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| Resource Name | Proper Citation | Abbreviations | Resource Type |
Description |
Keywords | Resource Relationships | |||||||||||||
|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|
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SnapATAC2 Resource Report Resource Website 1+ mentions |
SnapATAC2 (RRID:SCR_026622) | source code, software toolkit, software resource | Software Python/Rust package for single-cell epigenomics analysis. | Single-cell epigenomics analysis, | NHGRI U01HG012059; NHGRI UM1HG011585; NIMH RF1MH128838; NIMH UM1MH130994; NIA R24AG073198; NIMH U01MH114828; NIA R56AG069107; NIA U54AG079758; NIMH U01MH121282; NIMH U19MH114831; NEI R01EY031663 |
PMID:38191932 | Free, Available for download, Freely available | SCR_026622 | 2026-07-28 09:46:43 | 3 | |||||||||
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TEProf3 Resource Report Resource Website |
TEProf3 (RRID:SCR_027288) | source code, software toolkit, software resource | Software pipeline to detect Transposable Elements transcripts. Used to identify TE-derived promoters and transcripts using transcriptomic data from multiple sources, including short-read RNA-seq data, long-read RNA-seq data and single cell RNA-seq data. | Transposable Elements, Transposable Elements transcripts, detect TE transcripts, transcriptomic data, short-read RNA-seq data, long-read RNA-seq data, single cell RNA-seq data, | NHGRI R01HG007175; NIA R01AG078958; NINDS U24NS132103; NHGRI U01HG013227 |
PMID:40360186 | Free, Available for download, Freely available, | SCR_027288 | , TE-derived Promoter Finder 3 | 2026-07-28 09:47:07 | 0 | ||||||||
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hdWGCNA Resource Report Resource Website 1+ mentions |
hdWGCNA (RRID:SCR_027496) | source code, software toolkit, software resource | Software R package for performing weighted gene co-expression network analysis in high dimensional transcriptomics data such as single-cell RNA-seq or spatial transcriptomics. | weighted gene co-expression network, high dimensional transcriptomics data, single-cell RNA-seq, transcriptomics | NIA 1RF1AG071683; NINDS P01NS084974; NIDA 1U01DA053826; NIA U54 AG054349; NIA 3U19AG068054 |
PMID:37426759 | Free, Available for download, Freely available | SCR_027496 | hd Weighted Gene Co-expression Network Analysis | 2026-07-28 09:46:57 | 6 | ||||||||
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CIPR-Package Resource Report Resource Website |
CIPR-Package (RRID:SCR_027697) | source code, software toolkit, software resource | Software R package for annotating cell clusters in scRNAseq data. | annotating cell clusters in scRNAseq data, annotating cell clusters, scRNAseq data, single cell RNA sequencing experiments, | NIA R01 AG047956; NIA R01 AI123106 |
PMID:32414321 | Free, Available for download, Freely available | SCR_027697 | Cluster Identity PRedictor Package, Cluster Identity PRedictor (CIPR) | 2026-07-28 09:47:15 | 0 | ||||||||
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Patient-Reported Outcomes Measurement Information System Resource Report Resource Website 1000+ mentions |
Patient-Reported Outcomes Measurement Information System (RRID:SCR_004718) | PROMIS | assessment test provider, material resource | Repository of person centered measures that evaluates and monitors physical, mental, and social health in adults and children. | adult, child, assessment, clinical, anger, pain, fatigue, physical function, depression, anxiety, social function, patient reported outcome, health, measure |
is recommended by: National Library of Medicine has parent organization: University of Washington; Seattle; USA |
NCCIH ; NCI ; NHLBI ; NIA ; NIAMS ; NIDA ; NIDCD ; NIDDK ; NIMH ; NINDS ; NINR ; OD |
nlx_143881 | http://www.healthmeasures.net/index.php?option=com_content&view=category&layout=blog&id=71&Itemid=817 | SCR_004718 | PROMIS, Patient Reported Outcomes Measurement Information System | 2026-07-25 12:12:31 | 2881 | ||||||
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KI Biobank - SATSA Resource Report Resource Website 1+ mentions |
KI Biobank - SATSA (RRID:SCR_005966) | KI Biobank - SATSA | biomaterial supply resource, material resource | Longitudinal twin study to understand individual differences in aging with corresponding data and biological samples. The twin design and the inclusion of twins reared apart makes it possible to study the importance of genetic and environmental factors that may underlie differing aging outcomes. Further, the broad spectrum of biological, psychological, and social domains assessed across the life span makes it possible to study patterns of change within and across domains and how these predict health and diseases of aging. The study is comprised of several longitudinal components including, a comprehensive questionnaire that was sent to all twins in the Swedish Twin Registry who were separated at an early age and reared apart and a control sample of twins reared together. The questionnaires include items concerning rearing, family, adult, and working environment, health status, health related behaviors (e.g. alcohol, tobacco, and dietary habits) as well as relationships, and personality measures. The questionnaires were sent again at 3 year intervals in 1987, 1990, 1993 and after a break again in 2004, 2007, and 2010. Thus far more than 2,000 twins have responded to at least one of the seven questionnaire assessments conducted between 1984 and 2010. Additionally there is information about midlife life style factors from the Swedish Twin Registry that were collected about twenty years before SATSA started. In the second component a subsample of 861 individuals have participated in at least one wave of in-person testing (IPT). The first IPT started in 1986 and since then eight IPTs have been collected and the last wave will be collected during 2012-2013. The IPT includes a health examination, structured interviews, tests of functional capacity, and memory and thinking abilities. To date, over 76% of the sample has participated in 3 or more measurement