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  • Resource Type:topical portal (facet)
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SciCrunch Registry is a curated repository of scientific resources, with a focus on biomedical resources, including tools, databases, and core facilities - visit SciCrunch to register your resource.

(last updated: Oct 12, 2019)

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Resource NameResource TypeDescriptionKeywordsResource IDProper CitationParent OrganizationRelated ConditionFunding AgencyRelationReferenceWebsite StatusAlternate IDsAlternate URLsOld URLs
PKD FoundationResource, disease-related portal, topical portal, portal, funding resource, data or information resourceAn organization and funder of polycystic kidney disease research to find treatments. The organization also raises awareness for the disease through education, advocacy and support.funding, polycystic kidney disease, advocacy, awareness, support, educationSCR_000209(PKD Foundation, RRID:SCR_000209)Polycystic Kidney Diseaserelated to: Kidney Health InitiativeLast checked downnlx_157910
Home Dialyzors UnitedResource, disease-related portal, topical portal, patient-support portal, portal, data or information resourceA non-profit patient organization dedicated to educate, support and advocate for home dialysis. Their main focus is advocating and supporting those on home hemodialysis and peritoneal dialysis modalities. Membership is free and inclusive of dialyzors, care partners, nurses, nephrologists, renal professionals and others.dialysis, advocacy, hemodialysis, peritoneal dialysisSCR_000275(Home Dialyzors United, RRID:SCR_000275)Kidney disease, Chronic kidney failurerelated to: Kidney Health InitiativeLast checked downnlx_158394
Pfizer Animal GeneticsResource, topical portal, portal, data or information resourceData services to support validation of economically relevant traits for the livestock industries. Sponsors: This resource is supported by Pfizer Animal Health. Keywords: Animal, Genetics, Health, World, Genetic, Information, Service, Industry, Livestock, DNA, Maker, Technology, Phenotypic, Productivity,SCR_008447(Pfizer Animal Genetics, RRID:SCR_008447)related to: eTRIKS, OncoTrack, EU-AIMS, Investigator Databank, Kidney Health Initiative, NEWMEDS, ORBITO, Patients to Trials Consortium, SGC, Asian Cancer Research Group, Open PHACTS, EMIFLast checked downnif-0000-30302
JDRFResource, disease-related portal, topical portal, portal, funding resource, data or information resourceGlobal funder of type 1 diabetes (T1D) research that aims to progressively remove the impact of T1D from people's lives until a world without T1D is achieved. JDRF collaborates with a wide spectrum of partners and is the only organization with the scientific resources, regulatory influence, and a working plan to better treat, prevent, and eventually cure T1D. More than 80 percent of JDRF's expenditures directly support research and research-related education. In 2012 Forbes magazine named JDRF one of its five All-Star charities, citing the organization's efficiency and effectiveness. The organization awards research grants for laboratory and clinical investigations and sponsors a variety of career development and research training programs for new and established investigators. JDRF also sponsors international workshops and conferences for biomedical researchers. Individual chapters offer support groups and other activities for families affected by diabetes.treatment, prevention, cure, research, educationSCR_001522(JDRF, RRID:SCR_001522)Type 1 diabetesrelated to: JDRF Artificial Pancreas Project Consortium, Kidney Health Initiative, listed by: NIDDK Information Network, affiliated with: Helmsley Cellular Research HubLast checked upnlx_152841
American Association of Kidney PatientsResource, disease-related portal, topical portal, patient-support portal, portal, data or information resourceAssociation of kidney patients focused on patient-centered education, advocacy and community. They share educational pieces covering every level of kidney disease, advocate for improved access to high-quality health care through regulatory and legislative reform at the federal level, and make an effort to bring kidney patients together to promote community, conversations and to seek out services that help maximize patients'' everyday lives.kidney, dialysisSCR_003965(American Association of Kidney Patients, RRID:SCR_003965)Kidney diseaserelated to: Kidney Health InitiativeLast checked upnlx_158369
