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SciCrunch Registry is a curated repository of scientific resources, with a focus on biomedical resources, including tools, databases, and core facilities - visit SciCrunch to register your resource.

(last updated: Oct 12, 2019)

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Resource NameResource TypeDescriptionKeywordsResource IDProper CitationParent OrganizationRelated ConditionFunding AgencyRelationReferenceWebsite StatusAlternate IDsAlternate URLsOld URLs
National Death IndexResource, data or information resource, databaseDatabase of death record information on file in state vital statistics offices. Working with these state offices, the National Center for Health Statistics (NCHS) established the NDI as a resource to aid epidemiologists and other health and medical investigators with their mortality ascertainment activities.death, mortality, epidemic, statistic, epidemiology, clinical, terminal illness, dead, deceasedSCR_016369(National Death Index, RRID:SCR_016369)Centers for Disease Control and Prevention CDCLast checked up
CAMRDResource, service resource, access service resourceResearch facility of the Department of Radiology at the Duke University Medical Center (DUMC) providing access to a whole-body, commercially manufactured 3 Tesla (Trio, Siemens Medical Systems) MR Imaging and Spectroscopy System with full research capability. The Center is fully equipped to perform clinical and research MR imaging or spectroscopy studies on humans or large animals. A full range of monitoring, anesthesia, RF coil development, computer and instrumental control facilities as well as MR research technologists and physics/chemistry consultation are available to Department of Radiology researchers and their collaborators.anesthesia, animal, chemistry, human, imaging, magnetic resonance, monitoring, mri, physics, radiology, research, rf coil, spectroscopy, technology, tesla, mr spectroscopy, clinical, researchSCR_001713(CAMRD, RRID:SCR_001713)Duke University; North Carolina; USA related to: Beta Cell Biology ConsortiumLast checked upnif-0000-10211
EPILEPSIE databaseResource, data or information resource, databaseA comprehensive database for human surface and intracranial EEG data that is suitable for a broad range of applications e.g. of time series analyses of brain activity. Currently, the EU database contains annotated EEG datasets from more than 200 patients with epilepsy, 50 of them with intracranial recordings with up to 122 channels. Each dataset provides EEG data for a continuous recording time of at least 96 hours (4 days) at a sample rate of up to 2500 Hz. Clinical patient information and MR imaging data supplement the EEG data. The total duration of EEG recordings included execeeds 30000 hours. The database is composed of different modalities: Binary files with EEG recording / MR imaging data and Relational database for supplementary meta data.seizure, electroencephalography, mri, eeg recording, metadata, intracranial, surface, time series analyses, brain activity, brain, clinical, image collectionSCR_003179(EPILEPSIE database, RRID:SCR_003179)University of Freiburg; Baden-Wurttemberg; Germany EpilepsyBMBF, European Union, Excellence Initiative of the German Federal and State Governments, German Science Foundationlisted by: NeuroImaging Tools and Resources Collaboratory (NITRC)PMID:22738131Last checked upnlx_156892http://www.nitrc.org/projects/epilepsiaedb http://epilepsy-database.eu/project/ http://www.epilepsiae.eu http://epilepsy-database.eu
National Mesothelioma Virtual BankResource, biomaterial supply resource, data or information resource, material resource, databaseA virtual biospecimen registry designed to support and facilitate basic science, clinical, and translational research that will advance understanding of mesothelioma pathophysiology with the goal of expediting the discovery of preventive measures, novel therapeutic interventions, and ultimately, cures for mesothelioma. The NMVB resource is designed to provide mesothelioma tissue samples with high-quality and well-characterized multimodal annotated data to researchers. The NMVB team strongly believes that progress in translational and clinical research - in cancer as well as other disease areas - depends on the ability of researchers to access high-quality tissue that is associated with meaningful annotation. MVB database version 3.0 has been released that provides researchers real-time access to demographic, epidemiologic, pathologic, genotype, and follow-up data associated with biospecimens at no cost. Researchers interested in utilizing NMVB samples for their research may submit an application. All researchers (academic or commercial, United States or foreign) may apply for NMVB tissue specimens. NMVB currently has 966 annotated cases and 1198 biospecimens including: * Paraffin Embedded Tissue * Fresh Frozen Tissue * Blood and DNA Samples The NMVB also has developed mesothelioma tissue microarrays (TMAs) with associated multimodal data annotation. Additional TMAs will be available shortly.epidemiologic, biospecimen, clinical, demographic, genotype, pathologic, pathophysiology, preventive, specimen, therapeutic, tissue, translational, mesothelioma, paraffin-embedded tissue, fresh frozen tissue, blood, dna, paraffin, frozen, fresh frozen, glass slide, biopsy, resected, metastatic, lymph node, mesothelioma, cancer, lung cancer, rare disease, tissue bank, asbestos, epidemiology, pathology, biospecimen managementSCR_003438(National Mesothelioma Virtual Bank, RRID:SCR_003438)University of Pittsburgh; Pennsylvania; USA Mesothelioma, MetastasisNational Institute for Occupational Safety and Healthlisted by: One Mind Biospecimen Bank Listing, BiositemapsLast checked upnif-0000-33179