waves. At IPT9 a third component was added to SATSA, a measure of day-to-day fluctuations in memory and thinking abilities, and emotions. Information about social interactions is also collected. After the visit by the research nurses the twins fill out the day-to-day booklet during the next five days. This procedure will be repeated in IPT10. This will add information about small and short-term changes and more changes are supposed to indicate the beginning of poor health. Data from SATSA can be used to study various aspects of aging. For example, the relative importance of genetic and environmental factors for individual differences in aging especially in cognitive and physical domains has been studied. A further main focus is to study changes within and across domains and which genetic and life style factors predict these changes. Given the wide spectrum of data from measured genes to social relationships collected over more than two decades they dare to say that SATSA is a unique study, with the possibility to answer many questions within gerontology and geriatrics. Types of samples * Serum * DNA Number of sample donors: 674 (June 2010) | gene, environment, health, disease, longitudinal, questionnaire, life style, interview, functional capacity, memory, thinking, emotion, social interaction, cognitive, physical, behavior, relationship, personality, health |
uses: Swedish Twin Registry is listed by: One Mind Biospecimen Bank Listing is related to: KI Biobank - HARMONY has parent organization: Karolisnka Biobank |
Aging, Twin, Control, (reared apart vs. reared together) | MacArthur Foundation Research Network on Successful Aging ; NIA AG04563; NIA AG10175; NIA AG08724; Swedish Research Council 825-2007-7460; Swedish Research Council 825-2009-6141; Swedish Research Council 825-3011-6182; Swedish Council for Working Life and Social Research 97:0147:1B 2009-0795 |
nlx_151325 | http://ki.se/forskning/ki-biobank, http://ki.se/ki/jsp/polopoly.jsp?d=29354&a=24035&l=en | SCR_005966 | Swedish Adoption / Twin Study of Aging, KI Biobank - Swedish Adoption/Twin Study of Aging, SATSA - The Swedish Adoption/Twin Study of Aging, Swedish Adoption/Twin Study of Aging | 2026-07-25 12:12:35 | 1 | |||||
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National Long Term Care Survey Resource Report Resource Website |
National Long Term Care Survey (RRID:SCR_008943) | NLTCS | biomaterial supply resource, material resource | A data set of a longitudinal survey designed to study changes in the health and functional status of older Americans (aged 65+). It also tracks health expenditures, Medicare service use, and the availability of personal, family, and community resources for caregiving. The survey began in 1982, and follow-up surveys were conducted in 1984, 1989, 1994, 1999, and 2004. The surveys are of the entire Medicare-enrolled aged population with a particular emphasis on the functionally impaired. As sample persons are followed through the Medicare record system, virtually 100% of cases can be longitudinally tracked so that declines, as well as increases, in disability may be identified as well as exact dates of death. NLTCS sample persons are followed until death and are permanently and continuously linked to the Medicare record system from which they are drawn. Linkage to the Medicare Part A and B service use records extends from 1982 to 2004, so that detailed Medicare expenditures and types of service use may be studied. Through the careful application of methods to reduce non-sampling error, the surveys provide nationally representative data on: * The prevalence and patterns of functional limitations, both physical and cognitive; * Longitudinal and cohort patterns of change in functional limitation and mortality over 22 years; * Medical conditions and recent medical problems; * Health care services used; * The kind and amount of formal and informal services received by impaired individuals and how it is paid for; * Demographic and economic characteristics like age, race, sex, marital status, education, and income and assets; * Out-of-pocket expenditures for health care services and other sources of payment; * Housing and neighborhood characteristics. In each of the six surveys, large samples (N~20,000) of the oldest-old population (i.e., those 85 and over) are obtained. The survey data (i.e., detailed community and institutional interviews. The linkage to Medicare enrollment files between 1982 and 2004 was 100%, i.e., there was complete follow-up of all cases (including survey non-respondents) for Medicare eligibility (and for most years, detailed Part A and B use), mortality, and date of death. Medicare mortality records (and dates of death) are available for 1982 to 2005. The number of deaths (i.e., about 32,000 from 1982 to 2005) is large enough that detailed mortality analyses can be done. Over the 22 years spanned by the six surveys, a total of 49,242 distinct individuals were followed from and linked to Medicare records. Data Availability: The data are available through ICPSR as Study No. 9681. The data are available only on CD-ROM and only upon completion of a signed Data Use Agreement. Continuously linked Medicare data (1982 through 2004) for the National Long Term Care Surveys are only available from CMS. * Dates of Study: 1982-2004 * Study Features: Longitudinal, Anthropometric Measures * Sample Size: ** 1982: 20,485 ** 1984: 25,401 ** 1989: 17,565 ** 1994: 19,171 ** 1999: 19,907 ** 2004: 20,474 Link: * ICPSR: http://www.icpsr.umich.edu/icpsrweb/ICPSR/studies/09681 | longitudinal, survey, late adult human, interview, medicare, questionnaire, disabled, non-disabled, community, institution, disability, medical condition, education, income, blood, buccal wash, activity, caregiver, diet, family relations, health care service, health services utilization, health status, life satisfaction, live expectancy, living arrangement, marriage, perception, quality of life, apoe, sod2, physical, cognitive, functional limitation, mortality, demographic, economic, race, marital status, asset, payment, housing, neighborhood |
