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SciCrunch Registry is a curated repository of scientific resources, with a focus on biomedical resources, including tools, databases, and core facilities - visit SciCrunch to register your resource.

(last updated: Oct 19, 2019)

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Resource NameResource TypeDescriptionKeywordsResource IDProper CitationParent OrganizationRelated ConditionFunding AgencyRelationReferenceWebsite StatusAlternate IDsAlternate URLsOld URLs
Einstein-Montefiore ICTR Research Informatics CoreResource, database, service resource, portal, storage service resource, data repository, community building portal, data or information resourcePrimary informatics resource for joint research efforts of the Albert Einstein College of Medicine and Montefiore Medical Center to facilitate the study and understanding of biological processes, clinical disorders, pathologic abnormalities, and the relationships among them, using a wide variety of informatics techniques, applications, and user training. Their services include: * Collaboration on research design to enable effective data management throughout all phases of a project * Provision of management capability for large volumes of data generated by microarrays and related technologies * Provision and supports a software toolchest for data capture, retrieval, and analysis * Design and implementation of custom interfaces to incorporate existing or separately designed databases into the central data management architecture * Support for data management for the Biorepository, to enhance specimen storage, identification, and linkage with clinical data * Ensuring conformity of data elements and structures to national standards via participation in standards organizations, facilitating intramural and extramural collaboration * Providing individualized support to end-users with bioinformatics training needs * Serving as a bioinformatics liaison to other research institutes and organizations * Providing data management support for clinical research * Providing a common, secure repository for clinical, experimental, and biosample storage dataabnormality, application, biological, biorepository, clinical, compute, disorder, informatics, medicine, organization, pathologic, research, specimen, technique, technology, collaboration, data management, data sharing, infrastructure, workbench, biostatistics, data repository, bioinformatics, environment, microarray, gene, clinical researchSCR_003451(Einstein-Montefiore ICTR Research Informatics Core, RRID:SCR_003451)Albert Einstein College of Medicine; New York; USA related to: Einstein-Montefiore Institute for Clinical and Translational Research Biorepository, listed by: BiositemapsLast checked downnif-0000-33284
Duke University Medical Center: Duke Image Analysis LaboratoryResource, topical portal, data or information resource, portal, databaseThe Duke Image Analysis Laboratory (DIAL) is committed to providing comprehensive imaging support in research studies and clinical trials to various agencies. The capabilities of the lab include protocol development, site training and certification, and image archival and analysis for a variety of modalities including magnetic resonance imaging, magnetic resonance spectroscopy, computed tomography and nuclear medicine. DIAL uses the latest technologies to analyze Magnetic Resonance Imaging (MRI) data sets of the brain. Currently the lab is engaged in measurement of the hippocampus, amygdala, caudate, ventricular system, and other brain regional volumes. Each of these techniques have undergone a rigorous validation process. The measurements of brain structures provide a useful means of non-invasively testing for changes in the brain of the patient. Changes over time in the brain can be detected, and evaluated with respect to the treatment that the patient is receiving. Magnetic Resonance Spectroscopy (MRS) allows DIAL to obtain an accurate profile of the chemical content of the brain. This sensitive technique can detect small changes in the metabolic state of the brain; changes that vary in response to administration of therapeutic agents. The ability to detect these subtle shifts in brain chemistry allows DIAL to identify changes in the brain with more sensitivity than allowed by image analysis. In this respect, NMR spectroscopy can provide early detection of changes in the brain, and serves to compliment the data obtained from image analysis. Additionally, DIAL also contains SQUID (Scalable Query Utility and Image Database). It is an image management system developed to facilitate image management in research and clinical trials: SQUID offers secure, redundant image storage and organizational functions for sorting and searching digital