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Geisinger Biobank

By collecting and analyzing blood samples from Geisinger''s large patient population, MyCode will help unlock the mysteries of some of the most devastating and debilitating diseases. Blood samples are obtained from patients of certain Geisinger specialty clinics to study specific conditions, such as obesity and cardiovascular disease, and also from patients of Geisinger primary care clinics to provide a representative sample of the regional population. More than 60,000 samples from over 23,000 Geisinger patients have been collected so far, and sample collection is ongoing. MyCode researchers use the blood samples to study the genetic causes of diseases and certain disease-related molecular mediators. Knowledge gained from these studies will allow researchers to pursue innovative approaches to disease prevention, diagnosis and treatment. To be of value for Genomic Medicine research, bio-banked samples must be connected to clinical data: MyCode allows genetic and molecular data about the samples to be connected to medical data in a way that protects patient identity. When a patient agrees to participate in MyCode, blood samples for the MyCode Project are collected during blood draws ordered as part of the patient''s routine medical care. After the sample is drawn and labeled, a staff member from the Weis Center for Research transports the blood to the Geisinger Clinic Genomics Core (GCGC) where it is processed for storage. At this stage, all personal identification markers are removed and the samples are assigned a randomly-selected identification number. A secure key is maintained that allows approved researchers to connect the samples to the clinical data for genomic studies in a way that ensures confidentiality of the information. To maintain confidentiality of MyCode data the code linking the research numbers and the electronic health records are kept in a password-protected files accessible only to MyCode team members. Additionally, all results generated from the samples are reported as a group so that individuals are not identified. The samples are stored indefinitely.

URL: http://www.geisinger.org/research/centers_departments/genomics/mycode/mycode.html

Resource ID: nlx_14718     Resource Type: Resource     Version: Latest Version

Keywords

gene, genetics, disease, clinical data, genomic medicine, genetic data, molecular data, blood, obesity, cardiovascular disease, other specific conditions, regional population

Additional Resource Types

Biomaterial Supply Resource, Data Or Information Resource

Availability

?: A secure key is maintained that allows approved researchers to connect the samples to the clinical data for genomic studies in a way that ensures confidentiality of the information.

Related Disease

Obesity, Cardiovascular disease, Disease, Other conditions, Regional population

Supercategory

Resource

Abbreviation

Geisinger Biobank

Funding Information

Ben Franklin Technology Development Authority, Geisinger Clinic''s Administrative Committee for Research,

Parent Organization

Comment

Sample type: Blood

Listed By

One Mind Biospecimen Bank Listing, Biobank

Related Application

Research

Species

human

Original Submitter

Anonymous

Version Status

Curated

Submitted On

12:00am August 17, 2011

Originated From

SciCrunch

Changes from Previous Version

  • Description was changed
  • Funding Information was changed
  • Additional Resource Types was changed

Version 2

Created 2 weeks ago by Christie Wang

Version 1

Created 4 years ago by Anonymous