is listed by: One Mind Biospecimen Bank Listing is listed by: Inter-university Consortium for Political and Social Research (ICPSR) has parent organization: Duke University; North Carolina; USA has parent organization: National Archive of Computerized Data on Aging (NACDA) |
Aging, Functionally impaired, Late adult human, Non-disabled | NIA N2 U01 AG0007198 | Public, Data use agreement required. | nlx_151860 | http://dx.doi.org/10.3886/ICPSR09681.v5 | SCR_008943 | NLTCS: National Long-Term Care Survey, National Long Term Care Survey (NLTCS), National Long-Term Care Survey | 2026-07-25 12:12:42 | 0 | ||||
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Layton Center Biomarkers and Genetics Resource Report Resource Website |
Layton Center Biomarkers and Genetics (RRID:SCR_008824) | Layton Biomarkers and Genetics | biomaterial supply resource, material resource | A center that works with the Oregon Alzheimer's Disease Center's Data Core, and collects and stores tissue samples, family history and genotype data of various populations. These include samples and data from subjects from the following sources: OADC clinical studies, the Oregon Brain Aging Study, the Community Brain Donor Program, the Preventing Cognitive Decline with Alternative Therapies program (informally called the Dementia Prevention Study or DPS), the African American Dementia and Aging Project, and the Klamath Exceptional Aging Project. The collected data samples include genomic DNA, lymphoblast cell lines, genome-wide and candidate region SNP marker data, APOE, AD candidate gene markers. | genomic dna, lymphoblast cell line, plasma, dna, cell line, lymphoblast, dementia, late adult human, normal, alzheimer's disease, clinical data, genotype data, genotype, clinical, family history |
is listed by: One Mind Biospecimen Bank Listing has parent organization: OHSU Layton Aging and Alzheimer's Disease Center |
Aging, Dementia, Alzheimer's disease | NIA P30 AG08017 | Researchers must fill out request forms | nlx_144448 | SCR_008824 | Layton Aging and Alzheimers Disease Center Biomarkers and Genetics, Layton Center Biomarkers and Genetics | 2026-07-25 12:12:41 | 0 | |||||
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Iowa 65+ Rural Health Study Resource Report Resource Website 1+ mentions |
Iowa 65+ Rural Health Study (RRID:SCR_008937) | Iowa 65+ Rural Health Study | biomaterial supply resource, material resource | A data set and sister study to the Established Populations for Epidemiologic Study of the Elderly (EPESE). It complements the findings of the three other EPESE sites (East Boston, MA; New Haven, CT; and north-central North Carolina) and has common items and methods in many domains. The target population was all persons 65 years and older in two rural counties in east central Iowa: Iowa and Washington counties. In 1981 a census of older persons in the target area was conducted by the investigators, creating an ascertainment list having 99% of the persons identified in the previous year by the US Decennial Census. The baseline survey was conducted between December 1991 and August 1992. Overall, 3,673 persons, or 80% of the target population were interviewed: 65-69 (N = 986), 70-74 (N = 988), 75-79 (N = 815), 80-84 (N = 523), and 85+ (N = 361). The population is virtually entirely Caucasian. Subsequently, personal follow-up surveys were conducted 3, 6, and 10 years after the baseline survey. Telephone surveys were conducted 1, 2, 4, 5, and 7 years after the baseline survey. Data collected from respondents included information about demographics, major health conditions, health care utilization, hearing and vision, weight and height, elements of nutrition, sleep problems, depressive and anxiety symptoms, alcohol and tobacco use, cognitive performance and dementia screening, incontinence measures, life satisfaction index, social networks and support, worries, medication use, activities of daily living, dental problems, satisfaction with medical care, life events, brief economic status, automobile driving habits, multiple measures of physical and disability status, and blood pressure. At follow-up #6, there were a series of physical function performance tests, the so-called NIA-MacArthur Battery, and blood was drawn for biochemical tests and potentially other determinations. In addition, some datasets were linked to the EPESE dataset under appropriate restrictions, including Iowa state driving records and clinical diagnoses and medical care utilization from the Centers for Medicare and Medicaid Services. Data Availability: The dataset has been shared with several investigative teams under special arrangement with the Principal Investigator. Early surveys are available from ICPSR. A small storage of blood is available for exploratory analyses. * Dates of Study: 1991-2001 * Study Features: Longitudinal, Anthropometric Measures, Biomarkers * Sample Size: 1991-2: 3,673 (baseline) Link: EPESE 1981-93 ICPSR: http://www.icpsr.umich.edu/icpsrweb/ICPSR/studies/09915 | blood, mortality, hospitalization, chronic disease, late adult human, longitudinal, anthropometry, biomarker, survey, caucasian, demographics, health, health care, hearing, vision, weight, height, nutrition, sleep, depression, anxiety, alcohol use, tobacco use, cognition, dementia, incontinence, social, medication use, activity, dental, satisfaction, medical care, economic status, driving, physical, disability, blood pressure, interview |
is listed by: One Mind Biospecimen Bank Listing is listed by: Inter-university Consortium for Political and Social Research (ICPSR) has parent organization: Established Populations for Epidemiologic Studies of the Elderly |
Aging | NIA | Public | nlx_151838 | SCR_008937 | Iowa 65 and over Rural Health Study, Iowa 65 Plus Rural Health Study | 2026-07-25 12:12:42 | 3 | |||||
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National Social Life Health and Aging Project (NSHAP) Resource Report Resource Website 1+ mentions |