images for a variety of modalities including MRI, MRS, CAT Scan, X-Ray and Nuclear Medicine. SQUID can access images directly from DUMC scanners. Data can also be loaded via DICOM CDsacademic, amygdala, analysis, biotechnology, brain, cat scan, caudate, chemical, clinical, computed, development, digital, hippocampus, imaging, lab, laboratory, magnetic resonance imaging, magnetic resonance spectroscopy, medical, medicine, metabolic, mri, mrs, nmr, nuclear, nuclear medicine, pharmaceutical, research, spectroscopy, structure, technology, therapeutic, tomography, treatment, trial, ventricular, ventricular system, volume, x-raySCR_001716(Duke University Medical Center: Duke Image Analysis Laboratory, RRID:SCR_001716)Duke University; North Carolina; USA Last checked upnif-0000-10213
National Institutes of Health Stroke ScaleResource, topical portal, portal, data or information resourceThe National Institutes of Health Stroke Scale (NIHSS) is a systematic assessment tool that provides a quantitative measure of stroke-related neurological deficit. The NIHSS was originally designed as a research tool to measure baseline data on patients in acute stroke clinical trials. Now, the scale is also widely used as a clinical assessment tool to evaluate acuity of stroke patients, determine appropriate treatment, and predict patient outcome. The NIHSS can be used as a clinical stroke assessment tool to evaluate and document neurological status in acute stroke patients. The stroke scale is valid for predicting lesion size and can serve as a measure of stroke severity. The NIHSS has been shown to be a predictor of both short and long term outcome of stroke patients. Additionally, the stroke scale serves as a data collection tool for planning patient care and provides a common language for information exchanges among healthcare providers. Performing the scale takes between 5-8 minutes. Emergency physicians and nurses, neurologists, neuroscience nurses and other stroke team members are typical examples of who should be certified to perform the NIHSS. The NINDS/NIH training and testing DVD can be obtained from the National Institute of Neurological Disorders and Stroke. Sponsors: NIHSS is supported by the National Institute of Neurological Disorders and Stroke (NINDS).acute, care, clinical, deficit, healthcare, lesion, neurological, neurologist, neuroscience, nurse, patient, physician, stroke, treatment, languageSCR_001804(National Institutes of Health Stroke Scale, RRID:SCR_001804)Last checked downnif-0000-10368
NIH - Rapid Access to Interventional DevelopmentResource, production service resource, analysis service resource, material analysis service, biomaterial manufacture, service resource, biomaterial analysis service, material service resource, funding resourceNIH-RAID makes available at no cost to researchers and organizations certain critical resources needed for the development of new therapeutic agents. This program, part of the Translational Research component of Reengineering the Clinical Research Enterprise, uses resources of NCI's Developmental Therapeutics Program and the National Heart Lung and Blood Institutes (NHLBI) Gene Therapy Resource Program. The services provided will depend upon the stage of the project and the strength of the preliminary data. Services available include: production, bulk supply, GMP manufacturing, formulation, development of an assay suitable for pharmacokinetic testing, and animal toxicology. Assistance also will be provided in the regulatory process, through access to independent product development planning expertise. Proposals in support of animal efficacy studies or synthesis and formulation of recombinant proteins or monoclonal antibodies will not be accepted. NIH-RAID is not a grant program. Successful projects will gain access to the governments contract resources, as well as the assistance of the NIH in establishing and implementing a product development plan. Funds to support individual projects will come both from the Roadmap and from individual Institutes, with Institutes assuming the bulk of support in the specific disease areas germane to their mission. This co-sponsorship is critical because of the resource and expertise needs and because NIH-RAID cannot support the full developmental pipeline; an Institute partnership may therefore be important for subsequent translational efforts. To obtain access to NIH-RAID resources, applications must be submitted electronically through using SF424. Applications are initially screened to determine whether the resources requested are appropriate for this program. Then they are reviewed by the NIH Center for Scientific Research. The results of that evaluation along with supplemental information from the lead investigator will guide final Institute