DaVitaResource, disease-related portal, topical portal, commercial organization, service resource, portal, data or information resourceCommercial dialysis provider with offerings that include in-center hemodialysis, in-center nocturnal dialysis, peritoneal dialysis, home hemodialysis, vascular access management, chronic kidney disease education, and renal diet assistance. (Adapted from Wikipedia) Information on dialysis and chronic kidney disease, including informative articles and animated learning modules, and recipes for the dialysis diet are also available. Take advantage of their discussion forum, Find a Dialysis Center tool, DaVita GFR Calculator and more.dialysis, health care, kidney, diet, clinical, administrative serviceSCR_003980(DaVita, RRID:SCR_003980)Chronic kidney disease, End stage renal diseaserelated to: Kidney Health InitiativeLast checked upnlx_158385
Dialysis Patient CitizensResource, disease-related portal, topical portal, patient-support portal, portal, data or information resourceA nationwide, non-profit, patient-led organization with membership open only to dialysis and pre-dialysis patients and their families working to improve the quality of life for all dialysis patients through education and advocacy. They are dedicated to developing awareness of dialysis issues, advocating for dialysis patients, promoting favorable public policy and improving the partnership between patients and caregivers. Their policies and their mission are guided solely by their membership.dialysis, policy, kidneySCR_003981(Dialysis Patient Citizens, RRID:SCR_003981)Chronic kidney diseaserelated to: Kidney Health InitiativeLast checked upnlx_158388
National Kidney FoundationResource, disease-related portal, topical portal, portal, data or information resourceOrganization in the U.S. dedicated to the awareness, prevention and treatment of kidney disease. Initiatives include public and professional education, kidney health screenings, research, and patient services. They publish a number of scientific journals including the American Journal of Kidney Diseases, Advances in Chronic Kidney Disease and the Journal of Renal Nutrition. The NKF also publishes the Kidney Dialysis Outcomes Quality Initiative K/DOQI, a comprehensive set of clinical practice guidelines. (Adapted from Wikipedia)kidney, organ, donation, transplantation, nephrology, clinical, training resource, narrative resource, standard specificationSCR_003990(National Kidney Foundation, RRID:SCR_003990)Kidney diseaserelated to: Kidney Health InitiativeLast checked upnlx_158404
NephCure Kidney InternationalResource, disease-related portal, topical portal, portal, funding resource, data or information resourceNonprofit organization committed exclusively to support research seeking the cause of the potentially debilitating kidney disease Focal Segmental Glomerulosclerosis (FSGS) and Nephrotic Syndrome, improve treatment and find a cure. NephCure Kidney International is: * Committed to funding research around the globe that will continue to move us closer to an improved treatment and a cure. * The primary source of information on Nephrotic Syndrome and FSGS. * Leading the charge for legislative action to provide more federal funding for research into Nephrotic Syndrome and FSGS. * Working to attract researchers to this field. * Educating the public and raising awareness about Nephrotic Syndrome and FSGS.kidneySCR_003993(NephCure Kidney International, RRID:SCR_003993)Nephrotic Syndrome, Focal Segmental Glomerulosclerosis, Kidney diseaserelated to: Kidney Health InitiativeLast checked upnlx_158406
Renal Support NetworkResource, disease-related portal, topical portal, patient-support portal, portal, data or information resourceA nonprofit, patient-focused, patient-run organization that provides non-medical services to those affected by chronic kidney disease (CKD). RSN strives to help patients develop their personal coping skills, special talents, and employability by educating and empowering them and their family members to take control of the course and management of the disease. RSN plays a vital role in providing lawmakers and policymakers with the patient''s perspective on the needs and capabilities of people with CKD.kidneySCR_004049(Renal Support Network, RRID:SCR_004049)Chronic kidney diseaserelated to: Kidney Health InitiativeLast checked upnlx_158479
Vasculitis FoundationResource, disease-related portal, topical portal, patient-support portal, portal, data or information resourceAn international organization for patients with vasculitis, their families, friends and the health care professionals who care for them, supporting and empowering them through education, awareness and research. The Foundation advocates for early diagnosis and leading edge treatment for all. The Foundation also partners with researchers around the world to determine the cause and discover the cure for vasculitis.clinical, pediatric, child, funding resourceSCR_004059(Vasculitis Foundation, RRID:SCR_004059)Vasculitisrelated to: Kidney Health InitiativeLast checked upnlx_158493
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