National Social Life Health and Aging Project (NSHAP) (RRID:SCR_008950) | NSHAP | biomaterial supply resource, material resource | A longitudinal, population-based study of health and social factors, aiming to understand the well-being of older, community-dwelling Americans by examining the interactions among physical health and illness, medication use, cognitive function, emotional health, sensory function, health behaviors, social connectedness, sexuality, and relationship quality. NSHAP provides policy makers, health providers, and individuals with useful information and insights into these factors, particularly on social and intimate relationships. The study contributes to finding new ways to improve health as people age. In 2005 and 2006, NORC and Principal Investigators at the University of Chicago conducted the first wave of NSHAP, completing more than 3,000 interviews with a nationally representative sample of adults aged 57 to 85. In 2010 and 2011, nearly 3,400 interviews were completed for Wave 2 with these Wave 1 Respondents, Wave 1 Non-Interviewed Respondents, and their spouses or cohabiting romantic partners. The second wave of NSHAP is essential to understanding how social and biological characteristics change. NSHAP, by eliciting a variety of information from respondents over time, provides data that will allow researchers in a number of fields to examine how specific factors may or may not affect each other across the life course. For both waves, data collection included three measurements: in-home interviews, biomeasures, and leave-behind respondent-administered questionnaires. The face-to-face interviews and biomeasure collection took place in respondents'''' homes. NSHAP uses a national area probability sample of community residing adults born between 1920 and 1947 (aged 57 to 85 at the time of the Wave 1 interview), which includes an oversampling of African-Americans and Hispanics. The NSHAP sample is built on the foundation of the national household screening carried out by the Health and Retirement Study (HRS) in 2004. Through a collaborative agreement, HRS identified households for the NSHAP eligible population. A sample of 4,400 people was selected from the screened households. NSHAP made one selection per household. Ninety-two percent of the persons selected for the NSHAP interview were eligible. For Wave 2 in 2010 and 2011, NSHAP returned to Wave 1 Respondents and eligible non-interviewed respondents from Wave 1 (Wave 1 Non-Interviewed Respondents). NSHAP also extended the Wave 2 sample to include the cohabiting spouses and romantic partners of Wave 1 Respondents and Wave 1 Non-Interviewed Respondents. Partners were considered to be eligible to participate in NSHAP if they resided in the household with the Wave 1 Respondent/Wave 1 Non-Interviewed Respondent at the time of the Wave 2 interview and were at least 18 years of age. Wave I biomeasures: height; weight; waist circumference; blood pressure; smell; taste; vision; touch; respondent-administered vaginal swabs; oral mucosal transudate (OMT) for HIV-1 antibody screening; saliva; ����??get up and go����??; and blood spots. Technological advances in biomeasure collection methods have decreased respondent burden and increased ease of collection, storage, and yield of various biomeasures for the second wave of NSHAP. Wave II biomeasures: anthropometrics, including height, hip and waist circumference, and weight; cardiovascular function, including blood pressure, heart rate variability, and pulse; 2 of the 3 components of the short physical performance battery (SPPB) including chair stands and a timed walk; sensory function including smell; and actigraphy. In addition, we collect dried blood spots, microtainer blood, passive drool and salivettes, urine, and respondent-administered vaginal swabs, each of which are analyzed using multiple assays for a variety of measures and rationales. Furthermore, we assess respondents����?? cognition using the Montreal Cognitive Assessment (MoCA). Data Availability: NSHAP data made available to the public does not contain any identifiable respondent information and uses code numbers instead of names for all data. De-identified data from the 2005 and 2006 interviews are available to researchers through the National Archive of Computerized Data on Aging, located within Inter-University Consortium for Political and Social Research (ICPSR). Data from the Wave 2 interviews in 2010 and 2011 will be available in the summer of 2012. * Dates of Study: 2005-2006, 2010-2011 * Study Features: Biospecimens, Anthropometric Measures * Sample Size: ** Wave 1: 3,005 ** Wave 2: 3,377 Links: * ICPSR: http://www.icpsr.umich.edu/icpsrweb/ICPSR/studies/20541 | social life, health, man, woman, late adult human, middle adult human, longitudinal, social support, personal relationship, social, physical health, illness, cognitive function, emotional health, sensory function, social connectedness, sexuality, relationship quality, intimate relationship, biospecimen, anthropometric measure, interview, biomeasure, questionnaire, african-american, hispanic, minority, marriage, anxiety, attitude, body height, body weight, doctor visit, drug, ethnicity, family size, health attitude, health problem, health services utilization, health status, intimate partner, life satisfaction, medical evaluation, medical procedure, medication, menopause, mental health, morbidity, nutrition, quality of life, sexual activity, cohabitation, social network, demographic, prevention, cognition, well-being, survey, sleep, actigraphy, healthy aging, vaginal swab, blood spot, saliva, blood, urine |
is listed by: One Mind Biospecimen Bank Listing is listed by: Inter-university Consortium for Political and Social Research (ICPSR) is related to: Biomarker Network has parent organization: University of Chicago; Illinois; USA has parent organization: National Archive of Computerized Data on Aging (NACDA) |
Aging | Office of Research on Women's Health ; Office of AIDS Research ; National Opinion Research Center ; NIA R01-AG021487; NIA R37-AG030481; NIA R01-AG033903 |
PMID:19837963 | Public: Users must request and complete the NSHAP Restricted Data Use Agreement form. | nlx_151867 | http://gero.usc.edu/CBPH/network/resources/studies/nshap.shtml | SCR_008950 | National Social Life Health and Aging Project | 2026-07-25 12:12:42 | 4 | |||