and Roadmap resource allocation. The services provided will depend upon the stage of the project and the strength of the preliminary data. When a lead therapeutic agent has been selected and proposed for preclinical development, the following services are available: For small molecules, natural products, peptides, oligonucleotides, and gene vectors: Synthesis, Scale-up production, Development of analytical methods, Development of suitable formulations, Isolation and purification of natural products, Pharmacokinetic/ADME studies including bioanalytical method development, Range-finding initial toxicology, IND-directed toxicology, Manufacture of clinical trial supplies, Product development planning and advice in IND preparation For recombinant proteins and monoclonal antibodies: Pharmacokinetic/ADME studies including bioanalytical method development, Range-finding initial toxicology, IND-directed toxicology, Product development planning and advice in IND preparation When a lead therapeutic agent has not yet been selected and proposed for preclinical development, the following services are available: For small molecules, natural products, peptides, oligonucleotides, and gene vectors: Synthesis, Development of analytical methods, Isolation and purification of natural products, Preliminary Pharmacokinetic/ADME studies, including bioanalytical method development, Preliminary toxicology For recombinant proteins and monoclonal antibodies, Preliminary Pharmacokinetic/ADME studies, including bioanalytical method development, Preliminary toxicology In some cases the NIH-RAID program will support only one or two key steps for preclinical development, while in other cases it may be possible to provide assistance with most of the development tasks needed to file an Investigational New Drug (IND) application to the Food and Drug Administration (FDA). When the NIH-RAID program does not provide all of the remaining services required for IND submission, it is expected that other resources will be in place to complete development steps not supported by NIH-RAID. Funding Resource,.adme, applied, biomaterial method development, clinical, pharmacology, student, toxicologySCR_000713(NIH - Rapid Access to Interventional Development, RRID:SCR_000713)Last checked downnif-0000-00543
Comparative Medicine ProgramResource, postdoctoral program resource, training resourceThe University of Missouri (MU) Comparative Medicine Program provides advanced graduate training to veterinarians who wish to pursue careers in comparative medicine. Trainees may combine one year of residency training in clinical, administrative and diagnostic laboratory animal medicine with two or more years of research training. Alternatively, trainees with experience in laboratory animal medicine, comparative pathology or related disciplines may begin research training at the time of admission. Training is designed to prepare individuals for a variety of careers including comparative medicine research, clinical and administrative laboratory animal medicine and comparative and diagnostic laboratory animal pathology. Students may either pursue an MS or PhD. Research opportunities are available in several areas including infectious disease, pathology, molecular biology, mouse biology and cardiovascular physiology. Resources available include the University of Missouri Office of Animal Resources (OAR) and Research Animal Diagnostic Laboratory (RADIL) and Mutant Mouse and Rat Resource and Research Centers. The University of Missouri Comparative Medicine Program (CMP) is post Doctor of Veterinary Medicine training that combines graduate residency training, course work and research. Trainees with relevant experience in laboratory animal medicine or comparative pathology may pursue research training without residency training. In the residency year of training, two rotations are performed: diagnostic laboratory animal pathology in the Research Animal Diagnostic Laboratory (RADIL); clinical medicine and animal resource management in the Office of Animal Resources (OAR). The remaining two to four years focus on research training under an established investigator. After three years, trainees successfully fulfilling program requirements receive a certificate of residency training. MS students complete their program while PhD students continue to pursue research training. Sponsors: CMP is supported by the University of Missouri comparative, medicine, veterinarian, residency, training, clinical, administrative, diagnostic, laboratory, animal, pathology, cardiovascular, molecular, biology, mouse, physiologyadministrative, animal, biology, cardiovascular, clinical, comparative, diagnostic, laboratory, medicine, molecular, mouse, pathology, physiology, residency, training, veterinarianSCR_008298(Comparative Medicine Program, RRID:SCR_008298)University of Missouri; Missouri; USA Last checked upnif-0000-24379
