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Chordoma Foundation

The Chordoma Foundation is an international nonprofit organization working to improve the lives of chordoma patients by accelerating the development of effective treatments, and by helping patients to get the best care possible. Guided by a comprehensive research roadmap, the Foundation initiates and funds research, facilitates information exchange and collaboration among researchers, and provides scientific resources needed for research. Chordoma is a relentless and difficult to treat bone cancer that occurs in the head and spine in people of all ages. No drugs are approved to treat chordoma and the average survival after diagnosis is 7 years; a statistic we are determined to improve. Our Approach: * Fund results-oriented research: We proactively fund research projects identified by our Scientific Advisory Board as strategic priorities for advancing the development of new treatments for chordoma. * Provide scientific resources: We create, collect, store, and distribute the information and biological materials that researchers need in order to study chordoma and develop new treatments. * Facilitate communication and collaboration: We connect physicians, scientists and companies from across the world to share information and collaborate on projects they can only achieve together. * Guide patients to obtain quality care: We provide accurate information about treatment options and clinical trials, refer patients to experienced doctors, and match patients with trained peer-support mentors.

URL: http://www.chordomafoundation.org/

Resource ID: nlx_38016     Resource Type: Resource     Version: Latest Version

Abbreviation

Chordoma Foundation

Additional Resource Types

funding resource, disease-related portal

Supercategory

Resource

Publication Link

http://www.chordomafoundation.org/upload/file/Chordoma%20Foundation%20at%20a%20Glance.pdf

Original Submitter

Anonymous

Version Status

Curated

Submitted On

12:00am August 30, 2011

Originated From

SciCrunch

Changes from Previous Version

First Version

Version 1

Created 4 years ago by Anonymous