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HistoloZee Resource Report Resource Website 1+ mentions |
HistoloZee (RRID:SCR_019263) | software application, software resource | Software tool that integrates histology reconstruction, MRI co-registration, and manual segmentation tools in easy-to-use and intuitive interface. Permits real-time interaction with complex and large histology datasets during co-registration steps of histology reconstruction. Software tool for interactively mapping 2D and 3D molecular and anatomical histology into Common Coordinate Frameworks. Has simple, interactive registration workflows that connect user images with CCFs. | Imaging assay, interactively mapping, 2D, 3D, molecular histology, anatomical histology, Common Coordinate Frameworks, CCFs |
is used by: BICCN has parent organization: University of Pennsylvania; Philadelphia; USA |
NIA R01 AG037376; NIA K25 AG027785; NSERC ; HHMI |
PMID:24036353 | Free, Freely available | SCR_019263 | 2026-07-26 09:07:23 | 1 | ||||||||
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JIST: Java Image Science Toolkit Resource Report Resource Website 10+ mentions |
JIST: Java Image Science Toolkit (RRID:SCR_008887) | JIST | software application, software resource, data processing software | A native Java-based imaging processing environment similar to the ITK/VTK paradigm. Initially developed as an extension to MIPAV (CIT, NIH, Bethesda, MD), the JIST processing infrastructure provides automated GUI generation for application plug-ins, graphical layout tools, and command line interfaces. This repository maintains the current multi-institutional JIST development tree and is recommended for public use and extension. JIST was originally developed at IACL and MedIC (Johns Hopkins University) and is now also supported by MASI (Vanderbilt University). | experimental control, modeling, quantification, segmentation, shape analysis, spatial transformation, workflow, macos, windows, os independent, bsd, linux, sunos/solaris, java, afni brik, analyze, cor, dicom, gifti, mgh/mgz, minc, minc2, nifti-1, nrrd, philips par/rec, magnetic resonance |
is listed by: NeuroImaging Tools and Resources Collaboratory (NITRC) is listed by: Debian is related to: Maps4Mipav (Exploratory JIST) is related to: MR Connectome Automated Pipeline is related to: Multi-Modal MRI Reproducibility Resource is related to: TOADS-CRUISE Brain Segmentation Tools is related to: CBS High-Res Brain Processing Tools is related to: JHU Proj. in Applied Medical Imaging is related to: DOTS WM tract segmentation has parent organization: Johns Hopkins University; Maryland; USA has parent organization: Vanderbilt University; Tennessee; USA |
NINDS 5R01NS037747; NINDS 1R01NS056307; NIA N01-AG-4-0012 |
PMID:20077162 | GNU Lesser General Public License | nlx_151344 | https://sources.debian.org/src/jist/ | SCR_008887 | Java Image Science Toolkit | 2026-07-26 09:04:46 | 20 | ||||
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Functional Regression Analysis of DTI Tract Statistics Resource Report Resource Website |
Functional Regression Analysis of DTI Tract Statistics (RRID:SCR_002293) | FRATS | software application, image analysis software, software resource, data processing software | Software for the analysis of multiple diffusion properties along fiber bundle as functions in an infinite dimensional space and their association with a set of covariates of interest, such as age, diagnostic status and gender, in real applications. The resulting analysis pipeline can be used for understanding normal brain development, the neural bases of neuropsychiatric disorders, and the joint effects of environmental and genetic factors on white matter fiber bundles. | computational neuroscience, imaging genomics, magnetic resonance, regression analysis, dti, statistics |
is listed by: NeuroImaging Tools and Resources Collaboratory (NITRC) has parent organization: University of North Carolina at Chapel Hill; North Carolina; USA |
NSF BCS-08-26844; NCRR UL1-RR025747-01; NIMH MH086633; NIA AG033387; NIMH MH064065; NICHD HD053000; NIMH MH070890; NINDS R01NS055754; NIBIB U54 EB005149-01 |
PMID:20335089 | Academic Free License | nlx_155629 | SCR_002293 | Functional Regression Analysis of DTI | 2026-07-27 09:31:30 | 0 | |||||
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Study of Womens Health Across the Nation (SWAN) Repository Resource Report Resource Website 1+ mentions |
Study of Womens Health Across the Nation (SWAN) Repository (RRID:SCR_008810) | SWAN Repository | cell repository, biomaterial supply resource, material resource | The SWAN Repository is the biologic specimen bank of the Study of Women''s Health Across the Nation (SWAN). SWAN is a National Institutes of Health funded, multi-site, longitudinal study of the natural history of the midlife including the menopausal transition. The overall goal of SWAN is to describe the chronology of the biological and psychosocial characteristics that occur during midlife and the menopausal transition. In addition, SWAN is describing the effect of the transition and its associated characteristics on subsequent health and risk factors for age related chronic diseases. SWAN was designed to collect and analyze information on demographics, health and social characteristics, reproductive history, pre-existing illness, physical activity, and health practices of mid-life women in multi-ethnic, community-based samples; elucidate factors that differentiate symptomatic from asymptomatic women during the menopausal transition; identify and utilize appropriate markers of the aging of the ovarian-hypothalamo-pituitary axis and relate these markers to alterations in menstrual cycle characteristics as women approach and traverse the menopause; and explain factors that differentiate women most susceptible to long-term pathophysiological consequences of ovarian hormone deficiency from those who are protected. The biological specimen bank can also be linked by