Adolescent Bariatrics: Assessing Health Benefits and Risks (Teen-LABS)OrganizationA consortium made up of five clinical centers and a data coordinating center. The goal of Teen-LABS is to conduct clinical, epidemiological, and behavioral research in adolescent bariatric surgery, through an observational prospective study protocol. Teen-LABS is an ancillary study to LABS, an observational study of adult bariatric surgery. Research staff, certified in standardized uniform data collection according to the protocol, collect data at pre-operative research visits, at surgery, 30 days and six months post-operative, and annual post-operative research visits at the five participating centers.adolescent, adult, bariatric surgery, teen, clinical, epidemiology, behavioral research, observational study, consortiumSCR_014388(Adolescent Bariatrics: Assessing Health Benefits and Risks (Teen-LABS), RRID:SCR_014388)listed by: NIDDK Information Network, NIDDK Research Resources, submitted by: NIDDK Information NetworkLast checked down
Teen-Longitudinal Assessment of Bariatric Surgery Resource, disease-related portal, topical portal, resource, research forum portal, portal, data or information resourceConsortium made up of five clinical centers and a data coordinating center facilitating coordinated clinical, epidemiological, and behavioral research in the field of adolescent bariatric surgery, through an observational study protocol for uniform data collection pre-operative, at surgery, and through 2 years post-operative at participating centers performing bariatric surgery on teenagers. The use of standardized definitions and data-collection instruments for sequential patients scheduled for surgery at each site will yield meaningful evidence-based recommendations for patient evaluation, selection, and follow-up care. In addition to investigating surgical outcomes, another broader goal of Teen-LABS is to better understand the etiology, pathophysiology, and behavioral aspects of severe obesity in youth and how this condition affects human beings over time. The Teen-LABS consortium members include: Cincinnati Children's Hospital Medical Center, Texas Children's Hospital, Children's Hospital of Alabama, University of Pittsburgh, Nationwide Children's Hospitaladolescent human, bariatrics, pre-operative, at surgery, post-operative, clinical, epidemiology, behavior, surgical outcome, metadata standard, observational study, clinical, experimental protocol, evidence-based recommendation, patient evaluation, follow-up careSCR_001492( Teen-Longitudinal Assessment of Bariatric Surgery , RRID:SCR_001492)Bariatric surgery, ObesityNIDDKlisted by: NIDDK Information Network, submitted by: NIDDK Information NetworkLast checked downnlx_152747
Patient-Reported Outcomes Measurement Information SystemResource, topical portal, assessment test provider, data set, service resource, portal, storage service resource, data repository, material resource, data or information resourceRepository of person centered measures that evaluates and monitors physical, mental, and social health in adults and, child, assessment, clinical, anger, pain, fatigue, physical function, depression, anxiety, social function, patient reported outcome, health, measureSCR_004718(Patient-Reported Outcomes Measurement Information System, RRID:SCR_004718)University of Washington; Seattle; USA NCCIH, NCI, NHLBI, NIA, NIAMS, NIDA, NIDCD, NIDDK, NIMH, NINDS, NINR, ODrecommended by: National Library of Medicine, BRAIN InitiativeLast checked upnlx_143881
NYU Institute for Pediatric Neuroscience SampleResource, data set, data or information resourceDatasets including a collection of scans from 49 psychiatrically evaluated neurotypical adults, ranging in age from 6 to 55 years old, with age, gender and intelligence quotient (IQ) information provided. Future releases will include more comprehensive phenotypic information, and child and adolescent datasets, as well as individuals from clinical populations. The following data are released for every participant: * At least one 6-minute resting state fMRI scan (R-fMRI) * * One high-resolution T1-weighted mprage, defaced to protect patient confidentiality * Two 64-direction diffusion tensor imaging scans * Demographic information (age, gender) and IQ-measures (Verbal, Performance, and Composite; Weschler Abbreviated Scale of Intelligence - WASI) * Most participants have 2 R-fMRI scans, collected less than 1 hour apart in the same scanning session. Rest_1 is always collected human, young human, intelligence quotient, child, adolescent, clinical, resting state fmri, t1-weighted, mprage, diffusion tensor imaging, fsiq, viq, piq, neuroimaging, brain, image collectionSCR_010458(NYU Institute for Pediatric Neuroscience Sample, RRID:SCR_010458)1000 Functional Connectomes Project , New York University; New York; USA Neurotypical, AgingAutism Speaks, Leon Levy Foundation, NIMH, Phyllis Green and Randolph Cwen, Stavros Niarchos FoundationLast checked downnlx_157644
