departments, but this is not a requirement. The Whitaker Professorships are intended to honor the life and contributions of John N. Whitaker M.D. (1940 - 2001) whose life and career exemplified high achievement as a person, neurological physician, teacher, investigator, mentor and citizen.fellowships, academic neurologists, basic, clinical, nervous system diseases, neurology, neuroscience, publicationsSCR_012926(American Neurological Association, RRID:SCR_012926)Last checked downnif-0000-10653
Neuroscience Link ListResource, topical portal, portal, data or information resourceA website that provides links to many neuroscience resources on the web as well as links to university neuroscience and neurobiology program list, links, neuroscience resources, topical portalSCR_000130(Neuroscience Link List, RRID:SCR_000130)Weill Cornell Medical College; New York; USA Last checked downnif-0000-00083
Human Genome Project InformationResource, topical portal, video resource, narrative resource, slide, portal, training material, funding resource, data or information resourceThis resource gives information about the U.S. Human Genome Project, which was was a 13-year effort to to discover all the estimated 20,000-25,000 human genes and make them accessible for further biological study. The primary project goals were to: - identify all the approximately 20,000-25,000 genes in human DNA, - determine the sequences of the 3 billion chemical base pairs that make up human DNA, - store this information in databases, - improve tools for data analysis, - transfer related technologies to the private sector, and - address the ethical, legal, and social issues (ELSI) that may arise from the project. To help achieve these goals, researchers also studied the genetic makeup of several nonhuman organisms. These include the common human gut bacterium Escherichia coli, the fruit fly, and the laboratory mouse. These parallel studies helped to develop technology and interpret human gene function. Sponsors: The DOE Human Genome Program and the NIH National Human Genome Research Institute (NHGRI) together sponsored the U.S. Human Genome Project.escherichia coli, fruit fly, function, gene, genome, genetic, bacterium, base pair, biological, dna, human, mouse, sequenceSCR_013028(Human Genome Project Information, RRID:SCR_013028)National Institutes of Health , United States Department of Energy Last checked downnif-0000-10252
Baltimore Longitudinal Study of Aging (BLSA)Resource, disease-related portal, topical portal, database, research forum portal, portal, data or information resourceAmerica''s longest-running scientific study of human aging, begun in 1958. BLSA scientists are learning what happens as people age and how to sort out changes due to aging from those due to disease or other causes. More than 1,400 men and women are study volunteers. They range in age from their 20s to their 90s. This study is currently recruiting healthy seniors over 70.late adult human, adult, healthy, clinical data, middle adult human, disease, clinical studySCR_013148(Baltimore Longitudinal Study of Aging (BLSA), RRID:SCR_013148)Intramural Research Program Aging, HealthyNIALast checked downnlx_144413
Description of MORGAM CohortsResource, topical portal, portal, data or information resourceThe purpose of this document is to give the exact definitions of the MORGAM cohorts and to describe their basic characteristics and data collection procedures, such as the follow-up procedures, the disease end-points recorded and diagnostic procedures. The definition and selection criteria for MORGAM cohort are described in section Definition and selection of cohorts of the MORGAM Manual. For convention, each cohort is assigned appropriate name and code number which is given in Table 1. The baseline characteristics of the MORGAM Cohorts are summarized in Table 2. An overall summary of MORGAM Cohorts along with the objectives of the Project has been published elsewhere [1]. Sponsor. The research was supported by the GenomEUtwin Project grant from the European Commission under the programme `Quality of Life and Management of the Living Resources'' of 5th Framework Programme (no. QLG2-CT-2002-01254) and by the Academy of Finland via its grant number 53646.SCR_013236(Description of MORGAM Cohorts, RRID:SCR_013236)Last checked downnif-0000-30445
Center for New Technology EnterpriseResource, topical portal, training resource, portal, data or information resourceIt is an independent nonprofit organization established to provide meaningful trans-disciplinary experiential education to students by making the most cutting-edge instructional methods and technologies available to them to bring new inventions to the marketplace and to encourage knowledge sharing and collaboration among its numerous constituencies. The Center provides a comprehensive program in which its students learn and acquire real-world experience by assisting universities, private and public research institutions, companies, and entrepreneurs to evaluate new technologies and facilitate the creation and development of new ventures. By offering a virtual venue for students and other constituencies worldwide, our stakeholders and collaborators can connect and share knowledge, expertise, resources, best practices, and other important information. Employers, investors and others searching for talent place a premium on relevant experience. However, students, individuals seeking a change in their careers, and prospective entrepreneurs often find it difficult to obtain positions that can provide needed experience, even if they are willing to work without compensation. This conundrum often leads to people taking or staying in positions for which they have no passion and which do not make the best use of their abilities. The Centers program is designed to provide extensive, intensive and relevant experience to its participants, with particular emphasis on teaching them to adapt to and thrive in our lightning fast, rapidly changing and increasingly flat world. As an independent organization, the Centers program and activities are not restricted to any particular institution or jurisdiction. Thus the Center can attract students, clients, professionals and other stakeholders, establish collaborations, and pursue other opportunities appropriate to its mission almost anywhere. eductional resource.SCR_013333(Center for New Technology Enterprise, RRID:SCR_013333)Last checked downnif-0000-00461
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