identification number (not by participant name) to data collected in the Core SWAN protocol. The specimen bank can also be linked with data from the Daily Hormone Study as well as menstrual calendars. Types of data include: epidemiological data, psychosocial data, physical measures, as well as data from assays (endocrine and cardiovascular information). SWAN has seven clinical study sites located in six states, two in California, and one each in Chicago, Boston, Detroit area, northern New Jersey and Pittsburgh. The SWAN cohort was recruited in 1996/7 and consists of 3302 African American, Caucasian, Chinese American, Hispanic and Japanese American women. Cohort members complete an annual clinic visit. The Core Repository includes over 1.8 million samples from the first 11 years of specimen collection. This includes samples from annual visits and samples from the Daily Hormone Sub-study (DHS). During an Annual visit, participants provide materials for up to 24-28 aliquots to be incorporated into the Repository. During a DHS visit, a participant provides 6 serum samples and between ~30-50 urine samples depending upon the length of her menstrual cycle. DHS participants (887) provide urine samples collected throughout one menstrual cycle each year. A typical DHS collection consists of a blood draw plus collection of 10 ml of urine daily throughout the month-long menstrual cycle, up to 50 days. DHS Repository samples consist of 6 serum samples and 30 5 ml urine samples. Specimen collection occurs from the time of menstrual bleed to the subsequent menstrual bleed or up to 50 days, whichever come first. The current DHS collection consists of more than 200,000 specimens stored in 5 ml vials. The SWAN DNA Repository currently contains extracted diluted DNA from 1538 SWAN participants. B-lymphocytes were transformed with Epstein Barr virus, and the resulting transformed b-cells aliquoted. Information about using these transformed cells for genomic or proteomic studies is available. DNA has been extracted from one aliquot (per woman) of the immortalized cells using the Puregene system. There was an average DNA yield of 217.0 mg/mL and a A260/A280 average ratio of 1.86. This DNA, in turn, has been aliquoted into 20ng/1 ml units for release by the DNA Repository. Samples are free of personal identifiers and collected under consents that allow a broad range of activities related to women''s health. All of these samples are available to researchers who wish to study the midlife and menopausal transition. Scientists who use these specimens can also request data collected during a participant''s annual visit including medical and health history, psychosocial measures, biological measures and anthropometry. | woman, menopause, clinical, african american, caucasian, chinese american, hispanic, japanese american, clinical data, serum, urine, dna, blood, whole blood, sputum pellet, immortalized cell, cell, frozen, liquid nitrogen, menopause, midlife woman |
is listed by: One Mind Biospecimen Bank Listing has parent organization: University of Michigan; Ann Arbor; USA |
Menopause, Midlife woman, Aging | NIA | Public: All of these samples are available to researchers who wish to study the midlife and menopausal transition. | nlx_144411 | SCR_008810 | Study of Womens Health Across the Nation Repository, Study of Women''s Health Across the Nation Repository, Study of Women''s Health Across the Nation (SWAN) Repository | 2026-07-27 09:33:12 | 1 | |||||
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Template Based Rotation Resource Report Resource Website 1+ mentions |
Template Based Rotation (RRID:SCR_012157) | TBR | software application, image analysis software, software resource, data processing software | A tool for functional connectivity analysis of fcMRI data that maps functional data from individual sessions onto a priori spatial components from group level parcellations. | functional connectivity, analysis, fmri, fcmri, parcellation, map, template, resting state, matlab | Aging | NIA P01AG036694 | DOI:10.1016/j.neuroimage.2014.08.022 | GNU General Public License v3 | rid_000095 | http://nmr.mgh.harvard.edu/harvardagingbrain/People/AaronSchultz/Aarons_Scripts.html | SCR_012157 | Template Based Rotation (TBR) | 2026-07-27 09:34:03 | 1 | ||||
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Religion Aging and Health Survey Resource Report Resource Website |
Religion Aging and Health Survey (RRID:SCR_003625) | Religion Aging and Health Survey | data or information resource, data set | Data set that looked at religion, self-rated health, depression, and psychological well-being in a sample of older Blacks and older Whites (aged 65 and over) within the United States. Questions were asked regarding religious status, activities, and beliefs among those who currently practice the Christian faith, those who used to be Christian but are not now, and those who have never been associated with any religion during their lifetimes. Demographic variables include age, race, sex, education, and income. Wave II was collected in 2004 and reinterviewed 1,024 respondents. There were 75 respondents who refused to participate, 112 who could not be located, 70 that were too ill for participation, 11 who had moved to nursing homes and 208 were deceased. * Dates of Study: 2001- 2004 * Study Features: Longitudinal, Minority Oversample * Sample Size: 1,500 | late adult human, religion, christianity, church membership, depression, health attitude, health problem, prayer, psychological wellbeing, religious behavior, religious belief, religious denomination, worship, caucasian, african american, interview, longitudinal, minority |
is listed by: Inter-university Consortium for Political and Social Research (ICPSR) has parent organization: University of Michigan; Ann Arbor; USA |
Aging, Depressive Disorder | NIA 5 R01 AG014749 | nlx_157777 | SCR_003625 | 2026-07-27 09:31:49 | 0 | |||||||
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Seattle Longitudinal Study Resource Report Resource Website |