EU-ADRResource, organization portal, portal, consortium, data or information resourceConsortium that created the capability to detect Adverse Drug Response (ADR) signals by creating the infrastructure for large-scale monitoring of drug safety using electronic health records (EHR). The platform leverages EHR''''s comprising demographics, drug use and clinical data of over 30 million patients from several European countries. Special attention was given to patient groups that are not routinely involved in clinical trials, for ethical or practical reasons (e.g. pregnant women, elderly people, people using many drugs simultaneously, and children). This project also studies and compares a number of different techniques that all aim to detect unexpected or disproportional rates of events. The algorithms that they studied originate not only from the field of (pharmaco)epidemiology, but also from fields such as bio-terrorism, machine learning, and classical signal detection. EU-ADR specific objectives are: To detect events, To relate these events to drugs, To develop hypothesis that explain adverse events, To detect adverse events earlier, and To avoid false positives. The web-based platform is available at EU-ADR has contributed to the ability to conduct better drug safety studies based on the re-use of healthcare data. By facilitating the early detection of adverse drug reactions, but also providing key information on populations at risk, potential drug interactions, potential underlying mechanisms and intervening pathways in adverse events, etc., the project will allow for improved and more complete information to be available for drug and healthcare delivery, leading to increased patient safety and its associated cost savings. The EU-ADR system can be considered as a complementary tool to already existing pharamcovigilance systems. Should the system be widespread in the long term, it has the potential to contribute to the development of future electronic health record systems, insofar as the expected benefits of these IT tools are only fully attainable when EHRs develop themselves in consistency, richness and formats that allow them to be subject of such tools. In anticipation, EU-ADR has been designed to be modular and scalable, so that different EHR databases (other than those participating in the Consortium) can be progressively enlisted in the future, adopt the software for data extraction and therefore become susceptible of exploitation by the system, for maximum global effect.adverse drug reaction, clinical, biomedical, drug safety, electronic health record, demographic, drug use, clinical data, late adult human, child, young human, pregnant, drug, adverse event, signal detection, drug development, data sharing, text mining, epidemiology, database, data set, data repository, text extraction softwareSCR_004028(EU-ADR, RRID:SCR_004028) University of Aveiro; Aveiro; Portugal , Mar Institute of Medical Research Foundation European Union FP7related to: Mar Institute of Medical Research Foundation, University of Aveiro, Aveiro, Portugal, listed by: Consortia-pediaLast checked downnlx_158456
alz.orgResource, disease-related portal, topical portal, portal, funding resource, data or information resourceA non profit organization dedicated to providing support for patients and families with Alzheimer's disease, to educating the public about the disease, to funding a wide range of Alzheimer's disease related research and to finding ways to treat and eventually to prevent Alzheimer's disease. Resources include: the Alzheimer's Association Green-Field Library, a research grants program, and the Journal of the Alzheimer's Association.advocacy group, brain, brain health, clinical, dementia, alzheimers disease, community building portal, narrative resource, training material, database, training resource, service resourceSCR_007398(, RRID:SCR_007398)Alzheimer's disease, Agingrelated to: ADNI - Alzheimer's Disease Neuroimaging Initiative, International Genomics of Alzheimers ProjectLast checked upnif-0000-00451