Vitiligo BiobankResource, biomaterial supply resource, biospecimen repository, service resource, storage service resource, data or information resource, material resource, material storage repositoryA non-profit collection of biological samples and detailed associated clinical data, designed to facilitate medical research into vitiligo, a devastating skin disease that is much neglected. They collect, store and analyze biological samples throughout the network of collaborators in 11 countries, using standard collection protocols and unified patient record, which are then made available to the scientific community and research organizations investigating pathogeneses, diagnostics, new treatments, and ultimately a cure for vitiligo. The core asset is a large collection of well-organized hair, blood, serum and DNA samples, integrated with comprehensive and anonymized patient records.clinical, hair, blood, serum, dna, skinSCR_003863(Vitiligo Biobank, RRID:SCR_003863)Vitiligolisted by: One Mind Biospecimen Bank ListingLast checked upnlx_158187http://vrfoundation.org/research-page/vitiligo-biobank
PHARMO InstituteResource, portal, organization portal, database, commercial organization, data or information resourceAn independent scientific research organization dedicated to the improvement of the use, quality and cost-effectiveness of pharmaceuticals. They collect, maintain and perform research on patient-centric data to derive real-life insights for tailoring of medicines. They maintain a large and high quality database network and work closely with (inter)national medical universities and European databases. Through its studies with longitudinal and real-life patient data, they contribute to risk management, outcomes research and provides solutions for decision makers in market access, health economics and health outcomes domains. Academics from Dutch universities or research institutes are granted the opportunity to perform scientific studies using the PHARMO Database Network.drug, epidemiology, drug utilization, drug safety, health outcome, healthcare, pharmacy, clinical, hospitalization, mortality, perinatal, pathology, thrombosis, renine, antimycotic, register, pharmaceutical, risk managementSCR_004105(PHARMO Institute, RRID:SCR_004105)Cancerrelated to: EMIFLast checked upnlx_158580
Parkinson's Progression Markers InitiativeResource, organization portal, database, biomaterial supply resource, consortium, portal, material resource, clinical trial, data or information resourceAn observational longitudinal clinical study partnership to identify and validate biomarkers of Parkinson disease (PD) progression and provide easy and open web-based access to the comprehensive set of correlated clinical data and biospecimens, information, and biosamples acquired from PD and age and gender matched healthy control subjects to the research community. The data and specimens have been collected in a standardized manner under strict protocols and includes clinical (demographic, motor and non-motor, cognitive and neurobehavioral), imaging (raw and processed MRI, SPECT and DAT), and blood chemistry and hematology subject assessments and biospecimen inventories (serum, plasma, whole blood, CSF, DNA, RNA and urine). All data are de-identified to protect patient privacy. PPMI will be carried out over five years at 21 clinical sites in the United States and Europe and requires the participation of 400 Parkinson's patients and 200 control participants. The PPMI database provides researchers with access to correlated clinical and imaging data, along with annotated biospecimens, all available within an open access system that encourages data sharing (http://www.ppmi-info.org/access-data-specimens/). The website hosts an Ongoing Analysis section to keep the scientific community apprised of analyses being completed, in hopes of stimulating collaborations between researchers who are using PPMI data and specimens.analyze, atlas data, clinical neuroinformatics, computational neuroscience, dicom, imaging genomics, loni pipeline, minc, magnetic resonance, pet, spect, dat, image collection, clinical, biological, imaging data, biomarker, imaging, demographic, motor, cognitive, neurobehavioral, hematology, consortium, biosample, sleep, longitudinalSCR_006431(Parkinson's Progression Markers Initiative, RRID:SCR_006431)Laboratory of Neuro Imaging , Michael J. Fox Foundation for Parkinsons Research Parkinson's disease, Controlconsortium of industry partners, Michael J. Fox Foundation for Parkinsons Research, non-profit organizations, private individualsrelated to: NIH Data Sharing Repositories, used by: Biomarkers Across Neurodegenerative Diseases, listed by: Consortia-pedia, One Mind Biospecimen Bank Listing, NeuroImaging Tools and Resources Collaboratory (NITRC), NIH Data Sharing RepositoriesLast checked upnlx_33115http://www.nitrc.org/projects/ppmi
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