Seattle Longitudinal Study (RRID:SCR_003654) | SLS | data or information resource, data set | Data set from an ongoing, longitudinal-sequential study of adult-cognitive development, which began in 1956, that focuses on individual differences in age-related changes and differences across cohorts. The general purpose of the study is to examine the changes in intelligence and various abilities throughout adulthood. The data provide a normative base to determine the ages of detectable decrements in ability and the magnitudes of the decrements. The study also seeks to examine patterns of generational differences and age-related differences and to determine the effects of educational intervention on intellectual decline. This study is a mixed cross-sectional, longitudinal, and time-lag design. Included are family studies of cognitive similarity, prospective studies of early signs of dementia via psychological and genetic markers, as well as the investigation of personality and demographic variables that affect cognitive change in adults from young adulthood to advanced old age. Questionnaire topics include health behavior, behavioral rigidity, family environment, Life Complexity Inventory, CES-D Depression, and cognitive and neuropsychology batteries. Group Health Cooperative of Puget Sound Medical Records and Pharmacy Records. * Dates of Study: 1956-Present * Study Features: Longitudinal * Sample Size: 6,000+ | late adult human, blood pressure, cognition, cohort study, exercise, female, leisure activity, likelihood function, linear model, male, memory, middle adult human, multivariate analysis, professional autonomy, risk factor, washington, longitudinal, psychological development, personality, demographic, cognitive ability, cognitive functioning, cognitive impairment, cognitive processes, intelligence, questionnaire, health behavior, behavioral rigidity, family environment, life complexity inventory, ces-d depression, cognitive battery, neuropsychology battery, behavior |
is listed by: Inter-university Consortium for Political and Social Research (ICPSR) has parent organization: Pennsylvania State University |
Aging, Dementia, Cognition disorder | NIA | PMID:19606423 | Must consult data owners directly | nlx_157807 | http://geron.psu.edu/sls/ | SCR_003654 | Seattle Longitudinal Study (SLS) of Adult Cognitive Development, Seattle Longitudinal Study of Adult Cognitive Development | 2026-07-27 09:31:49 | 0 | |||
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Social Environment and Biomarkers of Aging Study in Taiwan Resource Report Resource Website |
Social Environment and Biomarkers of Aging Study in Taiwan (RRID:SCR_003704) | SEBAS | data or information resource, data set | Data sets of information regarding the health and well-being of older persons in Taiwan (from 2000 and 2006), in particular the relationship between life challenges and mental and physical health, the impact of social environment on the health and well-being of the elderly, and biological markers of health and stress. The study collected self-reports of physical, psychological, and social well-being, plus extensive clinical data based on medical examinations and laboratory analyses. Examination of health outcomes included chronic illnesses, functional status, psychological well-being, and cognitive function. Questions regarding life challenges focused on perceived stress, economic difficulties, security and safety, and the consequences of a major earthquake. Biological markers were used to identify cardiovascular risk factors, metabolic process measures, immune-system activity, the hypothalamic-pituitary adrenal axis, and sympathetic nervous system activity. The study design consists of face-to-face interviews with participants drawn from a random sub-sample of participants from 27 PSUs from the 1999 Survey of Health and Living Status of the Middle Aged and Elderly in Taiwan. Hospital visits and blood and urine specimens also were collected. A second wave of SEBAS was conducted in 2006 using a similar protocol to SEBAS 2000, but with the addition of performance assessments conducted by the interviewers at the end of the home interview. * Dates of Study: -2000, 2006 * Study Features: Longitudinal, International, Anthropometric Measures * Sample Size: 27 PSUs | late adult human, middle adult human, longitudinal, international, anthropometric measure, health, well-being, taiwan, biomarker, cognitive functioning, diet, disease, health behavior, health status, illness, leisure, life event, life satisfaction, medical evaluation, medical history, medication, mental health, physical condition, physical limitation, psychological well-being, social environment, stress, urinalysis, clinical, interview, metabolic process, immune-system, hypothalamic-pituitary adrenal, sympathetic nervous system, blood, urine |
is listed by: National Archive of Computerized Data on Aging (NACDA) is listed by: Inter-university Consortium for Political and Social Research (ICPSR) has parent organization: Georgetown University; Washington D.C.; USA |
Aging, Cardiovascular disease | Taiwan Department of Health ; Bureau of Health Promotion National Health Research Institute Taiwan ; Taiwan Provincial Government ; NIA R01 AG16790; NIA R01 AG16661 |
Public, Data Use Agreement | nlx_157859 | http://www.icpsr.umich.edu/icpsrweb/NACDA/studies/03792/version/5, http://www.icpsr.umich.edu/icpsrweb/ICPSR/studies/03792 | http://cph.georgetown.edu/Taiwan/taiwan.htm | SCR_003704 | Social Environment and Biomarkers of Aging Study (SEBAS) in Taiwan, SEBAS in Taiwan | 2026-07-27 09:31:50 | 0 | |||
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National Longitudinal Mortality Study Resource Report Resource Website 10+ mentions |