University of Pittsburgh Alzheimer Disease Research CenterResource, disease-related portal, topical portal, portal, data or information resourceA research center associated with the University of Pittsburgh that specializes in the diagnosis of Alzheimer's disease and related disorders. The overall objective of the ADRC is to study the pathophysiology of Alzheimer's disease, with the aim of improving the reliability of diagnosis of Alzheimer's and developing effective treatment strategies. Current research foci emphasize neuropsychiatry and neuropsychology, molecular genetics and epidemiology, basic neuroscience, and structural and functional imaging that aid in the diagnosis and treatment of Alzheimer's disease. Specific services at the ADRC include: comprehensive diagnostic evaluation of patients with suspected Alzheimer's disease and other forms of dementia; evaluation of memory, language, judgment, and other cognitive abilities; and education and counseling for patients and families.african american, alzheimer's disease, assessment, clinical, cognitive, dementia, diagnosis, diagnostic evaluation, human, medical, mild cognitive impairment, neurological, pathophysiology, psychiatricSCR_008084(University of Pittsburgh Alzheimer Disease Research Center, RRID:SCR_008084)University of Pittsburgh; Pennsylvania; USA Alzheimer's disease, Mild Cognitive Impairment, Dementia, AgingNIALast checked upnif-0000-10750
AASK Clinical Trial and Cohort Study Resource, disease-related portal, topical portal, resource, research forum portal, portal, clinical trial, data or information resourceClinical trial investigating whether a specific class of antihypertensive drugs (beta-adrenergic blockers, calcium channel blockers, or angiotensin converting enzyme inhibitors) and/or the level of blood pressure would influence progression of hypertensive kidney disease in African Americans. The initiative consisting of 21 clinical centers and a data-coordinating center is followed by a Continuation of AASK Cohort Study to investigate the environmental, socio-economic, genetic, physiologic, and other co-morbid factors that influence progression of kidney disease in a well-characterized cohort of African Americans with hypertensive kidney disease. Only patients who were previously in the randomized trial are eligible for the cohort study. A significant discovery was made in the treatment strategy for slowing kidney disease caused by hypertension. Angiotensin-converting enzyme (ACE) inhibitors, compared with calcium channel blockers, were found to slow kidney disease progression by 36 percent, and they drastically reduced the risk of kidney failure by 48 percent in patients who had at least one gram of protein in the urine, a sign of kidney failure. ACE inhibitors have been the preferred treatment for hypertension caused by diabetes since 1994; however, calcium channel blockers have been particularly effective in controlling blood pressure in African Americans. The AASK study now recommends ACE inhibitors to protect the kidneys from the damaging effects of hypertension. The Continuation of AASK Cohort Study will be followed at the clinical centers. The patients will be provided with the usual clinical care given to all such patients at the respective centers. Baseline demographic information, selected laboratory tests, and other studies are being obtained at the initiation of the Continuation Study. The patients will be seen quarterly at the centers, and some selected studies done at these visits. Samples will be obtained and stored for additional studies and analyses at a later date.african american, blood pressure, beta-adrenergic blocker, calcium channel blocker, angiotensin converting enzyme inhibitor, environment, socio-economic, genetic, physiology, co-morbid factor, gene, adult human, antihypertensive drug, clinical, treatment, longitudinal, demographics, laboratory test, biospecimen, biomaterial supply resourceSCR_006985( AASK Clinical Trial and Cohort Study , RRID:SCR_006985)End-stage renal disease, Kidney failure, Kidney disease, Hypertension, Hypertensive kidney diseaseNIDDKrelated to: NIDDK Information Network, Chronic Renal Insufficiency Cohort Study, listed by: One Mind Biospecimen Bank Listing, submitted by: NIDDK Information NetworkLast checked upnlx_152750
Washington National Primate Research CenterResource, topical portal, organism supplier, organism-related portal, biomaterial supply resource, portal, material resource, data or information resourceCenter that aims to provide an environment to support biomedical research directed towards human health issues and nonhuman primate health and biology. To meet this mission, the WaNPRC supports biomedical research activities, professional research staff, specifically bred and maintained nonhuman primate colonies, and dedicated facilities and equipment required for nonhuman primate research protocols.aids, clinical, disease, monkey, developmental biology, functional genomics, immunology, reproduction, biology, neurophysiology, infectious disease, transplantation, stem cell, biology, virology, disease model, animal model, neurobiology, neuroscience, systems biology, baboon, long-tailed macaque, rhesus monkey, live animal, macaca nemestrina, macaca fascicularis, macaca mulatta, papio cynocephalus, papio anubisSCR_002761(Washington National Primate Research Center, RRID:SCR_002761) National Center for Research Resources - Primate Resources , University of Washington; Seattle; USA NCRR, NIH Office of the Directorlisted by: One Mind Biospecimen Bank ListingLast checked downnif-0000-24361