National Longitudinal Mortality Study (RRID:SCR_008946) | NLMS | data or information resource, data set | A database based on a random sample of the noninstitutionalized population of the United States, developed for the purpose of studying the effects of demographic and socio-economic characteristics on differentials in mortality rates. It consists of data from 26 U.S. Current Population Surveys (CPS) cohorts, annual Social and Economic Supplements, and the 1980 Census cohort, combined with death certificate information to identify mortality status and cause of death covering the time interval, 1979 to 1998. The Current Population Surveys are March Supplements selected from the time period from March 1973 to March 1998. The NLMS routinely links geographical and demographic information from Census Bureau surveys and censuses to the NLMS database, and other available sources upon request. The Census Bureau and CMS have approved the linkage protocol and data acquisition is currently underway. The plan for the NLMS is to link information on mortality to the NLMS every two years from 1998 through 2006 with research on the resulting database to continue, at least, through 2009. The NLMS will continue to incorporate data from the yearly Annual Social and Economic Supplement into the study as the data become available. Based on the expected size of the Annual Social and Economic Supplements to be conducted, the expected number of deaths to be added to the NLMS through the updating process will increase the mortality content of the study to nearly 500,000 cases out of a total number of approximately 3.3 million records. This effort would also include expanding the NLMS population base by incorporating new March Supplement Current Population Survey data into the study as they become available. Linkages to the SEER and CMS datasets are also available. Data Availability: Due to the confidential nature of the data used in the NLMS, the public use dataset consists of a reduced number of CPS cohorts with a fixed follow-up period of five years. NIA does not make the data available directly. Research access to the entire NLMS database can be obtained through the NIA program contact listed. Interested investigators should email the NIA contact and send in a one page prospectus of the proposed project. NIA will approve projects based on their relevance to NIA/BSR''s areas of emphasis. Approved projects are then assigned to NLMS statisticians at the Census Bureau who work directly with the researcher to interface with the database. A modified version of the public use data files is available also through the Census restricted Data Centers. However, since the database is quite complex, many investigators have found that the most efficient way to access it is through the Census programmers. * Dates of Study: 1973-2009 * Study Features: Longitudinal * Sample Size: ~3.3 Million Link: *ICPSR: http://www.icpsr.umich.edu/icpsrweb/ICPSR/studies/00134 | national, longitudinal, mortality, demographic, socio-economic, age, cause of death, death, death record, ethnicity, mortality rate, gender, marital status, race, late adult human, FASEB list |
is listed by: Inter-university Consortium for Political and Social Research (ICPSR) has parent organization: U.S. Census Bureau |
Aging | NCI ; NHLBI ; NIA ; National Center for Health Statistics ; U.S. Census Bureau |
Public | nlx_151861 | SCR_008946 | National Longitudinal Mortality Study (NLMS) | 2026-07-27 09:33:12 | 32 | |||||
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Longitudinal Study of Generations Resource Report Resource Website |
Longitudinal Study of Generations (RRID:SCR_008939) | LSOG | data or information resource, data set | A dataset of a survey of intergenerational relations among 2,044 adult members of some 300 three- (and later four-) generation California families: grandparents (then in their sixties), middle-aged parents (then in their early forties), grandchildren (then aged 16 to 26), and later the great-grandchildren as they turn age 16, and further surveys in 1985, 1988, 1991, 1994, 1997 and 2001. This first fully-elaborated generation-sequential design makes it possible to compare sets of parents and adult-children at the same age across different historical periods and addresses the following objectives: # To track life-course trajectories of family intergenerational solidarity and conflict over three decades of adulthood, and across successive generations of family members; # To identify how intergenerational solidarity, and conflict influence the well-being of family members throughout the adult life course and across successive generations; # To chart the effects of socio-historical change on families, intergenerational relationships, and individual life-course development during the past three decades; # To examine women''s roles and relationships in multigenerational families over 30 years of rapid change in the social trajectories of women''s lives. These data can extend understanding of the complex interplay among macro-social change, family functioning, and individual well-being over the adult life-course and across successive generations. Data Availability: Data from 1971-1997 are available through ICPSR as Study number 4076. * Dates of Study: 1971-2001 * Study Features: Longitudinal * Sample Size: ** 345 Three-generational families ** 2,044 Adults (1971 baseline) Link: * ICPSR: http://www.icpsr.umich.edu/icpsrweb/ICPSR/studies/04076 | adult, california, survey, intergenerational relations, adolescent, middle adult human, early adult human, late adult human, interview, questionnaire, activities of daily living, age, caregiver, child, death, drug use, education, employment, ethnicity, family history, generation, grandchildren, grandparent, household composition, institutional care, interpersonal relations, life satisfaction, marital status, mental health, military service, parent, physical condition, political affiliation, race, religion, self concept, sibling, conflict, woman, social change, family functioning, well-being, longitudinal |
is listed by: Inter-university Consortium for Political and Social Research (ICPSR) has parent organization: University of Southern California; Los Angeles; USA has parent organization: National Archive of Computerized Data on Aging (NACDA) |
Aging | NIA 2R01AG00799-21A2 | Public | nlx_151845 | http://gero.usc.edu/research/4gen/ | SCR_008939 | Longitudinal Study of Generations (LSOG) | 2026-07-27 09:33:12 | 0 |
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