AIDS and Cancer Specimen ResourceResource, biomaterial supply resource, material resource, tissue bank, cell repositoryA biorepository for HIV-infected human biospecimens from a wide spectrum of HIV-related or associated diseases, including cancer, and from appropriate HIV-negative controls. The ACSR has formalin-fixed paraffin embedded biospecimens, fresh frozen biospecimens, malignant cell suspensions, fine needle aspirates, and cell lines from patients with HIV-related malignancies. It also contains serum, plasma, urine, bone marrow, cervical and anal specimens, saliva, semen, and multi-site autopsy speicmens from patients with HIV-related malignancies including those who have participated in clinical trials. The ACSR has an associated databank that contains prognostic, staging, outcome and treatment data on patients from whom tissues were obtained. The ACSR database contains more than 300,000 individual biospecimens with associated clinical information. Biospecimens are entered into the ACSR database by processing type, disease category, and number of cases defined by disease category.aids, hiv, cancer, virology, immunology, pathology, epidemiology, tumor, assay development, clinical data, clinical, tumor tissue, biological fluid, bodily fluid, malignant cell suspension, fine needle aspirate, cell line, serum, plasma, urine, bone marrow, cervical specimen, anal specimen, saliva, semenSCR_004216(AIDS and Cancer Specimen Resource, RRID:SCR_004216)University of California at San Francisco; California; USA AIDS, Cancer, HIV-associated malignancy, HIVNCIlisted by: One Mind Biospecimen Bank ListingLast checked upnlx_23946
UCSF Center for AIDS Prevention Studies (CAPS)Resource, disease-related portal, topical portal, service resource, portal, training service resource, funding resource, data or information resourceEstablished in 1986, the Center for AIDS Prevention Studies (CAPS) at the University California, San Francisco (UCSF) is the world''s largest research center dedicated to social, behavioral, and policy science approaches to HIV. The mission of the CAPS is to conduct research to prevent new HIV infections, improve health outcomes among those infected, and reduce disparities. This is how we do it: * CAPS provides core support for multidisciplinary and high-impact HIV research, enhances the excellence of research projects, trains a new generation of HIV scientists, and assists implementing partners. * Our Administrative Core provides strong leadership and management to stimulate innovative research and ensure scientific rigor and sound fiscal operations. * Our Developmental Core fosters innovative, high-impact, multidisciplinary HIV research by providing funds for innovative pilot work, sponsoring training and education, and ensuring the scientific excellence of research. * Our Methods Core provides comprehensive methodological training and consultation in research design, qualitative and quantitative analysis, and state-of-the-art data collection and management. * Our Policy and Ethics Core stimulates and supports policy-relevant research, identifies and analyzes the policy and ethics implications of research, and ensures the highest ethical conduct of research. * Our Technology and Information Exchange (Domestic Response) Core responds to the domestic epidemic by disseminating information, fostering community collaborative research, providing technical assistance and capacity-building to community-based organizations, and learning from community expertise. * Our Global Response Core responds to the global epidemic by fostering collaborative research with scientists in developing countries, completing and disseminating Cochrane Collaborative scientific reviews, and providing technical assistance, capacity building, and an evidence base to implementing partners.aids, hiv, clinical, researchSCR_005647(UCSF Center for AIDS Prevention Studies (CAPS), RRID:SCR_005647)University of California at San Francisco; California; USA AIDS, HIVLast checked upnlx_146276
Michigan Alzheimer's Disease CenterResource, disease-related portal, topical portal, portal, data or information resourceAn Alzheimer's disease center which aims to conduct and promote research on Alzheimer's disease and enhance public and professional understanding of dementia through education and outreach efforts. The MADC promotes clinical research on memory and aging which involves the direct use of research volunteers, biomarkers, and other clinical data collected through the University of Michigan Memory and Aging Project.alzheimer's disease, biomarker, clinical, dementia, neurodegenerative disease, clinical studySCR_008773(Michigan Alzheimer's Disease Center, RRID:SCR_008773)University of Michigan Medical School; Michigan; USA AgingPrivate fundsLast checked downnlx_144106
National Alzheimer's Coordinating CenterResource, topical portal, database, biomaterial supply resource, portal, material resource, data or information resourceA clinical research, neuropathological research and collaborative research database that uses data collected from 29 NIA-funded Alzheimer's Disease Centers (ADCs). The database consists of several datasets, and searches may be done on the entire database or on individual datasets. Any researcher, whether affiliated with an ADC or not, may request a data file for analysis or aggregate data tables. Requested aggregate data tables are produced and returned as soon as the queue allows (usually within 1-3 days depending on the complexity).alzheimer's disease, brain, clinical, database, disease, human, neuropathological, neuropathology, specimen, tissueSCR_007327(National Alzheimer's Coordinating Center, RRID:SCR_007327)University of Washington; Seattle; USA Alzheimer's disease, Dementing disorder, DementiaNIA, NIH Blueprint for Neuroscience Researchrelated to: Alzheimers Disease Genetics Consortium, Alzheimers Disease Genetics Consortium, National Cell Repository for Alzheimer's Disease, listed by: One Mind Biospecimen Bank ListingLast checked upnif-0000-00203
SIU Center for Alzheimer's Disease and Related DisordersResource, disease-related portal, topical portal, patient-support portal, service resource, portal, training service resource, data or information resourceResource center that provides assistance for patients and families affected by Alzheimer's disease and related conditions. The Center provides patient care through the Memory and Aging Clinic as well as through research, education and service to the community. Additionally the Center provides training in dementia care, maintains centralized data collection, and sponsors programs of research that qualify for federal financial participation.alzheimer's disease, dementia, clinical trial, clinical, late adult human, research, patient care, education, training serviceSCR_013199(SIU Center for Alzheimer's Disease and Related Disorders, RRID:SCR_013199)Southern Illinois University School of Medicine; Illinois; USA Alzheimer's disease, Dementia, AgingLast checked upnlx_144045
Jefferson Hospital for Neuroscience Alzheimers Disease and Dementia CenterResource, disease-related portal, topical portal, patient-support portal, portal, data or information resourceIf you or someone you love has been diagnosed with dementia caused by Alzheimer's disease, you'll be in good hands at Jefferson. Our neurologists and psychiatrists are dedicated to: Compassionate care for individuals with Alzheimer's disease; Supporting families; Advancing care through research into the epidemiology and treatment of neurodegenerative diseases. We interact with patients very early in the disease progression, when impairment is typically mild; deliver state-of-the-art care; provide information; build care-giving skills; and help caregivers connect with community support and plan for the future. Although there is no cure for Alzheimer's disease, our goal is to provide accurate diagnoses and state-of-the-art treatment. We are also involved in basic science research that is advancing fundamental knowledge of dementia-related disorders and paving the way for new methods of treatment. At Jefferson Hospital for Neuroscience, patients with Alzheimer's disease can participate in clinical trials with promising investigational treatments for the disease. Most of these studies are multicenter, multiyear trials that have already met a number of rigorous standards for safety and efficacy and have shown favorable effects on memory. For many patients and their families, participation not only offers the hope of slowing the disease but also represents a chance to share personal experience and contribute to new scientific knowledge. Patients who agree to participate must be able to assent to the study, and caregivers who support that participation act as surrogate decision-makers and provide informed consent.alzheimer's disease, late adult human, neurodegenerative disease, dementia, brain bank, clinical trial, clinicalSCR_000579(Jefferson Hospital for Neuroscience Alzheimers Disease and Dementia Center, RRID:SCR_000579)Thomas Jefferson University; Pennsylvania; USA Last checked downnlx_144497
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